2024
Who, What, Where, and How? The State of Family Science in Pediatric Palliative Care
Broden E, Boyden J, Keller S, James R, Mooney-Doyle K. Who, What, Where, and How? The State of Family Science in Pediatric Palliative Care. Journal Of Pain And Symptom Management 2024, 68: e254-e279. PMID: 38992396, DOI: 10.1016/j.jpainsymman.2024.06.022.Peer-Reviewed Original ResearchPediatric palliative carePediatric palliative care researchPalliative careProvision of PPCPalliative care researchPediatric illnessResponsive to family needsPerspectives of parents of childrenFamily-focused interventionsParents of childrenNature of evidenceReviewers assessed eligibilityHealth equityCare researchFamily healthScoping reviewClinical provisionFamily needsFamily impactSerious illnessFamily experiencesStudy participantsFamily voiceStructural barriersFamily processesPartnering With Parents to Dismantle “Good-Death” Narratives
Broden E, McCarthy S, Snaman J. Partnering With Parents to Dismantle “Good-Death” Narratives. JAMA Pediatrics 2024, 178: 431-432. PMID: 38466276, DOI: 10.1001/jamapediatrics.2024.0103.Peer-Reviewed Original ResearchThe Alluring, Enduring, and Troubling Concept of a “Good Death” in Pediatric Palliative Care
Broden E, McCarthy S, Snaman J. The Alluring, Enduring, and Troubling Concept of a “Good Death” in Pediatric Palliative Care. Journal Of Pain And Symptom Management 2024, 67: e665. DOI: 10.1016/j.jpainsymman.2024.02.119.Peer-Reviewed Original ResearchEnd-of-life experiencesGood deathChild deathsImprove end-of-life careImprove end-of-life experiencesIntensive interventionEnd-of-life careClinical carePediatric palliative careMedical care settingsEnd-of-lifeCare partnersPalliative careDying childrenMoral distressSymptom managementCare settingsCompassionate communicationMitigate distressAuthorship teamPredominant narrativesEarly bereavementCareResearch lensesSurviving familyPreparing for the Unimaginable: How Pediatric ICU Nurses Prepare Families for the Dying Process
Broden E, Eche-Ugwu I, DeCourcey D, Snaman J. Preparing for the Unimaginable: How Pediatric ICU Nurses Prepare Families for the Dying Process. Journal Of Pain And Symptom Management 2024, 67: e662-e663. DOI: 10.1016/j.jpainsymman.2024.02.116.Peer-Reviewed Original ResearchEnd-of-lifeEnd-of-life symptomsPICU nursesDying processPediatric intensive care unitRisk of adverse outcomesNurse-initiatedChild deathsNurse-led interventionPediatric ICU nursesTeam collaborationAnalyzing focus groupsQualitative descriptive studyICU nursesNursing perspectiveDying childrenDecisional regretNursesBereaved parentsThematic analysisDescriptive studyFocus groupsParents' perspectivesGrief outcomesPreparatory actionsThe PERCEIVE Study: Pediatric Oncology Nurses’ Perspectives on Roles as Psychosocial Interventionists
Eche-Ugwu I, Aronowitz T, Broden E, Merz A, Wolfe J, Feraco A. The PERCEIVE Study: Pediatric Oncology Nurses’ Perspectives on Roles as Psychosocial Interventionists. Journal Of Pain And Symptom Management 2024, 67: e545-e546. DOI: 10.1016/j.jpainsymman.2024.02.329.Peer-Reviewed Original ResearchPediatric oncology nursesPsychosocial care provisionOncology nurses' perspectivesPsychosocial careOncology nursesAfrican American familiesNursing perspectiveCare provisionPsychosocial resourcesIndividual interviewsNurse-led psychosocial interventionsFocus groupsProvision of psychosocial careAfrican American families of childrenCare team dynamicsParental psychosocial healthMultisite qualitative studyAmerican familiesFamilies of childrenPsychosocial healthPsychosocial interventionsNon-HispanicNursesClinician's roleAfrican American parents“At Least I Can Push this Morphine”: PICU Nurses’ Approaches to Suffering Among Dying Children
Broden E, Eche-Ugwu I, DeCourcey D, Wolfe J, Hinds P, Snaman J. “At Least I Can Push this Morphine”: PICU Nurses’ Approaches to Suffering Among Dying Children. Journal Of Pain And Symptom Management 2024, 68: 132-141.e2. PMID: 38679304, DOI: 10.1016/j.jpainsymman.2024.04.018.Peer-Reviewed Original ResearchConceptsPICU nursesPediatric intensive care unitFocus groupsInterpretive descriptive qualitative studyVirtual focus groupsParents of childrenChild sufferingNursing approachPICU experienceNursing careDying childrenPsychosocial trainingPsychosocial responsesGeographically diverse sampleCare systemNursesThematic analysisOptimal careQualitative studyCare casesGrieving experiencePhysical sufferingTeam relationshipsIntensive care unitCareFamily characteristics and childcare patterns associated with early social functioning in cancer‐bereaved parents
Snaman J, Chen L, Mazzola E, Helton G, Feifer D, Broden E, McCarthy S, Rosenberg A, Baker J, Wolfe J. Family characteristics and childcare patterns associated with early social functioning in cancer‐bereaved parents. Cancer 2024, 130: 2822-2833. PMID: 38620040, DOI: 10.1002/cncr.35325.Peer-Reviewed Original ResearchEnd-of-lifeHousehold material hardshipMaterial hardshipSocial functioningChild's end-of-lifeChild deathsEnd-of-life circumstancesImproved bereavement outcomesCancer-bereaved parentsEarly social functionParental social functioningMultivariate logistic regression modelParents of childrenLogistic regression modelsSupport interventionsPsychosocial distressBereavement outcomesChildcare patternsBereaved parentsBereavement experiencesSurvey completionIncreased oddsFamily characteristicsMultivariate modelHardshipTop Ten Tips Palliative Care Clinicians Should Know About Attending to the Existential Experience
Tarbi E, Moore C, Wallace C, Beaussant Y, Broden E, Chammas D, Galchutt P, Gilchrist D, Hayden A, Morgan B, Rosenberg L, Sager Z, Solomon S, Rosa W, Chochinov H. Top Ten Tips Palliative Care Clinicians Should Know About Attending to the Existential Experience. Journal Of Palliative Medicine 2024, 27: 1379-1389. PMID: 38546453, DOI: 10.1089/jpm.2024.0070.Peer-Reviewed Original ResearchPalliative careImplement evidence-based interventionsCulture of health carePalliative care cliniciansEvidence-based interventionsCare partnersExistential careCare cliniciansHealth careSystemic barriersExistential needsCareExistential experienceIll-preparedExistential dimensionLived experienceIndividual factorsCliniciansInterventionIllnessPatientsNeedsPersonsSkillsBarriersSupported Privacy: An Essential Principle for End-of-Life Care for Children and Families in the PICU
Butler A, Pasek T, Clark T, Broden E. Supported Privacy: An Essential Principle for End-of-Life Care for Children and Families in the PICU. Pediatric Critical Care Medicine 2024, 25: e258-e262. PMID: 38695704, DOI: 10.1097/pcc.0000000000003440.Peer-Reviewed Original ResearchConceptsEnd-of-lifeEnd-of-life care practicesDelivery of high-quality careEnd-of-life experiencesHigh-quality careProvision of privacyPICU staffCare practicesPICU teamChild deathsFamily feelingsMedicine perspectivePractical needsPICUCareStaffNeedsChildrenFamilyEmotional responsesParadoxical needPediatricCliniciansTeamDelivery
2023
"Palliative Intensive Care" at the End of a Child's Life.
Porter A, Gouda S, Broden E, Snaman J. "Palliative Intensive Care" at the End of a Child's Life. Hospital Pediatrics 2023, 13: e395-e398. PMID: 37920949, DOI: 10.1542/hpeds.2023-007348.Peer-Reviewed Original ResearchExistential Care in Daily Nursing Practice
Tarbi E, Broden E, Rosa W, Hayden A, Morgan B. Existential Care in Daily Nursing Practice. American Journal Of Nursing 2023, 123: 42-48. PMID: 37732668, PMCID: PMC10805359, DOI: 10.1097/01.naj.0000979092.39243.d4.Peer-Reviewed Original ResearchDying and Death in a Pediatric Cardiac ICU: Mixed Methods Evaluation of Multidisciplinary Staff Responses
Broden E, Bailey V, Beke D, Snaman J, Moynihan K. Dying and Death in a Pediatric Cardiac ICU: Mixed Methods Evaluation of Multidisciplinary Staff Responses. Pediatric Critical Care Medicine 2023, 25: e91-e102. PMID: 37678228, DOI: 10.1097/pcc.0000000000003357.Peer-Reviewed Original ResearchConceptsEnd-of-lifeFree-text responsesPediatric cardiac ICUFamily experiencesStaff responsesPediatric end-of-lifeImproving EOL careFree-text survey responsesMixed methods evaluationCross-sectional surveyEnd-of-life characteristicsCardiac ICUEOL careNurses' responsesAllied healthStaff surveyStaff experienceMedication intensityMultidisciplinary staffYears of experienceImprove familyMultidisciplinary teamScore quartilesEducational initiativesStaffSuffering in Acute and Critical Care
Broden E, Foxwell A. Suffering in Acute and Critical Care. 2023, 107-119. DOI: 10.1093/oso/9780197667934.003.0009.Peer-Reviewed Original ResearchCritical care settingNursing perspectiveBedside nursesInpatient contextCare settingsCritical careNursesHospital admissionIntensive care unitCare unitPatient populationFamilies of choicePotential barriersMultiple domainsSufferingEveryday routinesCareFamilyPatientsHospitalAdmissionBedsideAcutePeopleBarriersMixed‐methods analysis of decisional regret in parents following a child's death from cancer
Feifer D, Broden E, Xiong N, Mazzola E, Baker J, Wolfe J, Snaman J. Mixed‐methods analysis of decisional regret in parents following a child's death from cancer. Pediatric Blood & Cancer 2023, 70: e30541. PMID: 37414728, DOI: 10.1002/pbc.30541.Peer-Reviewed Original ResearchConceptsFree-text responsesDecisional regretChild deathsCancer-bereaved parentsAssociated with decreased riskMixed-methods designQualitative content analysisParental decisional regretChild's lifeMixed-methods analysisPrimary caregiversBereaved parentsQuantitative itemsSelf-blameParents 6Increased riskContent analysisFree textResults of qualitative content analysisQualitative reflectionsRisk of regretTreatment choiceMothersChildrenSufferingThe roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life
Broden E, Mazzola E, DeCourcey D, Blume E, Wolfe J, Snaman J. The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life. Journal Of Pediatric Nursing 2023, 72: e166-e173. PMID: 37355461, DOI: 10.1016/j.pedn.2023.06.024.Peer-Reviewed Original ResearchConceptsComplex chronic conditionsChild sufferingParents' perceptionsPalliative care involvementCare-related factorsEnd of lifeEffective support interventionsMultivariate logistic regression modelHeart diseasePerception of sufferingLogistic regression modelsEOL careCare involvementSupport interventionsSurvey of parentsIllness experienceDying processChronic conditionsBereavement experiencesFamily supportAdvanced heart diseaseIdentified factorsEOLMultivariate modelRegression modelsRisk Factors for Decisional Regret among Parents Early in Bereavement (Sci251)
Feifer D, Broden E, Xiong N, Mazzola E, Baker J, Wolfe J, Snaman J. Risk Factors for Decisional Regret among Parents Early in Bereavement (Sci251). Journal Of Pain And Symptom Management 2023, 65: e667-e668. DOI: 10.1016/j.jpainsymman.2023.02.301.Peer-Reviewed Original ResearchEnd-of-lifeEnd-of-life symptomsDecisional regretParental decisional regretEnd-of-life circumstancesCross-sectional survey of parentsFisher's exact testLocation of deathCross-sectional surveyRisk factorsMultinomial logistic regression modelParents of childrenChild sufferingHigh riskPerception of sufferingLogistic regression modelsMultinomial logistic regressionCaregiving roleExact testRelated risk factorsSurvey of parentsPrimary caregiversBereaved parentsRelative riskParents' perceptionsFactors Associated with Parents’ Perceptions of Their Child's End-of-Life Suffering (Sci229)
Broden E, Decourcey D, Blume E, Wolfe J, Snaman J. Factors Associated with Parents’ Perceptions of Their Child's End-of-Life Suffering (Sci229). Journal Of Pain And Symptom Management 2023, 65: e655-e656. DOI: 10.1016/j.jpainsymman.2023.02.279.Peer-Reviewed Original ResearchEnd of lifeLocation of deathEnd of life circumstancesBereaved parentsChild sufferingEnd-of-life sufferingCare-related factorsFactors associated with parental perceptionsAssociated with parental perceptionsSample of bereaved parentsPerception of sufferingDying childrenIllness experienceAssociated with diagnosisEffective interventionsModifiable targetsParents' perceptionsParent surveyFisher's exact testCompare parentPrimary outcomeChild characteristicsMultivariate modelCardiac diseaseDiagnostic groupsThe 2023-2026 Hospice and Palliative Nurses Association Research Agenda
Coats H, Doyon K, Isaacson M, Tay D, Rosa W, Mayahara M, Kates J, Frechman E, Wright P, Boyden J, Broden E, Hinds P, James R, Keller S, Thrane S, Mooney-Doyle K, Sullivan S, Xu J, Tanner J, Natal M. The 2023-2026 Hospice and Palliative Nurses Association Research Agenda. Journal Of Hospice And Palliative Nursing 2023, 25: 55-74. PMID: 36843048, DOI: 10.1097/njh.0000000000000935.Peer-Reviewed Original ResearchConceptsDelivery of hospicePalliative Nurses AssociationQuality improvement initiativesEvidence-based practiceNurses AssociationPalliative careEquitable deliveryImprovement initiativesExpert careHospiceCareResearch agendaNursesOrganizational fundingHPNAIllnessAssociationPalliationPracticeStakeholdersFocusAgendaFundingQualityResearch“It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents
Feifer D, Broden E, Baker J, Wolfe J, Snaman J. “It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents. Journal Of Pain And Symptom Management 2023, 65: e399-e407. PMID: 36641003, DOI: 10.1016/j.jpainsymman.2022.12.144.Peer-Reviewed Original ResearchConceptsDecisional regretBereaved parentsEnd-of-lifeFree-text responsesStudy of ParentsFree textParents of childrenEnd-of-life characteristicsDecision-making processCare teamChild deathsEarly bereavementBereavementChild's lifeParental riskSelf-blameParental responsibilityContent analysisIdentified factorsHeightened riskLongitudinal studyAnalyzed responsesChild sufferingFrequency of categoriesRecurrent categories
2022
Proxy ratings of psychological well‐being in patients with primary brain tumors: A systematic review
Sannes T, Yusufov M, Amonoo H, Broden E, Burgers D, Bain P, Pozo‐Kaderman C, Miran D, Smith T, Braun I, Pirl W. Proxy ratings of psychological well‐being in patients with primary brain tumors: A systematic review. Psycho-Oncology 2022, 32: 203-213. PMID: 36371618, PMCID: PMC10373343, DOI: 10.1002/pon.6063.Peer-Reviewed Original ResearchConceptsRates of depressionProxy ratingsJoanna Briggs Institute Critical Appraisal ChecklistSystematic reviewBrain cancer ratesCritical Appraisal ChecklistPotential risk of biasRisk of biasRatings of psychological well-beingNeuro-oncology patientsPsychological well-beingPatients' mood symptomsAppraisal checklistMethodological qualityDepression ratesWell-beingAnxietyDepressionMood symptomsRatersModerate levelsSample sizeBrain cancerPatientsJoanna