2022
Advancing Interoperability of Patient-level Social Determinants of Health Data to Support COVID-19 Research.
Phuong J, Hong S, Palchuk M, Espinoza J, Meeker D, Dorr D, Lozinski G, Madlock-Brown C, Adams W. Advancing Interoperability of Patient-level Social Determinants of Health Data to Support COVID-19 Research. AMIA Joint Summits On Translational Science Proceedings 2022, 2022: 396-405. PMID: 35854720, PMCID: PMC9285174.Peer-Reviewed Original Research
2020
Engaging heart failure patients from a clinical data research network: A survey on willingness to participate in different types of research.
Choi Y, López J, Meeker D, Ohno-Machado L, Kim K. Engaging heart failure patients from a clinical data research network: A survey on willingness to participate in different types of research. AMIA Annual Symposium Proceedings 2020, 2019: 305-312. PMID: 32308823, PMCID: PMC7153117.Peer-Reviewed Original ResearchConceptsClinical Data Research NetworkHeart failure patientsLarge cohort studyResearch participationResearch NetworkCohort studyFailure patientsOne-time surveyPatient cohortObservational studyPatient motivationWeight controlSignificant associationClinical researchPatientsPrecision medicineHealth dataRecruitment effortsNational effortsActivity interestsSurgeryCohort
2018
Perfectly Secure and Efficient Two-Party Electronic-Health-Record Linkage
Chen F, Jiang X, Wang S, Schilling L, Meeker D, Ong T, Matheny M, Doctor J, Ohno-Machado L, Vaidya J. Perfectly Secure and Efficient Two-Party Electronic-Health-Record Linkage. IEEE Internet Computing 2018, 22: 32-41. PMID: 29867290, PMCID: PMC5983039, DOI: 10.1109/mic.2018.112102542.Peer-Reviewed Original ResearchPrivacy-preserving record linkagePrivacy/security concernsRecord linkage solutionsApproximate matching mechanismsPatient health dataSecurity concernsMatching mechanismLinkage solutionsHealth recordsHealth dataRecord linkageSecureSharingFirst stepPersonalized careEfficientPortable methodHealth record linkageAccessPrecision medicineData
2016
A Harmonized Data Quality Assessment Terminology and Framework for the Secondary Use of Electronic Health Record Data
Kahn M, Callahan T, Barnard J, Bauck A, Brown J, Davidson B, Estiri H, Goerg C, Holve E, Johnson S, Liaw S, Hamilton-Lopez M, Meeker D, Ong T, Ryan P, Shang N, Weiskopf N, Weng C, Zozus M, Schilling L. A Harmonized Data Quality Assessment Terminology and Framework for the Secondary Use of Electronic Health Record Data. Healthcare 2016, 4: 1244. PMID: 27713905, PMCID: PMC5051581, DOI: 10.13063/2327-9214.1244.Peer-Reviewed Original ResearchDQ assessmentEHR dataElectronic health record dataHealth record dataData quality assessmentElectronic health dataOperational analyticsData ownersAnalytics expertsData producersDQ issuesSet of termsSecondary useLogical frameworkOrganizational dataIterative refinementDQ frameworkHealth dataRecord dataInitial setUsersCommon approachFrameworkFuture workCommon understanding