2017
Guardianship and Clinical Research Participation: The Case of Wards with Disorders of Consciousness
Wright M, Ulrich M, Fins J. Guardianship and Clinical Research Participation: The Case of Wards with Disorders of Consciousness. Kennedy Institute Of Ethics Journal 2017, 27: 43-70. PMID: 28366903, DOI: 10.1353/ken.2017.0003.Peer-Reviewed Original ResearchConceptsState guardianship lawsGuardianship lawsAppointment of guardiansDecision-making authorityFederal lawGuardian's authorityState lawsClinical research participationDecisional capacityLawPotential medical interventionsDisorders of consciousnessGuardiansResearch participantsBehalfPatient accessAuthorsMedical interventionsGuardianshipStateAppointmentPersonsResearchIssuesParticipants
2013
What's Not Being Shared in Shared Decision‐Making?
Stark M, Fins J. What's Not Being Shared in Shared Decision‐Making? The Hastings Center Report 2013, 43: 13-16. PMID: 23842917, DOI: 10.1002/hast.188.Peer-Reviewed Original ResearchConceptsGoals of patient carePatient preferencesHealth care deliveryCare deliveryHealth carePatient carePatient choiceDecision aidMedical decisionsCost containmentMedical interventionsCost curvesDecision-making programCareNot beingHealthTreatment optionsTreatment-specificProgramDecision-makingPatientsPhysiciansPreferencesInterventionDecision