2024
Brain injury, medical progress, and the disability paradox: Towards an Americans with Abilities Act
Fins J, Shulman K, Wright M, Shapiro Z. Brain injury, medical progress, and the disability paradox: Towards an Americans with Abilities Act. Neurorehabilitation 2024, 54: 141-147. PMID: 38217618, DOI: 10.3233/nre-230118.Peer-Reviewed Original ResearchConceptsDisability lawLegal protection of patientsInterface of medicineProtection of patientsAmerican jurisprudenceConstitutional protectionLegal protectionLawConstitutive elementsNewfound abilityMedical progressProtectionJurisprudenceLegislationBrain injuryAmericanModerate to severe brain injuryDisabilityParadoxBrain injury professionalsProfessionalsADASevere brain injuryBrain
2022
Consciousness, Conflations, and Disability Rights: Denials of Care for Children in the "Minimally Conscious State".
Fins J. Consciousness, Conflations, and Disability Rights: Denials of Care for Children in the "Minimally Conscious State". The Journal Of Law, Medicine & Ethics 2022, 50: 181-183. PMID: 35243988, DOI: 10.1017/jme.2022.22.Peer-Reviewed Original Research
2020
Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care
Guidry-Grimes L, Savin K, Stramondo J, Reynolds J, Tsaplina M, Burke T, Ballantyne A, Kittay E, Stahl D, Scully J, Garland-Thomson R, Tarzian A, Dorfman D, Fins J. Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care. The Hastings Center Report 2020, 50: 28-32. PMID: 32596899, DOI: 10.1002/hast.1128.Peer-Reviewed Original ResearchConceptsCrisis standards of careDisability justiceCrisis standardsInclusion of disabled peopleJusticeRecognition justiceStandard of careEquitable processDisabled peopleDecision-makingInstitute of MedicineMovement demandsCrisisHealth careLawVision statementsProvider engagementFairnessCareCOVID-19InterestCrisis planningCommitmentDisaster situationsDisability
2018
Disorders of Consciousness, Agency, and Health Care Decision Making: Lessons From a Developmental Model
Wright M, Kraft C, Ulrich M, Fins J. Disorders of Consciousness, Agency, and Health Care Decision Making: Lessons From a Developmental Model. AJOB Neuroscience 2018, 9: 56-64. DOI: 10.1080/21507740.2018.1425755.Peer-Reviewed Original ResearchDisorders of consciousnessHealth care decision makingCare decision makingLegal systemPermanent incapacitySelf-determinationHealthDevelopmental modelDecision-making frameworkDecisionIncreasing roleDisordersPatientsPatient evolutionDecision makingRecovery processIncapacityPersonhoodPhysiciansAgenciesDisabilityMaximal extentParticipants