2020
Patient reported outcome measures (PROMs) in amyotrophic lateral sclerosis
De Marchi F, Berry J, Chan J, Caldwell S, Ellrodt A, Scalia J, Burke K, Fang T, Clark Sisodia R, Schwamm L, Moura L, Paganoni S. Patient reported outcome measures (PROMs) in amyotrophic lateral sclerosis. Journal Of Neurology 2020, 267: 1754-1759. PMID: 32125520, DOI: 10.1007/s00415-020-09774-8.Peer-Reviewed Original ResearchConceptsOutcome measuresClinical careALS Functional RatingMental health subscoresALSFRS-R scoreOutpatient clinic visitsOutcomes Measurement Information SystemClinical outcome measuresRoutine clinical careMental health scoresAmyotrophic lateral sclerosisMeasurement Information SystemQuality of lifeTablet-based surveyALS careALS clinicClinic visitsPROM scoresFunctional ratingClinic staffHealth scoresLateral sclerosisPROM collectionPatientsPhysical health
2019
Adjusted cost analysis of video televisits for the care of people with amyotrophic lateral sclerosis
Paganoni S, van de Rijn M, Drake K, Burke K, Doyle M, Ellrodt A, Nicholson K, Atassi N, de Marchi F, Babu S, Estrada J, Schwamm L, Berry J. Adjusted cost analysis of video televisits for the care of people with amyotrophic lateral sclerosis. Muscle & Nerve 2019, 60: 147-154. PMID: 31136007, PMCID: PMC6772103, DOI: 10.1002/mus.26606.Peer-Reviewed Original Research