2024
Understanding chronic pain in Neurofibromatosis Type 1 using the Neurofibromatosis Pain Module (NFPM)
Buono F, Larkin K, Zempsky W, Grau L, Martin S. Understanding chronic pain in Neurofibromatosis Type 1 using the Neurofibromatosis Pain Module (NFPM). American Journal Of Medical Genetics Part A 2024, 194: e63541. PMID: 38234177, DOI: 10.1002/ajmg.a.63541.Peer-Reviewed Original ResearchNeurofibromatosis type 1Chronic painImpact of CPPain modulationPain regionsModerate pain severityType 1Autosomal dominant genetic disorderCross-sectional studyQuality of lifeDominant genetic disorderMedical providersPain severitySensitive clinical measureDaily functioningClinical measuresPainEffective treatmentGenetic disordersNeurofibromatosisClinical assessmentMultiple domainsAdultsQuantitative responseProviders
2023
Maintaining Engagement in Adults with Neurofibromatosis Type 1 to Use the iCanCope Mobile Application (iCanCope-NF)
Buono F, Larkin K, Pham Q, De Sousa D, Zempsky W, Lalloo C, Stinson J. Maintaining Engagement in Adults with Neurofibromatosis Type 1 to Use the iCanCope Mobile Application (iCanCope-NF). Cancers 2023, 15: 3213. PMID: 37370823, PMCID: PMC10296339, DOI: 10.3390/cancers15123213.Peer-Reviewed Original ResearchPsychosocial treatmentsContingency managementSemi-structured interviewsChronic painGoal settingEngagement dataParticipants' experiencesCurrent studyNeurofibromatosis type 1EngagementCustomized mobile applicationConsistent issueAdultsMixed methodologyPositive feedbackMixed methodsExperienceMoodPhysical activityMobile applicationsGoalPain treatmentSleepSubset of dataIndividuals
2022
The Impact of SARS-CoV-2 (COVID-19) on the Acuity of Mental Health–Related Diagnosis at Admission for Young Adults in New York City and Washington, DC: Observational Study
Fialk A, Connors A, Cerrito B, Jones K, Buono F. The Impact of SARS-CoV-2 (COVID-19) on the Acuity of Mental Health–Related Diagnosis at Admission for Young Adults in New York City and Washington, DC: Observational Study. JMIR Formative Research 2022, 6: e39217. PMID: 35767688, PMCID: PMC9285669, DOI: 10.2196/39217.Peer-Reviewed Original ResearchMental health servicesYoung adultsMental healthObservational studyHealth servicesCOVID-19 pandemicGeneralized anxietyTreatment success rateCOVID-19SARS-CoV-2Significant differencesTreatment of individualsClinical recommendationsAdmission assessmentGroup 1Functional assessmentEqual groupsTherapy assessmentIndividual mental healthPsychometric scoresDepressionSuccess rateAdultsAdmissionQualtrics link
2021
Innovation in the treatment of persistent pain in adults with Neurofibromatosis Type 1 (NF1): Implementation of the iCanCope mobile application
Buono FD, Lalloo C, Larkin K, Zempsky WT, Ball S, Grau LE, Pham Q, Stinson J. Innovation in the treatment of persistent pain in adults with Neurofibromatosis Type 1 (NF1): Implementation of the iCanCope mobile application. Contemporary Clinical Trials Communications 2021, 25: 100883. PMID: 35036627, PMCID: PMC8743203, DOI: 10.1016/j.conctc.2021.100883.Peer-Reviewed Original ResearchNeurofibromatosis type 1Pain symptomsNF1 populationType 1Chronic pain symptomsSelf-management treatmentPersistent painTreatment satisfactionTreatment optionsControl studySix weeksPainPsychometric evaluationContingency managementInitial effectivenessGenetic disordersThird groupSymptomsAdultsTreatmentPopulationDifferent populationsGroupParticipants' experiencesGreater reach