2024
Cognitive Motor Dissociation in Disorders of Consciousness
Bodien Y, Allanson J, Cardone P, Bonhomme A, Carmona J, Chatelle C, Chennu S, Conte M, Dehaene S, Finoia P, Heinonen G, Hersh J, Kamau E, Lawrence P, Lupson V, Meydan A, Rohaut B, Sanders W, Sitt J, Soddu A, Valente M, Velazquez A, Voss H, Vrosgou A, Claassen J, Edlow B, Fins J, Gosseries O, Laureys S, Menon D, Naccache L, Owen A, Pickard J, Stamatakis E, Thibaut A, Victor J, Giacino J, Bagiella E, Schiff N. Cognitive Motor Dissociation in Disorders of Consciousness. New England Journal Of Medicine 2024, 391: 598-608. PMID: 39141852, DOI: 10.1056/nejmoa2400645.Peer-Reviewed Original ResearchConceptsFunctional magnetic resonance imagingTask-based fMRICognitive motor dissociationDisorders of consciousnessComa Recovery Scale-RevisedCognitive tasksMotor dissociationObserved responseBrain injuryVerbal commandsBrain traumaScale-RevisedMagnetic resonance imagingDisordersBrainParticipantsEtiological factorsAssociated with younger ageElectroencephalographyCohort of personsResonance imagingProspective cohort studyTaskElectroencephalography dataMedian ageNeuroethics, Covert Consciousness, and Disability Rights: What Happens When Artificial Intelligence Meets Cognitive Motor Dissociation?
Fins J, Shulman K. Neuroethics, Covert Consciousness, and Disability Rights: What Happens When Artificial Intelligence Meets Cognitive Motor Dissociation? Journal Of Cognitive Neuroscience 2024, 36: 1667-1674. PMID: 38579252, DOI: 10.1162/jocn_a_02157.Peer-Reviewed Original ResearchConceptsCognitive motor dissociationCovert consciousnessBrain injuryRight-to-die movementOvert behaviorEEG studiesCognitive activityMotor dissociationSevere brain injuryNormative challengesModes of assessmentDisability biasClinical practiceNormative reasonsGenerate speechEthical challengesArtificial intelligenceAlphabet soupAnticipatory governanceTranslational researchBrain injury, medical progress, and the disability paradox: Towards an Americans with Abilities Act
Fins J, Shulman K, Wright M, Shapiro Z. Brain injury, medical progress, and the disability paradox: Towards an Americans with Abilities Act. Neurorehabilitation 2024, 54: 141-147. PMID: 38217618, DOI: 10.3233/nre-230118.Peer-Reviewed Original ResearchConceptsDisability lawLegal protection of patientsInterface of medicineProtection of patientsAmerican jurisprudenceConstitutional protectionLegal protectionLawConstitutive elementsNewfound abilityMedical progressProtectionJurisprudenceLegislationBrain injuryAmericanModerate to severe brain injuryDisabilityParadoxBrain injury professionalsProfessionalsADASevere brain injuryBrainIdentity Theft, Deep Brain Stimulation, and the Primacy of Post‐trial Obligations
Fins J, Merner A, Wright M, Lázaro-Muñoz G. Identity Theft, Deep Brain Stimulation, and the Primacy of Post‐trial Obligations. The Hastings Center Report 2024, 54: 34-41. PMID: 38390681, PMCID: PMC11022755, DOI: 10.1002/hast.1567.Peer-Reviewed Original Research
2023
The Scholarly and Pedagogical Benefits of the Legal Laboratory: Lessons from the Consortium for the Advanced Study of Brain Injury at Yale Law School.
Shapiro Z, Deb C, Lawrence C, Golden A, Wright M, Kraschel K, Fins J. The Scholarly and Pedagogical Benefits of the Legal Laboratory: Lessons from the Consortium for the Advanced Study of Brain Injury at Yale Law School. The Journal Of Law, Medicine & Ethics 2023, 51: 672-683. PMID: 38088597, DOI: 10.1017/jme.2023.126.Peer-Reviewed Original ResearchThalamic deep brain stimulation in traumatic brain injury: a phase 1, randomized feasibility study
Schiff N, Giacino J, Butson C, Choi E, Baker J, O’Sullivan K, Janson A, Bergin M, Bronte-Stewart H, Chua J, DeGeorge L, Dikmen S, Fogarty A, Gerber L, Krel M, Maldonado J, Radovan M, Shah S, Su J, Temkin N, Tourdias T, Victor J, Waters A, Kolakowsky-Hayner S, Fins J, Machado A, Rutt B, Henderson J. Thalamic deep brain stimulation in traumatic brain injury: a phase 1, randomized feasibility study. Nature Medicine 2023, 29: 3162-3174. PMID: 38049620, PMCID: PMC11087147, DOI: 10.1038/s41591-023-02638-4.Peer-Reviewed Original ResearchConceptsTraumatic brain injuryDeep brain stimulationExecutive controlProcessing speedBrain stimulationImprove executive controlCentral lateral (CL) nucleusTrail-Making TestChronic phase of recoveryBrain injuryYears post-injuryFrontostriatal networkEfficacy of deep brain stimulationExecutive functionConverging evidenceLimit quality of lifeEfficacy measuresMsTBIPhase of recoveryPost-injuryRandomized feasibility studyThalamic deep brain stimulationQuality of lifeParticipantsProtocol non-complianceHealth as a Human Right: A Position Paper From the American College of Physicians.
DeCamp M, Snyder Sulmasy L, Opole I, Callister T, Bornstein S, Bruera E, Carney J, Collamer A, Esbensen K, Fins J, Fuson O, Holbrook A, Jung D, Mire R, Prager K, Wallace E. Health as a Human Right: A Position Paper From the American College of Physicians. Annals Of Internal Medicine 2023, 176: 1516-1519. PMID: 37903364, DOI: 10.7326/m23-1900.Peer-Reviewed Original ResearchConceptsAmerican College of PhysiciansHuman rightsEthical obligationHealth careCollege of PhysiciansMatter of rightAmerican CollegeRelationship of healthNature of healthPatient-physician relationshipIntrinsic dignityPromote equitable accessHealth systemRightsIndividual physiciansObligationsCareEquitable accessHealthPhysiciansUnited StatesSocietyDignityAmericanPosition paperBaseball and Bioethics Revisited: The Pitch Clock and Age Discrimination in a Timeless Pastime.
Fins J. Baseball and Bioethics Revisited: The Pitch Clock and Age Discrimination in a Timeless Pastime. Cambridge Quarterly Of Healthcare Ethics 2023, 33: 267-270. PMID: 37767653, DOI: 10.1017/s096318012300049x.Peer-Reviewed Original ResearchStandards and Ethics Issues in the Determination of Death: A Position Paper From the American College of Physicians.
DeCamp M, Prager K, Opole I, Deep N, Callister T, Abraham G, Bornstein S, Bruera E, Burnett J, Carney J, Collamer A, Cooney T, Esbensen K, Fins J, Fuson O, Harp T, Holbrook A, Huddle T, Jung D, Levine M, Mire R, Prager K, Wallace E. Standards and Ethics Issues in the Determination of Death: A Position Paper From the American College of Physicians. Annals Of Internal Medicine 2023, 176: 1245-1250. PMID: 37665984, DOI: 10.7326/m23-1361.Peer-Reviewed Original ResearchConceptsDetermination of deathUniform Determination of Death ActDead donor ruleEthical significanceAmerican College of Physicians position paperEthical issuesPatient-physician relationshipUniform DeterminationAmerican College of PhysiciansAmerican CollegeCollege of PhysiciansBiological conceptsHealth professionalsEducational effortsSocial implicationsPosition paperMedical testsPatient deathProfessionPhysiciansHonestyIndividual patientsCommitmentAmericanControversiesMinding Brain Injury, Consciousness, and Ethics: Discourse and Deliberations.
Fins J, Giordano J. Minding Brain Injury, Consciousness, and Ethics: Discourse and Deliberations. Kennedy Institute Of Ethics Journal 2023, 33: 227-248. PMID: 38588134, DOI: 10.1353/ken.2023.a917928.Peer-Reviewed Original ResearchToward a Social Bioethics Through Interpretivism: A Framework for Healthcare Ethics.
Dougherty R, Fins J. Toward a Social Bioethics Through Interpretivism: A Framework for Healthcare Ethics. Cambridge Quarterly Of Healthcare Ethics 2023, 33: 6-16. PMID: 37622652, DOI: 10.1017/s0963180123000452.Peer-Reviewed Original ResearchConceptsHealthcare ethicsSocial bioethicsHealthcare ethics consultantsReasoning of individualsInterpretive social scienceSocial structureEthics consultationMoral reasoningBioethical issuesEthical issuesDecision-making participationBioethicsEthicsSocial sciencesSocial discourseEconomic systemAnalytical frameworkGlobal eventsInformation approachPervasive roleDelivery of healthcareEveryday practiceInterpretivismAuthorsSociologyA Descriptive Analysis of Access to Assistive Technology in Children With Acquired Brain Injury: The Right to Assistive Devices
Fins J, Knitter J, Mukherjee D, Conti K, Donleavy-Hiller B, Gerber L, Hersh J, Kotorac-Erlbaum R, Milch B, Klein S. A Descriptive Analysis of Access to Assistive Technology in Children With Acquired Brain Injury: The Right to Assistive Devices. Journal Of Head Trauma Rehabilitation 2023, 39: 152-159. PMID: 37492972, PMCID: PMC10811270, DOI: 10.1097/htr.0000000000000876.Peer-Reviewed Original ResearchConceptsSkilled nursing facilityMedical recordsAcquired Brain InjuryHospital outpatient departmentsModerate to severe brain injuryBrain injuryTime to deliveryPotential adverse implicationsAssistive technologyNursing facilitiesSelf-carePediatric cliniciansFostering social integrationImprove mobilityInsurance coverageOutpatient departmentRetrospective chart review of patientsChart review of patientsRetrospective chart reviewAssessment delayInpatient statusVulnerable childrenDescriptive analysisMedical statusLongitudinal trackingCognitive Motor Dissociation: Gap Analysis and Future Directions
Claassen J, Kondziella D, Alkhachroum A, Diringer M, Edlow B, Fins J, Gosseries O, Hannawi Y, Rohaut B, Schnakers C, Stevens R, Thibaut A, Monti M. Cognitive Motor Dissociation: Gap Analysis and Future Directions. Neurocritical Care 2023, 40: 81-98. PMID: 37349602, DOI: 10.1007/s12028-023-01769-3.Peer-Reviewed Original ResearchConceptsMethodsThe Neurocritical Care SocietyCognitive motor dissociationNeurocritical Care SocietyDisorders of consciousnessCare SocietyFunctional magnetic resonance imagingHealth care personnelEducational gapPotential prognostic relevanceCaregiver accountsManagement of patientsIdentification of patientsPatient experienceCare personnelInternational group of expertsUnmet needsMagnetic resonance imagingPrognostic significanceKnowledge gapsMethodological variablesTreatment trialsEpidemiological dataGroup of expertsClinical practiceLarge-scale implementationPhysician attitudes about disorders of consciousness: Good facts make for good ethics
Fins J. Physician attitudes about disorders of consciousness: Good facts make for good ethics. Developmental Medicine & Child Neurology 2023, 65: 1549-1550. PMID: 37058590, PMCID: PMC10576007, DOI: 10.1111/dmcn.15619.Peer-Reviewed Original ResearchEthics Along the Continuum of Research Involving Persons with Disorders of Consciousness
Lewis A, Young M, Rohaut B, Jox R, Claassen J, Creutzfeldt C, Illes J, Kirschen M, Trevick S, Fins J. Ethics Along the Continuum of Research Involving Persons with Disorders of Consciousness. Neurocritical Care 2023, 39: 565-577. PMID: 36977963, PMCID: PMC11023737, DOI: 10.1007/s12028-023-01708-2.Peer-Reviewed Original ResearchConceptsTranslation of researchDisclosure of resultsDisorders of consciousnessContinuum of researchEthical considerationsNeuropalliative careEthics Working GroupInterpretation of outcomesLegally authorized representativeCommunication of resultsComparison of risksStudy designCarePromote recoveryInvolved personsInclusion of minoritiesExclusion criteriaNeurocritical careWorking GroupPersonsInformal reviewOutcomesAwarenessParticipation rightsData protectionDaniel Callahan's Decade of Doubt.
Shulman K, Fins J. Daniel Callahan's Decade of Doubt. Perspectives In Biology And Medicine 2023, 66: 249-266. PMID: 37755715, DOI: 10.1353/pbm.2023.0022.Peer-Reviewed Original ResearchConceptsDaniel CallahanFabric of American lifeAmerican civic lifeReligious perspectiveCatholic journalistsHastings CenterPublic lifeContemporary worldCallahanRelevant todayAmerican lifeCivic lifeWomen's rightsDanielPolitical discourseFaithHalf-centurySecularismReligionThinkersBioethicsLifeMisgivingsDialogueScholarshipEthical consultancy. Towards an applicable and sustainable Spanish model
Altisent R, Fins J. Ethical consultancy. Towards an applicable and sustainable Spanish model. Revista Clínica Española (English Edition) 2023, 223: 58-59. PMID: 36635024, DOI: 10.1016/j.rceng.2022.11.002.Peer-Reviewed Original Research
2022
Brain Device Research and the Underappreciated Role of Care Partners before, during, and Post-Trial
Merner A, Fins J, Lázaro-Muñoz G. Brain Device Research and the Underappreciated Role of Care Partners before, during, and Post-Trial. AJOB Neuroscience 2022, 13: 236-239. PMID: 36272159, PMCID: PMC9639607, DOI: 10.1080/21507740.2022.2126548.Peer-Reviewed Original ResearchSubject and Family Perspectives from the Central Thalamic Deep Brain Stimulation for Traumatic Brain Injury Study: Part I
Fins J, Wright M, Henderson J, Schiff N. Subject and Family Perspectives from the Central Thalamic Deep Brain Stimulation for Traumatic Brain Injury Study: Part I. Cambridge Quarterly Of Healthcare Ethics 2022, 31: 419-443. PMID: 36398511, DOI: 10.1017/s0963180122000226.Peer-Reviewed Original ResearchConceptsCentral thalamic deep brain stimulationVoluntary informed consentTraumatic brain injuryDecision-making authorityBrain injuryDeep brain stimulationTherapeutic misconceptionCognitive restorationBrain stimulationAgency of subjectsInformed consentSevere traumatic brain injuryTraumatic brain injury studiesThalamic deep brain stimulationConsentTreatment of traumatic brain injuryEnrollment decisionsBrain injury studiesFamily perspectiveInterpersonal interactionsDecisionCognitive disabilitiesStudy enrollmentReturn to workSocial structurePOINT: Does Normothermic Regional Perfusion Violate the Ethical Principles Underlying Organ Procurement? Yes
DeCamp M, Snyder Sulmasy L, Fins J. POINT: Does Normothermic Regional Perfusion Violate the Ethical Principles Underlying Organ Procurement? Yes. CHEST Journal 2022, 162: 288-290. PMID: 35940651, DOI: 10.1016/j.chest.2022.03.012.Peer-Reviewed Original Research