2012
Model Program to Improve Care for a Unique Cancer Population: Young Women With Breast Cancer
Partridge AH, Ruddy KJ, Kennedy J, Winer EP. Model Program to Improve Care for a Unique Cancer Population: Young Women With Breast Cancer. JCO Oncology Practice 2012, 8: e105-e110. PMID: 23277772, PMCID: PMC3439235, DOI: 10.1200/jop.2011.000501.Peer-Reviewed Original ResearchMeSH KeywordsAdultAge FactorsBreast NeoplasmsCohort StudiesFemaleFertility PreservationHumansPatient Education as TopicProspective StudiesQuality of LifeSurveys and Questionnaires
2008
The impact of sharing results of a randomized breast cancer clinical trial with study participants
Partridge AH, Wolff AC, Marcom PK, Kaufman PA, Zhang L, Gelman R, Moore C, Lake D, Fleming GF, Rugo HS, Atkins J, Sampson E, Collyar D, Winer EP. The impact of sharing results of a randomized breast cancer clinical trial with study participants. Breast Cancer Research And Treatment 2008, 115: 123-129. PMID: 18543100, DOI: 10.1007/s10549-008-0057-7.Peer-Reviewed Original ResearchMeSH KeywordsAdultAgedAntibodies, MonoclonalAntibodies, Monoclonal, HumanizedAnxietyChemotherapy, AdjuvantClinical Trials, Phase III as TopicCommunicationData CollectionHumansMiddle AgedPatient Education as TopicPatient SatisfactionPerceptionRandomized Controlled Trials as TopicRecurrenceRegression AnalysisResearch DesignTrastuzumabConceptsCancer clinical trialsClinical trialsStudy participantsBreast cancer clinical trialsCooperative group trialsSubset of womenResults One hundredClinical trial participantsPercent of participantsRecurrent diseasePatients' perceptionsGroup trialsTrial participantsFavorable responsePsychosocial supportLogistic regressionOne hundredTrialsPatientsTrastuzumabStudy resultsParticipantsTreatmentPreliminary study resultsAnxiety
2007
Do cancer patients fully understand clinical trial participation? A pilot study to assess informed consent and patient expectations
Wray RJ, Stryker JE, Winer E, Demetri G, Emmons KM. Do cancer patients fully understand clinical trial participation? A pilot study to assess informed consent and patient expectations. Journal Of Cancer Education 2007, 22: 21. PMID: 17570804, DOI: 10.1007/bf03174370.Peer-Reviewed Original Research
2005
Understanding the decisions of cancer clinical trial participants to enter research studies: Factors associated with informed consent, patient satisfaction, and decisional regret
Stryker JE, Wray RJ, Emmons KM, Winer E, Demetri G. Understanding the decisions of cancer clinical trial participants to enter research studies: Factors associated with informed consent, patient satisfaction, and decisional regret. Patient Education And Counseling 2005, 63: 104-109. PMID: 16242898, DOI: 10.1016/j.pec.2005.09.006.Peer-Reviewed Original ResearchAdultAnalysis of VarianceClinical Trials as TopicComprehensionDecision MakingFemaleHealth Knowledge, Attitudes, PracticeHealth Services Needs and DemandHumansInformed ConsentMaleMiddle AgedNeoplasmsPatient Education as TopicPatient ParticipationPatient SatisfactionPatient SelectionResearch SubjectsSurveys and QuestionnairesTeaching MaterialsTime FactorsUnited States
2002
Pre-Counseling Education Materials for BRCA Testing: Does Tailoring Make a Difference?
Skinner CS, Schildkraut JM, Berry D, Calingaert B, Marcom PK, Sugarman J, Winer EP, Iglehart JD, Futreal PA, Rimer BK. Pre-Counseling Education Materials for BRCA Testing: Does Tailoring Make a Difference? Genetic Testing And Molecular Biomarkers 2002, 6: 93-105. PMID: 12215248, DOI: 10.1089/10906570260199348.Peer-Reviewed Original ResearchConceptsGenetic testingOvarian cancer susceptibilityTumor RegistryMean ageOvarian cancer gene BRCA1Ovarian cancerFamily historyMutation carriersBRCA testingBaseline surveyCancer susceptibilityEstimation of riskBehavioral targetsPrint materialsGreater improvementBreastFollowup surveyEducation materialsWomenGenes BRCA1Decision aidRiskBRCA1
1998
Informed Consent for BRCA1 and BRCA2 Testing
Rimer B, Sugarman J, Winer E, Bluman L, Lerman C. Informed Consent for BRCA1 and BRCA2 Testing. Breast Disease 1998, 10: 99-114. PMID: 15687553, DOI: 10.3233/bd-1998-101-212.Peer-Reviewed Original Research
1997
Genetic Testing for Susceptibility to Breast Cancer: Findings from Women's Focus Groups
Tessaro I, Borstelmann N, Regan K, Rimer B, Winer E. Genetic Testing for Susceptibility to Breast Cancer: Findings from Women's Focus Groups. Journal Of Women's Health 1997, 6: 317-327. PMID: 9201666, DOI: 10.1089/jwh.1997.6.317.Peer-Reviewed Original ResearchConceptsBreast cancerGenetic testingLoss of insuranceSupport needsPositive test resultsWomen's focus groupsFocus groupsUnaffected womenLifestyle changesMore public educationWomen's knowledgeMedical treatmentBRCA1 testingBRCA1 mutationsCancerWomenLifestyle choicesEffect of testingBalanced informationWomen's decisionsPhysiciansFamily membersFocus group discussionsSuch testingWomen's concerns