Harnessing person-generated health data to accelerate patient-centered outcomes research: the Crohn’s and Colitis Foundation of America PCORnet Patient Powered Research Network (CCFA Partners)
Chung AE, Sandler RS, Long MD, Ahrens S, Burris JL, Martin CF, Anton K, Robb A, Caruso TP, Jaeger EL, Chen W, Clark M, Myers K, Dobes A, Kappelman MD. Harnessing person-generated health data to accelerate patient-centered outcomes research: the Crohn’s and Colitis Foundation of America PCORnet Patient Powered Research Network (CCFA Partners). Journal Of The American Medical Informatics Association 2016, 23: 485-490. PMID: 26911821, PMCID: PMC4901381, DOI: 10.1093/jamia/ocv191.Peer-Reviewed Original ResearchConceptsInflammatory bowel diseasePatient-powered research networksPatient-centered outcomes researchPerson-generated health dataColitis FoundationPatient-centered research agendaIndividual patient dataOutcomes researchHealth dataHealth care decisionsResearch NetworkBowel diseaseHealth behaviorsComparative effectivenessCrohn'sCare decisionsPatient dataTranslational researchPatientsDisease