2022
Disorders of Consciousness, Disability Rights, and Triage During the Covid-19 Pandemic
Fins J. Disorders of Consciousness, Disability Rights, and Triage During the Covid-19 Pandemic. 2022, 191-202. DOI: 10.4324/9781003289487-25.Peer-Reviewed Original Research
2020
The Neglect of Persons with Severe Brain Injury in the United States: An International Human Rights Analysis.
Ezer T, Wright M, Fins J. The Neglect of Persons with Severe Brain Injury in the United States: An International Human Rights Analysis. Health And Human Rights 2020, 22: 265-278. PMID: 32669806, PMCID: PMC7348445.Peer-Reviewed Original ResearchConceptsHuman rights analysisFreedom of expressionBlock to treatmentUnited StatesRights analysisLife of personsExperiences of personsTraumatic incidentsQuality of life of personsPersonsScientific progressNeglectMedical advancesBrain injuryInadequate accessLawViolationStateSignificant medical advancesFreedomEqualityInstitutionalizationUnitsInternationalPolicy
2019
Disorders of Consciousness, Past, Present, and Future
Fins J. Disorders of Consciousness, Past, Present, and Future. Cambridge Quarterly Of Healthcare Ethics 2019, 28: 603-615. PMID: 31405394, DOI: 10.1017/s0963180119000719.Peer-Reviewed Original ResearchConceptsDisorders of consciousnessLegal obligationsPersistent vegetative stateConsciousness literatureNational Institute on DisabilityCognitive motor dissociationMinimally conscious stateCounter-narrativesAmerican Academy of NeurologyVegetative stateMotor dissociationCovert consciousnessObligationsConscious stateDisordersIndependent livingState
2017
Guardianship and Clinical Research Participation: The Case of Wards with Disorders of Consciousness
Wright M, Ulrich M, Fins J. Guardianship and Clinical Research Participation: The Case of Wards with Disorders of Consciousness. Kennedy Institute Of Ethics Journal 2017, 27: 43-70. PMID: 28366903, DOI: 10.1353/ken.2017.0003.Peer-Reviewed Original ResearchConceptsState guardianship lawsGuardianship lawsAppointment of guardiansDecision-making authorityFederal lawGuardian's authorityState lawsClinical research participationDecisional capacityLawPotential medical interventionsDisorders of consciousnessGuardiansResearch participantsBehalfPatient accessAuthorsMedical interventionsGuardianshipStateAppointmentPersonsResearchIssuesParticipants