2024
Partnering With Parents to Dismantle “Good-Death” Narratives
Broden E, McCarthy S, Snaman J. Partnering With Parents to Dismantle “Good-Death” Narratives. JAMA Pediatrics 2024, 178: 431-432. PMID: 38466276, DOI: 10.1001/jamapediatrics.2024.0103.Peer-Reviewed Original Research
2023
"Palliative Intensive Care" at the End of a Child's Life.
Porter A, Gouda S, Broden E, Snaman J. "Palliative Intensive Care" at the End of a Child's Life. Hospital Pediatrics 2023, 13: e395-e398. PMID: 37920949, DOI: 10.1542/hpeds.2023-007348.Peer-Reviewed Original ResearchMixed‐methods analysis of decisional regret in parents following a child's death from cancer
Feifer D, Broden E, Xiong N, Mazzola E, Baker J, Wolfe J, Snaman J. Mixed‐methods analysis of decisional regret in parents following a child's death from cancer. Pediatric Blood & Cancer 2023, 70: e30541. PMID: 37414728, DOI: 10.1002/pbc.30541.Peer-Reviewed Original ResearchConceptsFree-text responsesDecisional regretChild deathsCancer-bereaved parentsAssociated with decreased riskMixed-methods designQualitative content analysisParental decisional regretChild's lifeMixed-methods analysisPrimary caregiversBereaved parentsQuantitative itemsSelf-blameParents 6Increased riskContent analysisFree textResults of qualitative content analysisQualitative reflectionsRisk of regretTreatment choiceMothersChildrenSufferingThe roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life
Broden E, Mazzola E, DeCourcey D, Blume E, Wolfe J, Snaman J. The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life. Journal Of Pediatric Nursing 2023, 72: e166-e173. PMID: 37355461, DOI: 10.1016/j.pedn.2023.06.024.Peer-Reviewed Original ResearchConceptsComplex chronic conditionsChild sufferingParents' perceptionsPalliative care involvementCare-related factorsEnd of lifeEffective support interventionsMultivariate logistic regression modelHeart diseasePerception of sufferingLogistic regression modelsEOL careCare involvementSupport interventionsSurvey of parentsIllness experienceDying processChronic conditionsBereavement experiencesFamily supportAdvanced heart diseaseIdentified factorsEOLMultivariate modelRegression models“It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents
Feifer D, Broden E, Baker J, Wolfe J, Snaman J. “It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents. Journal Of Pain And Symptom Management 2023, 65: e399-e407. PMID: 36641003, DOI: 10.1016/j.jpainsymman.2022.12.144.Peer-Reviewed Original ResearchMeSH KeywordsBereavementChildCross-Sectional StudiesDecision MakingHumansLongitudinal StudiesParentsConceptsDecisional regretBereaved parentsEnd-of-lifeFree-text responsesStudy of ParentsFree textParents of childrenEnd-of-life characteristicsDecision-making processCare teamChild deathsEarly bereavementBereavementChild's lifeParental riskSelf-blameParental responsibilityContent analysisIdentified factorsHeightened riskLongitudinal studyAnalyzed responsesChild sufferingFrequency of categoriesRecurrent categories
2022
“I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either”
Broden E, Hinds P, Werner-Lin A, Curley M. “I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either”. Journal Of Hospice And Palliative Nursing 2022, 24: 271-280. PMID: 35666188, PMCID: PMC9437116, DOI: 10.1097/njh.0000000000000884.Peer-Reviewed Original ResearchConceptsChild's end-of-life careEnd-of-life careComplex chronic illnessIntensive care cliniciansChild sufferingParents' memoriesNursing careDying childrenIllness trajectoryCare cliniciansCritical care requirementsChildren's painChronic illnessInterviewed 7Care requirementsBereaved parentsPatient's painChild's comfortParental distressQualitative interviewsMethods designParental bereavementParents' descriptionsParents' abilityCareShifting and intersecting needs: Parents’ experiences during and following the withdrawal of life sustaining treatments in the paediatric intensive care unit
Broden E, Werner-Lin A, Curley M, Hinds P. Shifting and intersecting needs: Parents’ experiences during and following the withdrawal of life sustaining treatments in the paediatric intensive care unit. Intensive And Critical Care Nursing 2022, 70: 103216. PMID: 35219558, PMCID: PMC9128001, DOI: 10.1016/j.iccn.2022.103216.Peer-Reviewed Original ResearchMeSH KeywordsChildDeathHumansIntensive Care Units, PediatricParentsQualitative ResearchTerminal CareConceptsPaediatric intensive care unitDying childrenCare needsChild's end-of-life careEnd-of-life careEnd-of-life needsIntensive care unit processesNursing care needsIntensive care unitWithdrawal of life-sustaining treatmentWithdrawal of life supportLong-term griefLife-sustaining treatmentCare unitNursing careNursing supportClinical careNursesParents' prioritiesParents' experiencesParents' perceptionsParental griefArray of emotionsParental adaptationLife support
2020
Defining a "Good Death" in the Pediatric Intensive Care Unit.
Broden E, Deatrick J, Ulrich C, Curley M. Defining a "Good Death" in the Pediatric Intensive Care Unit. American Journal Of Critical Care 2020, 29: 111-121. PMID: 32114610, PMCID: PMC11288184, DOI: 10.4037/ajcc2020466.Peer-Reviewed Original ResearchConceptsEnd-of-lifeDying childrenPediatric intensive care unitIntensive care unitEnd-of-life careParents' perspectivesCare unitBedside nursing careEnd-of-life eventsConcept analysisStudy of ParentsCase of carePerspective of parentsNursing carePediatric nursesInpatient settingChild deathsDeceased childrenPromote parentEmpirical study of parentsParents' viewsCareEmpirical referentsSocietal attitudesDatabase search
2019
Challenges to Family Management for Caregivers of Adolescent and Young Adult Survivors of Childhood Brain Tumors
SanGiacomo N, Toth J, Hobbie W, Broden E, Hoeve E, Knafl K, Barakat L, Ogle S, Deatrick J. Challenges to Family Management for Caregivers of Adolescent and Young Adult Survivors of Childhood Brain Tumors. Journal Of Pediatric Hematology/Oncology Nursing 2019, 36: 402-412. PMID: 31046569, PMCID: PMC6791045, DOI: 10.1177/1043454219844229.Peer-Reviewed Original ResearchConceptsSurvivors of childhood brain tumorsFamily Management Style FrameworkChildhood brain tumorsLate effectsYoung adult survivors of childhood brain tumorsDirected content analysisCaregivers of adolescentsTreatment late effectsFamily managementYoung adult survivorsWell-beingSurvivors' well-beingAdult survivors of childhood brain tumorsSurvivor independenceAYA survivorsSibling well-beingChronic conditionsSemistructured interviewsCaregiversAnticipatory guidanceClinical expertiseMaternal caregivingAYAFamily activitiesFunctional restrictions