THE CHALLENGE OF PROVIDING CONTINUITY IN THE CARE OF A DISABLED CHILD: SMITH-LEMLI-OPITZ SYNDROME
Koenig K, Scahill L, Teague B. THE CHALLENGE OF PROVIDING CONTINUITY IN THE CARE OF A DISABLED CHILD: SMITH-LEMLI-OPITZ SYNDROME. Issues In Mental Health Nursing 2002, 23: 641-648. PMID: 12217226, DOI: 10.1080/016128402760210190.Peer-Reviewed Original ResearchMeSH KeywordsChildCommunicationContinuity of Patient CareCooperative BehaviorDisabled ChildrenFamilyHumansInterprofessional RelationsMaleNeeds AssessmentNurse's RolePatient AdvocacyPatient Care TeamPediatric NursingProfessional-Family RelationsPsychiatric NursingSmith-Lemli-Opitz SyndromeSocial SupportConceptsHealth care providersCare providersSmith Lemli Opitz syndromeHealth care teamLife-threatening consequencesRole of nursingOngoing careCare teamSerious developmental disordersPsychiatric difficultiesAppropriate consultationDisabled childrenYoung childrenChildrenSmith-LemliSyndromeOpitz syndromeDevelopmental disordersConsultationCareCommunity agenciesDisordersExpert consultationHealthAdvocacy agencies