2023
Maintaining Engagement in Adults with Neurofibromatosis Type 1 to Use the iCanCope Mobile Application (iCanCope-NF)
Buono F, Larkin K, Pham Q, De Sousa D, Zempsky W, Lalloo C, Stinson J. Maintaining Engagement in Adults with Neurofibromatosis Type 1 to Use the iCanCope Mobile Application (iCanCope-NF). Cancers 2023, 15: 3213. PMID: 37370823, PMCID: PMC10296339, DOI: 10.3390/cancers15123213.Peer-Reviewed Original ResearchPsychosocial treatmentsContingency managementSemi-structured interviewsChronic painGoal settingEngagement dataParticipants' experiencesCurrent studyNeurofibromatosis type 1EngagementCustomized mobile applicationConsistent issueAdultsMixed methodologyPositive feedbackMixed methodsExperienceMoodPhysical activityMobile applicationsGoalPain treatmentSleepSubset of dataIndividuals
2022
Perspectives on adapting a mobile application for pain self-management in neurofibromatosis type 1: results of online focus group discussions with individuals living with neurofibromatosis type 1 and pain management experts
Grau LE, Larkin K, Lalloo C, Stinson JN, Zempsky WT, Ball SA, Buono FD. Perspectives on adapting a mobile application for pain self-management in neurofibromatosis type 1: results of online focus group discussions with individuals living with neurofibromatosis type 1 and pain management experts. BMJ Open 2022, 12: e056692. PMID: 35840301, PMCID: PMC9295671, DOI: 10.1136/bmjopen-2021-056692.Peer-Reviewed Original ResearchConceptsPain management expertsNeurofibromatosis type 1Type 1Self-management mobile appAudio-recorded focus groupsChronic painAPP levelsFocus groupsPainPotential associationMobile health applicationsNF1 groupTypes of participantsGenetic disordersNeeds of individualsOnline focus group discussionsOnline focus groupsFocus group discussionsAppropriate visualsGroupParticipant groupsFree accessSpecific needsIndividualsHealth applications