2023
Ethics Along the Continuum of Research Involving Persons with Disorders of Consciousness
Lewis A, Young M, Rohaut B, Jox R, Claassen J, Creutzfeldt C, Illes J, Kirschen M, Trevick S, Fins J. Ethics Along the Continuum of Research Involving Persons with Disorders of Consciousness. Neurocritical Care 2023, 39: 565-577. PMID: 36977963, PMCID: PMC11023737, DOI: 10.1007/s12028-023-01708-2.Peer-Reviewed Original ResearchConceptsTranslation of researchDisclosure of resultsDisorders of consciousnessContinuum of researchEthical considerationsNeuropalliative careEthics Working GroupInterpretation of outcomesLegally authorized representativeCommunication of resultsComparison of risksStudy designCarePromote recoveryInvolved personsInclusion of minoritiesExclusion criteriaNeurocritical careWorking GroupPersonsInformal reviewOutcomesAwarenessParticipation rightsData protection
2022
Ethics Priorities of the Curing Coma Campaign: An Empirical Survey
Lewis A, Claassen J, Illes J, Jox R, Kirschen M, Rohaut B, Trevick S, Young M, Fins J. Ethics Priorities of the Curing Coma Campaign: An Empirical Survey. Neurocritical Care 2022, 37: 12-21. PMID: 35505222, PMCID: PMC10034145, DOI: 10.1007/s12028-022-01506-2.Peer-Reviewed Original ResearchConceptsCountry of practiceClinical careEthical prioritiesClinical researchTranslation of researchDisclosure of resultsMethodsAn electronic surveyEthics Working GroupMedical futilityElectronic surveyResultsThe surveyDiagnostic definitionCareUnited StatesEthical topicsEmpirical surveyMinimally conscious stateEthicsCuring Coma CampaignGlobal initiativesConclusionsCollaborationRespondentsPrognostication of patientsWorking GroupSurvey