2021
The neuroethics of disorders of consciousness: a brief history of evolving ideas
Young M, Bodien Y, Giacino J, Fins J, Truog R, Hochberg L, Edlow B. The neuroethics of disorders of consciousness: a brief history of evolving ideas. Brain 2021, 144: 3291-3310. PMID: 34347037, PMCID: PMC8883802, DOI: 10.1093/brain/awab290.Peer-Reviewed Original ResearchConceptsDisorders of consciousnessMulti-Society Task ForceAmerican Congress of Rehabilitation MedicineNational Institute on DisabilityNatural history of recoveryHistory of recoveryAmerican Academy of NeurologyRehabilitation researchRehabilitation medicineTreatment of disorders of consciousnessResponsive careClinical careTaxonomy of disorders of consciousnessAmerican CongressVulnerable populationsIndependent livingProlonged disordersMinimally conscious stateTask ForceAmerican AcademyIncreased awarenessDisability rights perspectiveCareCritically ill patientsBiomedical ethics
2019
When No One Notices: Disorders of Consciousness and the Chronic Vegetative State
Fins J. When No One Notices: Disorders of Consciousness and the Chronic Vegetative State. The Hastings Center Report 2019, 49: 14-17. PMID: 31429953, DOI: 10.1002/hast.1030.Peer-Reviewed Original ResearchConceptsNational Institute on DisabilityMulti-Society Task Force ReportDisorders of consciousnessAmerican Academy of NeurologyComprehensive evidence-based reviewEvidence-based reviewRehabilitation researchRehabilitation medicineVegetative stateChronic vegetative stateHealthcare facilitiesTask Force ReportPractice guidelinesIndependent livingPersistent vegetative stateAmerican CollegeAmerican AcademyMisdiagnosis of patientsLevel of consciousnessPermanent vegetative stateForce ReportDiagnostic categoriesPatientsAmericanGuidelines
2018
Ethical, Palliative, and Policy Considerations in Disorders of Consciousness
Fins J, Bernat J. Ethical, Palliative, and Policy Considerations in Disorders of Consciousness. Archives Of Physical Medicine And Rehabilitation 2018, 99: 1927-1931. PMID: 30098790, DOI: 10.1016/j.apmr.2018.07.003.Peer-Reviewed Original ResearchConceptsLearning health care systemSystems of careHealth care systemAmerican Academy of Neurology guidelinesGroups of brain-injured patientsMedical decision-makingCognitive-motor dissociationNeuropalliative careAdvance directivesCare systemPractice scopeIncreasing frequency of reportsVegetative stateFrequency of reportingGuideline authorsNeurology guidelinesAmerican AcademyDisorders of consciousnessBrain-injured patientsCareCovert consciousnessGroup of patientsGuidelinesWakefulness syndromePrognostic refinementEthical, palliative, and policy considerations in disorders of consciousness
Fins J, Bernat J. Ethical, palliative, and policy considerations in disorders of consciousness. Neurology 2018, 91: 471-475. PMID: 30089621, DOI: 10.1212/wnl.0000000000005927.Peer-Reviewed Original ResearchConceptsLearning health care systemSystems of careHealth care systemAmerican Academy of Neurology guidelinesGroups of brain-injured patientsMedical decision-makingCognitive-motor dissociationNeuropalliative careAdvance directivesCare systemPractice scopeIncreasing frequency of reportsVegetative stateFrequency of reportingGuideline authorsNeurology guidelinesAmerican AcademyDisorders of consciousnessBrain-injured patientsCareCovert consciousnessGroup of patientsGuidelinesWakefulness syndromePrognostic refinement