2011
Parents' Roles in Decision Making for Children With Cancer in the First Year of Cancer Treatment
Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Parents' Roles in Decision Making for Children With Cancer in the First Year of Cancer Treatment. Journal Of Clinical Oncology 2011, 29: 2085-2090. PMID: 21464400, DOI: 10.1200/jco.2010.32.0507.Peer-Reviewed Original ResearchConceptsParents' preferred roleParents of childrenChild's physicianPhysician communicationPreferred roleMost parentsDana-Farber Cancer InstituteCancer treatmentFirst yearCross-sectional surveyChildren's HospitalPhysician judgmentPhysicians' perceptionsCancer InstitutePhysiciansCancerChildrenHospitalTreatmentPassive roleYearsActual roleMore passive rolesParentsRole
2009
Peace of Mind and Sense of Purpose as Core Existential Issues Among Parents of Children With Cancer
Mack JW, Wolfe J, Cook EF, Grier HE, Cleary PD, Weeks JC. Peace of Mind and Sense of Purpose as Core Existential Issues Among Parents of Children With Cancer. JAMA Pediatrics 2009, 163: 519-524. PMID: 19487607, DOI: 10.1001/archpediatrics.2009.57.Peer-Reviewed Original ResearchMeSH KeywordsAdaptation, PsychologicalAdolescentBostonChildChild, PreschoolCommunicationCross-Sectional StudiesCultureData CollectionExistentialismHospitals, PediatricHumansInfantMotivationNeoplasmsParentsPersonality InventoryProfessional-Family RelationsPrognosisPsychometricsQuality of LifeSpiritualityTrustConceptsChronic Illness Therapy-Spiritual WellParents of childrenPrognostic informationFunctional assessmentDana-Farber Cancer InstituteMultivariable logistic regression modelCross-sectional surveyDetailed prognostic informationLogistic regression modelsOncologist judgmentChildren's HospitalMAIN OUTCOMECancer InstituteCancerCancer treatmentPeace of mindOncologistsHospitalScoresChildrenFirst yearHigh peaceRegression modelsMedical informationSubscale responses
2007
Quality of Health Care for Children: Role of Health and Chronic Illness in Inpatient Care Experiences
Mack JW, Co JP, Goldmann DA, Weeks JC, Cleary PD. Quality of Health Care for Children: Role of Health and Chronic Illness in Inpatient Care Experiences. JAMA Pediatrics 2007, 161: 828-834. PMID: 17768281, DOI: 10.1001/archpedi.161.9.828.Peer-Reviewed Original ResearchConceptsChronic conditionsParents of childrenInpatient careHealth statusPoor healthHealth careQuality of careInpatient care experiencePercent of parentsCare-related problemsHealth care interactionsCare ratingsChronic illnessMultivariable modelRole of healthInpatient SurveyCare problemsCare experiencesLow qualityCare interactionsWorse healthGood healthCareSuch childrenChildrenHope and prognostic disclosure
Mack J, Cook E, Wolfe J, Grier H, Cleary P, Weeks J. Hope and prognostic disclosure. Journal Of Clinical Oncology 2007, 25: 6510-6510. DOI: 10.1200/jco.2007.25.18_suppl.6510.Peer-Reviewed Original ResearchPrognostic informationPrognostic disclosureParents of childrenPhysician communicationDana-Farber Cancer InstituteDisclosure of prognosisAdditional prognostic informationChildren's likelihoodChildren's HospitalChild's physicianMultivariable modelCancer InstituteChild's prognosisParent recallPrognosisPhysiciansCancer treatmentSignificant financial relationshipParental reportsFive-item indexHospitalCancerFirst yearCureChildren
2006
Communication About Prognosis Between Parents and Physicians of Children With Cancer: Parent Preferences and the Impact of Prognostic Information
Mack JW, Wolfe J, Grier HE, Cleary PD, Weeks JC. Communication About Prognosis Between Parents and Physicians of Children With Cancer: Parent Preferences and the Impact of Prognostic Information. Journal Of Clinical Oncology 2006, 24: 5265-5270. PMID: 17114660, DOI: 10.1200/jco.2006.06.5326.Peer-Reviewed Original ResearchConceptsPrognostic informationDana-Farber Cancer InstitutePhysicians of childrenMain outcome measuresParents' preferencesChildren's HospitalMajority of parentsParents of childrenChild's physicianOutcome measuresCancer InstitutePrognosisPhysiciansLoss of hopeCancerChildrenHospitalParents' senseParent ratingsParents' desireParentsPatientsUnderstanding of prognosis among parents of children with cancer: Parental optimism and the role of the parent-physician interaction
Mack J, Cook E, Wolfe J, Grier H, Cleary P, Weeks J. Understanding of prognosis among parents of children with cancer: Parental optimism and the role of the parent-physician interaction. Journal Of Clinical Oncology 2006, 24: 6033-6033. DOI: 10.1200/jco.2006.24.18_suppl.6033.Peer-Reviewed Original ResearchParents of childrenChild's physicianPhysicians' perceptionsDana-Farber Cancer InstituteMain outcome measuresUnderstanding of prognosisCross-sectional surveyChildren's HospitalMajority of parentsPhysician ratingsOutcome measuresCancer InstituteChild's prognosisPrognosisCancerPhysiciansPrognostic estimatesSignificant financial relationshipParents' confidenceCureMost parentsHospitalChildren's likelihoodChildrenChildren's chances
1999
The Consumer Assessment of Health Plan Study (CAHPS) Survey of Children’s Health Care
Homer C, Fowler F, Gallagher P, Shaul J, Uyeda M, Zaslavsky A, Wilson V, Cleary P. The Consumer Assessment of Health Plan Study (CAHPS) Survey of Children’s Health Care. The Joint Commission Journal On Quality And Patient Safety 1999, 25: 369-377. PMID: 10412084, DOI: 10.1016/s1070-3241(16)30452-7.Peer-Reviewed Original ResearchConceptsChild health careOverall carePersonal doctorHealth careHealth Plans Study (CAHPS) surveyConsumer AssessmentHealth care servicesHealth care plansMedical care qualityQuality improvement effortsSpecialty carePediatric careCare plansCare servicesAspects of accessCare qualityInterpersonal careCognitive testingCareImprovement initiativesCore surveyChildrenStrongest correlateNeeds of childrenDoctorsThe Impact of Having Parents Report About Both Their Own and Their Children's Experiences With Health Insurance Plans
Shaul J, Fowler F, Zaslavsky A, Homer C, Gallagher P, Cleary P. The Impact of Having Parents Report About Both Their Own and Their Children's Experiences With Health Insurance Plans. Medical Care 1999, 37: ms59-ms68. PMID: 10098560, DOI: 10.1097/00005650-199903001-00007.Peer-Reviewed Original ResearchMeSH KeywordsAdultChildChild Health ServicesConsumer BehaviorCost-Benefit AnalysisData CollectionFemaleFollow-Up StudiesHealth Benefit Plans, EmployeeHealth Care SurveysHumansMaleParentsPilot ProjectsQuality of Health CareReproducibility of ResultsSurveys and QuestionnairesTime FactorsUnited StatesUnited States Agency for Healthcare Research and QualityWashingtonConceptsHealth care experiencesLow response rateOwn careResponse rateChild health careChildren surveyHealth insurance plansStudy groupCare experiencesPattern of responseHealth plansTelephone interviewsCareHealth careLatter groupInsurance plansAdultsSurvey questionsWeak associationParent reportPositive responseSurvey administrationChildrenAssociationChild care