2024
Arrhythmia Research at a Tipping Point: The Need for Disruptive Science and Technology
Wang P, Fishman G, Eckhardt L, Wu J, Delmar M, Chung M, Patton K, Russo A, Albert C, Narayan S. Arrhythmia Research at a Tipping Point: The Need for Disruptive Science and Technology. Circulation Arrhythmia And Electrophysiology 2024, 17: e012720. PMID: 39034923, DOI: 10.1161/circep.123.012720.Peer-Reviewed Original ResearchWho are we missing? Language exclusivity of patient‐reported outcomes in atrial fibrillation clinical trials
Lan R, Guerrero E, Lewis E, Wang P. Who are we missing? Language exclusivity of patient‐reported outcomes in atrial fibrillation clinical trials. Journal Of Cardiovascular Electrophysiology 2024, 35: 1871-1873. PMID: 38953220, DOI: 10.1111/jce.16360.Peer-Reviewed Original ResearchPatient-reported outcomesClinical trialsAF trialAtrial fibrillationAF clinical trialsAsian languagesOriginal languageLinguistic accessMultiple languagesLanguageSecondary endpointsEvaluate quality of lifeEnglishQuality-of-lifeTranslationPrimary outcomeIdentified trialsSecondary outcomesTen trialsQuality of lifeClinical assessmentPRO useTrialsLanguage exclusionDiversity in Atrial Fibrillation Trials: Assessing the Role of Language Proficiency as a Recruitment Barrier
Lan R, Guerrero E, Shen S, Qin F, Ritter V, Brown-Johnson C, Clark K, Rose E, Lewis E, Wang P. Diversity in Atrial Fibrillation Trials: Assessing the Role of Language Proficiency as a Recruitment Barrier. Heart Rhythm 2024 PMID: 38777255, DOI: 10.1016/j.hrthm.2024.05.034.Peer-Reviewed Original Research
2023
Arrhythmias including atrial fibrillation and congenital heart disease in Kleefstra syndrome: a possible epigenetic link
Vasireddi S, Draksler T, Bouman A, Kummeling J, Wheeler M, Reuter C, Srivastava S, Harris J, Fisher P, Narayan S, Wang P, Badhwar N, Kleefstra T, Perez M. Arrhythmias including atrial fibrillation and congenital heart disease in Kleefstra syndrome: a possible epigenetic link. EP Europace 2023, 26: euae003. PMID: 38195854, PMCID: PMC10803030, DOI: 10.1093/europace/euae003.Peer-Reviewed Original ResearchCongenital heart diseaseStructural heart diseaseAtrial tachyarrhythmiasHeart diseaseKS patientsSupraventricular tachycardiaNon-sustained ventricular tachycardiaKleefstra syndromeNovel case seriesPrevalence of arrhythmiasEctopic atrial tachycardiaHealth record reviewRadboud University Medical CenterUniversity Medical CenterHaploinsufficiency of EHMT1Rare genetic disorderValvular diseaseCase seriesCHD subtypesRecord reviewAtrial fibrillationAtrial tachycardiaSeptal defectVascular malformationsVentricular tachycardiaDisabilities Reporting in Cardiac Clinical Trials: How Are We Doing?
Lan R, Rice E, Nunes J, Shah R, Igwe J, Clark K, Periyakoil V, Chen J, Lin B, Awad C, Idris M, Cruz E, Lewis E, Johnson C, Wang P. Disabilities Reporting in Cardiac Clinical Trials: How Are We Doing? Journal Of The American Heart Association 2023, 12: e029726. PMID: 37949834, PMCID: PMC10727282, DOI: 10.1161/jaha.123.029726.Peer-Reviewed Original ResearchWho Are We Missing? Reporting of Transgender and Gender‐Expansive Populations in Clinical Trials
Rice E, Lan R, Nunes J, Shah R, Clark K, Periyakoil V, Chen J, Lin B, Echols M, Awad C, Idris M, Cruz E, Poullos P, Lewis E, Brown-Johnson C, Igwe J, Shen S, Palaniappan L, Stefanick M, Ritter V, Pemu P, Rodriguez F, Deb B, Pundi K, Wang P. Who Are We Missing? Reporting of Transgender and Gender‐Expansive Populations in Clinical Trials. Journal Of The American Heart Association 2023, 12: e030209. PMID: 37947088, PMCID: PMC10727288, DOI: 10.1161/jaha.123.030209.Peer-Reviewed Original ResearchDISABILITIES REPORTING IN CLINICAL TRIALS. HOW ARE WE DOING?
Lan R, Rice E, Nunes J, Shah R, Joseph I, Echols M, Lunn M, Bryant L, Lewis E, Awad C, Idris M, Clark K, Periyakoil V, Cruz E, Chen J, Brown-Johnson C, Palaniappan L, Wang P. DISABILITIES REPORTING IN CLINICAL TRIALS. HOW ARE WE DOING? Journal Of The American College Of Cardiology 2023, 81: 172. DOI: 10.1016/s0735-1097(23)00616-2.Peer-Reviewed Original ResearchWHO ARE WE MISSING? REPORTING OF TRANSGENDER AND GENDER EXPANSIVE POPULATIONS IN CLINICAL TRIALS
Rice E, Lan R, Nunes J, Shah R, Echols M, Lunn M, Bryant L, Lewis E, Awad C, Idris M, Clark K, Periyakoil V, Cruz E, Chen J, Brown-Johnson C, Palaniappan L, Wang P. WHO ARE WE MISSING? REPORTING OF TRANSGENDER AND GENDER EXPANSIVE POPULATIONS IN CLINICAL TRIALS. Journal Of The American College Of Cardiology 2023, 81: 119. DOI: 10.1016/s0735-1097(23)00563-6.Peer-Reviewed Original ResearchA Randomized Clinical Trial to Evaluate an Atrial Fibrillation Stroke Prevention Shared Decision‐Making Pathway
Wang P, Lu Y, Mahaffey K, Lin A, Morin D, Sears S, Chung M, Russo A, Lin B, Piccini J, Hills M, Berube C, Pundi K, Baykaner T, Garay G, Lhamo K, Rice E, Pourshams I, Shah R, Newswanger P, DeSutter K, Nunes J, Albert M, Schulman K, Heidenreich P, Bunch T, Sanders L, Turakhia M, Verghese A, Stafford R. A Randomized Clinical Trial to Evaluate an Atrial Fibrillation Stroke Prevention Shared Decision‐Making Pathway. Journal Of The American Heart Association 2023, 12: e028562. PMID: 36342828, PMCID: PMC9973612, DOI: 10.1161/jaha.122.028562.Peer-Reviewed Original ResearchConceptsDecision Conflict ScaleDecision Regret ScaleDecisional conflictUsual careRegret ScaleConflict ScaleMedian scorePatient-centered designHealth communication principlesPatient decisional conflictComparative effectiveness trialAtrial fibrillationDigital decision aidDecision-making pathwaysClinically meaningful reductionsPatient-clinicianEffectiveness trialDecision aidRandomized clinical trialsSecondary outcomesSecondary end pointsCareStudy populationMeaningful reductionsParticipants