2023
Mixed‐methods analysis of decisional regret in parents following a child's death from cancer
Feifer D, Broden E, Xiong N, Mazzola E, Baker J, Wolfe J, Snaman J. Mixed‐methods analysis of decisional regret in parents following a child's death from cancer. Pediatric Blood & Cancer 2023, 70: e30541. PMID: 37414728, DOI: 10.1002/pbc.30541.Peer-Reviewed Original ResearchConceptsFree-text responsesDecisional regretChild deathsCancer-bereaved parentsAssociated with decreased riskMixed-methods designQualitative content analysisParental decisional regretChild's lifeMixed-methods analysisPrimary caregiversBereaved parentsQuantitative itemsSelf-blameParents 6Increased riskContent analysisFree textResults of qualitative content analysisQualitative reflectionsRisk of regretTreatment choiceMothersChildrenSufferingThe roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life
Broden E, Mazzola E, DeCourcey D, Blume E, Wolfe J, Snaman J. The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life. Journal Of Pediatric Nursing 2023, 72: e166-e173. PMID: 37355461, DOI: 10.1016/j.pedn.2023.06.024.Peer-Reviewed Original ResearchConceptsComplex chronic conditionsChild sufferingParents' perceptionsPalliative care involvementCare-related factorsEnd of lifeEffective support interventionsMultivariate logistic regression modelHeart diseasePerception of sufferingLogistic regression modelsEOL careCare involvementSupport interventionsSurvey of parentsIllness experienceDying processChronic conditionsBereavement experiencesFamily supportAdvanced heart diseaseIdentified factorsEOLMultivariate modelRegression models
2022
“I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either”
Broden E, Hinds P, Werner-Lin A, Curley M. “I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either”. Journal Of Hospice And Palliative Nursing 2022, 24: 271-280. PMID: 35666188, PMCID: PMC9437116, DOI: 10.1097/njh.0000000000000884.Peer-Reviewed Original ResearchConceptsChild's end-of-life careEnd-of-life careComplex chronic illnessIntensive care cliniciansChild sufferingParents' memoriesNursing careDying childrenIllness trajectoryCare cliniciansCritical care requirementsChildren's painChronic illnessInterviewed 7Care requirementsBereaved parentsPatient's painChild's comfortParental distressQualitative interviewsMethods designParental bereavementParents' descriptionsParents' abilityCareNursing Care at End of Life in Pediatric Intensive Care Unit Patients Requiring Mechanical Ventilation.
Broden E, Hinds P, Werner-Lin A, Quinn R, Asaro L, Curley M. Nursing Care at End of Life in Pediatric Intensive Care Unit Patients Requiring Mechanical Ventilation. American Journal Of Critical Care 2022, 31: 230-239. PMID: 35466341, PMCID: PMC11289849, DOI: 10.4037/ajcc2022294.Peer-Reviewed Original ResearchMeSH KeywordsAcute DiseaseChildDeathHumansIntensive Care Units, PediatricNeoplasmsPainRespiration, ArtificialConceptsNursing care requirementsPediatric intensive care unitIllness trajectoryCare requirementsNursing care needsWithdrawal of life-sustaining treatmentWithdrawal of life supportLife-sustaining treatmentAssociated with pain scoresPattern of painCritical care devicesPain scoresDay of deathNursing careRandomized Evaluation of Sedation TitrationCare needsRespiratory Failure trialComfort medicationsDaily painNursesPediatric intensive care unit patientsParents' perspectivesSecondary analysisCritical careParents' perceptions
2021
“I Had a Lot More Planned”: The Existential Dimensions of Prognosis Communication with Adults with Advanced Cancer
Tarbi E, Gramling R, Bradway C, Broden E, Meghani S. “I Had a Lot More Planned”: The Existential Dimensions of Prognosis Communication with Adults with Advanced Cancer. Journal Of Palliative Medicine 2021, 24: 1443-1454. PMID: 33534644, PMCID: PMC8568783, DOI: 10.1089/jpm.2020.0696.Peer-Reviewed Original ResearchConceptsPalliative care conversationsPrognosis communicationCare conversationsExistential dimensionPalliative care communicationPalliative care cliniciansAdvanced cancerEffective palliative careExplanatory sequential mixed methods designSequential mixed methods designMixed methods designExistential distressPalliative careCare communicationExistential communicationCare cliniciansPrognostic understandingIllness experienceAudio-recordedParent studyMethods designStudy sampleResearch initiativesAdultsCare