2024
Brain injury, medical progress, and the disability paradox: Towards an Americans with Abilities Act
Fins J, Shulman K, Wright M, Shapiro Z. Brain injury, medical progress, and the disability paradox: Towards an Americans with Abilities Act. Neurorehabilitation 2024, 54: 141-147. PMID: 38217618, DOI: 10.3233/nre-230118.Peer-Reviewed Original ResearchConceptsDisability lawLegal protection of patientsInterface of medicineProtection of patientsAmerican jurisprudenceConstitutional protectionLegal protectionLawConstitutive elementsNewfound abilityMedical progressProtectionJurisprudenceLegislationBrain injuryAmericanModerate to severe brain injuryDisabilityParadoxBrain injury professionalsProfessionalsADASevere brain injuryBrain
2023
Health as a Human Right: A Position Paper From the American College of Physicians.
DeCamp M, Snyder Sulmasy L, Opole I, Callister T, Bornstein S, Bruera E, Carney J, Collamer A, Esbensen K, Fins J, Fuson O, Holbrook A, Jung D, Mire R, Prager K, Wallace E. Health as a Human Right: A Position Paper From the American College of Physicians. Annals Of Internal Medicine 2023, 176: 1516-1519. PMID: 37903364, DOI: 10.7326/m23-1900.Peer-Reviewed Original ResearchConceptsAmerican College of PhysiciansHuman rightsEthical obligationHealth careCollege of PhysiciansMatter of rightAmerican CollegeRelationship of healthNature of healthPatient-physician relationshipIntrinsic dignityPromote equitable accessHealth systemRightsIndividual physiciansObligationsCareEquitable accessHealthPhysiciansUnited StatesSocietyDignityAmericanPosition paperStandards and Ethics Issues in the Determination of Death: A Position Paper From the American College of Physicians.
DeCamp M, Prager K, Opole I, Deep N, Callister T, Abraham G, Bornstein S, Bruera E, Burnett J, Carney J, Collamer A, Cooney T, Esbensen K, Fins J, Fuson O, Harp T, Holbrook A, Huddle T, Jung D, Levine M, Mire R, Prager K, Wallace E. Standards and Ethics Issues in the Determination of Death: A Position Paper From the American College of Physicians. Annals Of Internal Medicine 2023, 176: 1245-1250. PMID: 37665984, DOI: 10.7326/m23-1361.Peer-Reviewed Original ResearchConceptsDetermination of deathUniform Determination of Death ActDead donor ruleEthical significanceAmerican College of Physicians position paperEthical issuesPatient-physician relationshipUniform DeterminationAmerican College of PhysiciansAmerican CollegeCollege of PhysiciansBiological conceptsHealth professionalsEducational effortsSocial implicationsPosition paperMedical testsPatient deathProfessionPhysiciansHonestyIndividual patientsCommitmentAmericanControversies
2022
Ethical Considerations in Precision Medicine and Genetic Testing in Internal Medicine Practice: A Position Paper From the American College of Physicians.
Lehmann L, Snyder Sulmasy L, Burke W, Opole I, Deep N, Abraham G, Burnett J, Callister T, Carney J, Cooney T, Esbensen K, Fins J, Harp T, Holbrook A, Huddle T, Levine M, Prager K. Ethical Considerations in Precision Medicine and Genetic Testing in Internal Medicine Practice: A Position Paper From the American College of Physicians. Annals Of Internal Medicine 2022, 175: 1322-1323. PMID: 35878403, DOI: 10.7326/m22-0743.Peer-Reviewed Original ResearchMeSH KeywordsGenetic TestingHumansInternal MedicineInternship and ResidencyPhysiciansPrecision MedicineUnited StatesConceptsGenetic testingAmerican College of Physicians position paperAmerican College of PhysiciansAmerican CollegeImprove health outcomesHealth care professionalsInternal medicine practiceHealth care systemCollege of PhysiciansCare professionalsHealth outcomesIntegration of precision medicineCare systemPrecision medicineClinical carePracticing physiciansMedicine practiceResidency programsPosition paperClinical settingPhysiciansHealthEthical decisionsProfessional schoolsEthical considerationsHealth Equity, History, and a New Presidential Bioethics Commission: Lessons from the “Lost” Reports
Kolbe L, Fins J. Health Equity, History, and a New Presidential Bioethics Commission: Lessons from the “Lost” Reports. Journal Of General Internal Medicine 2022, 37: 3471-3474. PMID: 35882708, PMCID: PMC9321266, DOI: 10.1007/s11606-022-07733-9.Peer-Reviewed Original ResearchMeSH KeywordsAdvisory CommitteesBioethical IssuesBioethicsHealth EquityHumansPublic PolicyUnited StatesConceptsHealthcare accessHealth equityAvailability of health servicesUniversal healthcare accessEthical implicationsUS presidential administrationQuestions of justiceAmerica's HealthHealth inequalitiesProblem of racismEquitable healthHealth servicesNational bioethics commissionsPresident's Commission reportPolitical conflictPresidential administrationsBiden administrationHealthcareHealthImplications of differencesCommission reportAmerican bioethicsBioethics commissionsLost” reportsLofty visionProceedings of the Second Curing Coma Campaign NIH Symposium: Challenging the Future of Research for Coma and Disorders of Consciousness
Mainali S, Aiyagari V, Alexander S, Bodien Y, Boerwinkle V, Boly M, Brown E, Brown J, Claassen J, Edlow BL, Fink EL, Fins JJ, Foreman B, Frontera J, Geocadin RG, Giacino J, Gilmore EJ, Gosseries O, Hammond F, Helbok R, Claude Hemphill J, Hirsch K, Kim K, Laureys S, Lewis A, Ling G, Livesay SL, McCredie V, McNett M, Menon D, Molteni E, Olson D, O’Phelan K, Park S, Polizzotto L, Javier Provencio J, Puybasset L, Venkatasubba Rao CP, Robertson C, Rohaut B, Rubin M, Sharshar T, Shutter L, Sampaio Silva G, Smith W, Stevens RD, Thibaut A, Vespa P, Wagner AK, Ziai WC, Zink E, I Suarez J. Proceedings of the Second Curing Coma Campaign NIH Symposium: Challenging the Future of Research for Coma and Disorders of Consciousness. Neurocritical Care 2022, 37: 326-350. PMID: 35534661, PMCID: PMC9283342, DOI: 10.1007/s12028-022-01505-3.Peer-Reviewed Original ResearchEthics Priorities of the Curing Coma Campaign: An Empirical Survey
Lewis A, Claassen J, Illes J, Jox R, Kirschen M, Rohaut B, Trevick S, Young M, Fins J. Ethics Priorities of the Curing Coma Campaign: An Empirical Survey. Neurocritical Care 2022, 37: 12-21. PMID: 35505222, PMCID: PMC10034145, DOI: 10.1007/s12028-022-01506-2.Peer-Reviewed Original ResearchConceptsCountry of practiceClinical careEthical prioritiesClinical researchTranslation of researchDisclosure of resultsMethodsAn electronic surveyEthics Working GroupMedical futilityElectronic surveyResultsThe surveyDiagnostic definitionCareUnited StatesEthical topicsEmpirical surveyMinimally conscious stateEthicsCuring Coma CampaignGlobal initiativesConclusionsCollaborationRespondentsPrognostication of patientsWorking GroupSurvey
2020
Disorders of Consciousness and Disability Law
Fins J, Wright M, Bagenstos S. Disorders of Consciousness and Disability Law. Mayo Clinic Proceedings 2020, 95: 1732-1739. PMID: 32753147, DOI: 10.1016/j.mayocp.2020.02.008.Peer-Reviewed Original ResearchConceptsAmerican Congress of Rehabilitation MedicineNational Institute on DisabilityMulti-Society Task Force ReportMinimally conscious stateUndertreatment of painDisorders of consciousnessRehabilitation of patientsSystematic evidence-based reviewDisability lawAmerican Academy of NeurologyChronic careEvidence-based reviewRehabilitation researchInadequate rehabilitationRehabilitation medicineMedical careNational guidelinesTask Force ReportAmerican CongressNew England JournalPractice guidelinesMedical mainstreamIndependent livingCareInternational disability lawThe Neglect of Persons with Severe Brain Injury in the United States: An International Human Rights Analysis.
Ezer T, Wright M, Fins J. The Neglect of Persons with Severe Brain Injury in the United States: An International Human Rights Analysis. Health And Human Rights 2020, 22: 265-278. PMID: 32669806, PMCID: PMC7348445.Peer-Reviewed Original ResearchMeSH KeywordsBrain InjuriesDisabled PersonsHealth Services AccessibilityHuman RightsHumansQuality of LifeUnited StatesConceptsHuman rights analysisFreedom of expressionBlock to treatmentUnited StatesRights analysisLife of personsExperiences of personsTraumatic incidentsQuality of life of personsPersonsScientific progressNeglectMedical advancesBrain injuryInadequate accessLawViolationStateSignificant medical advancesFreedomEqualityInstitutionalizationUnitsInternationalPolicy
2019
North of Home: Obligations to Families of Undocumented Patients
Fins J, Real de Asúa D. North of Home: Obligations to Families of Undocumented Patients. The Hastings Center Report 2019, 49: 12-14. PMID: 30790302, DOI: 10.1002/hast.972.Peer-Reviewed Original ResearchConceptsLife-sustaining therapyWithdrawal of life-sustaining therapyIncapacitated patientsEthical concernsSocial workersDoctors' desireFurther careFamily inputState lawsUndocumented patientsIntensive care unitDoctorsCare unitMultisystem organ failureObligationsDecision-United StatesOrgan failureDesireFamily
2018
Towards a Clinical Neuroethics for Brain Injury Practice
Fins J. Towards a Clinical Neuroethics for Brain Injury Practice. Journal Of Head Trauma Rehabilitation 2018, 33: 283-284. PMID: 29975255, DOI: 10.1097/htr.0000000000000416.Peer-Reviewed Original ResearchMeaningful Use of Electronic Health Records for Quality Assessment and Review of Clinical Ethics Consultation.
Sanelli-Russo S, Folkers K, Sakolsky W, Fins J, Dubler N. Meaningful Use of Electronic Health Records for Quality Assessment and Review of Clinical Ethics Consultation. The Journal Of Clinical Ethics 2018, 29: 52-61. PMID: 29565797, DOI: 10.1086/jce2018291052.Peer-Reviewed Original ResearchConceptsElectronic health recordsHealth recordsMeaningful Use of Electronic Health RecordsChart notesEpic electronic health recordUse of electronic health recordsHealth information technologyClinical ethicsPeer reviewMeaningful UseHealth professionalsConsultation notesClinical ethics consultationInformation technologyQuality improvementGoal of standardizationEthics consultationConsultationHealthQuality assessmentPeerProfessionalsQualityNotesEvolving practice
2017
The Rise of Hospitalists: An Opportunity for Clinical Ethics.
McCarthy M, Real de Asua D, Fins J. The Rise of Hospitalists: An Opportunity for Clinical Ethics. The Journal Of Clinical Ethics 2017, 28: 325-332. PMID: 29257769, DOI: 10.1086/jce2017284325.Peer-Reviewed Original ResearchConceptsClinical ethicsMedical ethicsHospital medicineTeaching medical ethicsMedical educationHospitalist teaching serviceHistory of medicineField of hospital medicineNew forcesEthical theoryEthical communityNormative reasonsClinical ethicistsTeam of medical studentsIntellectual groundEthicsTheory-practice gapInpatient settingPatient carePerennial challengeHospitalistsRoutine issuesMedical studentsTeaching serviceClinical vignettesGuardianship and Clinical Research Participation: The Case of Wards with Disorders of Consciousness
Wright M, Ulrich M, Fins J. Guardianship and Clinical Research Participation: The Case of Wards with Disorders of Consciousness. Kennedy Institute Of Ethics Journal 2017, 27: 43-70. PMID: 28366903, DOI: 10.1353/ken.2017.0003.Peer-Reviewed Original ResearchMeSH KeywordsBiomedical ResearchConsciousness DisordersHumansLegal GuardiansTherapeutic Human ExperimentationUnited StatesConceptsState guardianship lawsGuardianship lawsAppointment of guardiansDecision-making authorityFederal lawGuardian's authorityState lawsClinical research participationDecisional capacityLawPotential medical interventionsDisorders of consciousnessGuardiansResearch participantsBehalfPatient accessAuthorsMedical interventionsGuardianshipStateAppointmentPersonsResearchIssuesParticipants
2016
The historical origins of the vegetative state: Received wisdom and the utility of the text
Adams Z, Fins J. The historical origins of the vegetative state: Received wisdom and the utility of the text. Journal Of The History Of The Neurosciences 2016, 26: 140-153. PMID: 27295518, DOI: 10.1080/0964704x.2016.1184074.Peer-Reviewed Original ResearchConceptsPersistent vegetative stateHistorical originsEarly-twentieth centuriesClassical scholarshipOriginal GreekAristotle’s treatisesAristotle’s definitionXavier BichatVegetative stateTheory of MindReception studiesMedical nosologyAristotleReceived wisdomPhrasesBichatAntiquityNineteenthGreekTreatisesCenturyEtymologyClassicsOriginScholarshipA Pilot Evaluation of Portfolios for Quality Attestation of Clinical Ethics Consultants
Fins J, Kodish E, Cohn F, Danis M, Derse A, Dubler N, Goulden B, Kuczewski M, Mercer M, Pearlman R, Smith M, Tarzian A, Youngner S. A Pilot Evaluation of Portfolios for Quality Attestation of Clinical Ethics Consultants. The American Journal Of Bioethics 2016, 16: 15-24. PMID: 26913652, DOI: 10.1080/15265161.2015.1134705.Peer-Reviewed Original ResearchWhat's Wrong with Evidence‐Based Medicine?
Fins J. What's Wrong with Evidence‐Based Medicine? The Hastings Center Report 2016, 46: inside back cover-inside back cover. PMID: 26786040, DOI: 10.1002/hast.534.Peer-Reviewed Original ResearchWhither the “Improvement Standard”? Coverage for Severe Brain Injury after Jimmo v. Sebelius
Fins J, Wright M, Kraft C, Rogers A, Romani M, Godwin S, Ulrich M. Whither the “Improvement Standard”? Coverage for Severe Brain Injury after Jimmo v. Sebelius. The Journal Of Law, Medicine & Ethics 2016, 44: 182-193. PMID: 27256134, DOI: 10.1177/1073110516644209.Peer-Reviewed Original Research
2015
Distinguishing Professionalism and Heroism When Disaster Strikes
Fins J. Distinguishing Professionalism and Heroism When Disaster Strikes. Cambridge Quarterly Of Healthcare Ethics 2015, 24: 373-384. PMID: 26364773, DOI: 10.1017/s0963180115000043.Peer-Reviewed Original ResearchThe Expert–Generalist
Fins J. The Expert–Generalist. Academic Medicine 2015, 90: 1010-1014. PMID: 26083403, DOI: 10.1097/acm.0000000000000798.Peer-Reviewed Original ResearchConceptsExpert generalistsCohort of primary care physiciansPrimary care settingQuality of carePrimary care physiciansReturn to trainingYears of trainingIncreased insurance coverageAffordable Care ActPhysician workforcePrimary careSpecialty careCare settingsPatient experienceCare physiciansSpecialty consultationPatient accessSubspecialty practiceCare ActCanadian modelCareInsurance coverageSubspecialty areasImplementation challengesEnhanced infrastructure