2018
A Novel Stakeholder Engagement Approach for Patient-centered Outcomes Research
Kim K, Khodyakov D, Marie K, Taras H, Meeker D, Campos H, Ohno-Machado L. A Novel Stakeholder Engagement Approach for Patient-centered Outcomes Research. Medical Care 2018, 56: s41-s47. PMID: 30074950, PMCID: PMC6143220, DOI: 10.1097/mlr.0000000000000790.Peer-Reviewed Original ResearchConceptsClinical Data Research NetworkPatient-centered outcomes researchEngagement of patientsOutcomes research studiesConditions of focusStakeholder advisory boardPatient-centered outcomes research studiesKawasaki diseaseHeart failurePatient advocatesPatientsClinical sitesOutcomes researchSignificant differencesHealth researchCliniciansResearch NetworkResearch prioritiesSetting of prioritiesEngagement strategiesAdvisory BoardFavorable opinionObesityEngagement principlesDisease
2016
Comparative analysis of stakeholder experiences with an online approach to prioritizing patient-centered research topics
Khodyakov D, Grant S, Meeker D, Booth M, Pacheco-Santivanez N, Kim K. Comparative analysis of stakeholder experiences with an online approach to prioritizing patient-centered research topics. Journal Of The American Medical Informatics Association 2016, 24: 537-543. PMID: 28011596, PMCID: PMC7651951, DOI: 10.1093/jamia/ocw157.Peer-Reviewed Original ResearchConceptsStudy participationPatient/caregiver experienceKawasaki diseaseHeart failureRating roundsCaregivers' experiencesProfessional stakeholdersMultivariate modelConvenience samplePatientsDelphi panelCliniciansPerson meetingsResearch prioritizationSelf-reported willingnessLittle evidenceParticipants' experiencesStakeholder experiencesObesityDiseaseExperience index