2024
Neuroethics, Covert Consciousness, and Disability Rights: What Happens When Artificial Intelligence Meets Cognitive Motor Dissociation?
Fins J, Shulman K. Neuroethics, Covert Consciousness, and Disability Rights: What Happens When Artificial Intelligence Meets Cognitive Motor Dissociation? Journal Of Cognitive Neuroscience 2024, 36: 1667-1674. PMID: 38579252, DOI: 10.1162/jocn_a_02157.Peer-Reviewed Original ResearchConceptsCognitive motor dissociationCovert consciousnessBrain injuryRight-to-die movementOvert behaviorEEG studiesCognitive activityMotor dissociationSevere brain injuryNormative challengesModes of assessmentDisability biasClinical practiceNormative reasonsGenerate speechEthical challengesArtificial intelligenceAlphabet soupAnticipatory governanceTranslational researchBrain injury, medical progress, and the disability paradox: Towards an Americans with Abilities Act
Fins J, Shulman K, Wright M, Shapiro Z. Brain injury, medical progress, and the disability paradox: Towards an Americans with Abilities Act. Neurorehabilitation 2024, 54: 141-147. PMID: 38217618, DOI: 10.3233/nre-230118.Peer-Reviewed Original ResearchConceptsDisability lawLegal protection of patientsInterface of medicineProtection of patientsAmerican jurisprudenceConstitutional protectionLegal protectionLawConstitutive elementsNewfound abilityMedical progressProtectionJurisprudenceLegislationBrain injuryAmericanModerate to severe brain injuryDisabilityParadoxBrain injury professionalsProfessionalsADASevere brain injuryBrain
2023
A Descriptive Analysis of Access to Assistive Technology in Children With Acquired Brain Injury: The Right to Assistive Devices
Fins J, Knitter J, Mukherjee D, Conti K, Donleavy-Hiller B, Gerber L, Hersh J, Kotorac-Erlbaum R, Milch B, Klein S. A Descriptive Analysis of Access to Assistive Technology in Children With Acquired Brain Injury: The Right to Assistive Devices. Journal Of Head Trauma Rehabilitation 2023, 39: 152-159. PMID: 37492972, PMCID: PMC10811270, DOI: 10.1097/htr.0000000000000876.Peer-Reviewed Original ResearchMeSH KeywordsBrain InjuriesChildDisabled PersonsHumansRetrospective StudiesSelf CareSelf-Help DevicesConceptsSkilled nursing facilityMedical recordsAcquired Brain InjuryHospital outpatient departmentsModerate to severe brain injuryBrain injuryTime to deliveryPotential adverse implicationsAssistive technologyNursing facilitiesSelf-carePediatric cliniciansFostering social integrationImprove mobilityInsurance coverageOutpatient departmentRetrospective chart review of patientsChart review of patientsRetrospective chart reviewAssessment delayInpatient statusVulnerable childrenDescriptive analysisMedical statusLongitudinal tracking
2020
Disorders of Consciousness and Disability Law
Fins J, Wright M, Bagenstos S. Disorders of Consciousness and Disability Law. Mayo Clinic Proceedings 2020, 95: 1732-1739. PMID: 32753147, DOI: 10.1016/j.mayocp.2020.02.008.Peer-Reviewed Original ResearchConceptsAmerican Congress of Rehabilitation MedicineNational Institute on DisabilityMulti-Society Task Force ReportMinimally conscious stateUndertreatment of painDisorders of consciousnessRehabilitation of patientsSystematic evidence-based reviewDisability lawAmerican Academy of NeurologyChronic careEvidence-based reviewRehabilitation researchInadequate rehabilitationRehabilitation medicineMedical careNational guidelinesTask Force ReportAmerican CongressNew England JournalPractice guidelinesMedical mainstreamIndependent livingCareInternational disability lawThe Neglect of Persons with Severe Brain Injury in the United States: An International Human Rights Analysis.
Ezer T, Wright M, Fins J. The Neglect of Persons with Severe Brain Injury in the United States: An International Human Rights Analysis. Health And Human Rights 2020, 22: 265-278. PMID: 32669806, PMCID: PMC7348445.Peer-Reviewed Original ResearchMeSH KeywordsBrain InjuriesDisabled PersonsHealth Services AccessibilityHuman RightsHumansQuality of LifeUnited StatesConceptsHuman rights analysisFreedom of expressionBlock to treatmentUnited StatesRights analysisLife of personsExperiences of personsTraumatic incidentsQuality of life of personsPersonsScientific progressNeglectMedical advancesBrain injuryInadequate accessLawViolationStateSignificant medical advancesFreedomEqualityInstitutionalizationUnitsInternationalPolicyDisability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care
Guidry-Grimes L, Savin K, Stramondo J, Reynolds J, Tsaplina M, Burke T, Ballantyne A, Kittay E, Stahl D, Scully J, Garland-Thomson R, Tarzian A, Dorfman D, Fins J. Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care. The Hastings Center Report 2020, 50: 28-32. PMID: 32596899, DOI: 10.1002/hast.1128.Peer-Reviewed Original ResearchConceptsCrisis standards of careDisability justiceCrisis standardsInclusion of disabled peopleJusticeRecognition justiceStandard of careEquitable processDisabled peopleDecision-makingInstitute of MedicineMovement demandsCrisisHealth careLawVision statementsProvider engagementFairnessCareCOVID-19InterestCrisis planningCommitmentDisaster situationsDisability
2019
Disorders of Consciousness, Past, Present, and Future
Fins J. Disorders of Consciousness, Past, Present, and Future. Cambridge Quarterly Of Healthcare Ethics 2019, 28: 603-615. PMID: 31405394, DOI: 10.1017/s0963180119000719.Peer-Reviewed Original ResearchConceptsDisorders of consciousnessLegal obligationsPersistent vegetative stateConsciousness literatureNational Institute on DisabilityCognitive motor dissociationMinimally conscious stateCounter-narrativesAmerican Academy of NeurologyVegetative stateMotor dissociationCovert consciousnessObligationsConscious stateDisordersIndependent livingStateWhen No One Notices: Disorders of Consciousness and the Chronic Vegetative State
Fins J. When No One Notices: Disorders of Consciousness and the Chronic Vegetative State. The Hastings Center Report 2019, 49: 14-17. PMID: 31429953, DOI: 10.1002/hast.1030.Peer-Reviewed Original ResearchConceptsNational Institute on DisabilityMulti-Society Task Force ReportDisorders of consciousnessAmerican Academy of NeurologyComprehensive evidence-based reviewEvidence-based reviewRehabilitation researchRehabilitation medicineVegetative stateChronic vegetative stateHealthcare facilitiesTask Force ReportPractice guidelinesIndependent livingPersistent vegetative stateAmerican CollegeAmerican AcademyMisdiagnosis of patientsLevel of consciousnessPermanent vegetative stateForce ReportDiagnostic categoriesPatientsAmericanGuidelines
2018
Rights language and disorders of consciousness: a call for advocacy
Fins J, Wright M. Rights language and disorders of consciousness: a call for advocacy. Brain Injury 2018, 32: 670-674. PMID: 29393694, DOI: 10.1080/02699052.2018.1430377.Peer-Reviewed Original ResearchConceptsCivil rightsDisability rights lawsRights of PersonsRights-based argumentsReintegration of peopleRights lawUN ConventionRights languageProvision of rehabilitationRightsSociety itselfCivil societyIntegration of peopleReintegrationSocietyMedical mainstreamCare sectorCare of peopleBrain injuryPersonsLawMaximal integrationConventionBrain injury rehabilitationDisorders of consciousness
2016
Rehabilitation, Education, and the Integration of Individuals with Severe Brain Injury into Civil Society: Towards an Expanded Rights Agenda in Response to New Insights from Translational Neuroethics and Neuroscience.
Wright M, Fins J. Rehabilitation, Education, and the Integration of Individuals with Severe Brain Injury into Civil Society: Towards an Expanded Rights Agenda in Response to New Insights from Translational Neuroethics and Neuroscience. Yale Journal Of Health Policy, Law, And Ethics 2016, 16: 233-87. PMID: 29756752.Peer-Reviewed Original Research
2005
The Afterlife of Terri Schiavo
Fins J, Schiff N. The Afterlife of Terri Schiavo. The Hastings Center Report 2005, 35: 8-8. PMID: 16225295, DOI: 10.1353/hcr.2005.0038.Peer-Reviewed Original Research