2024
Partnering With Parents to Dismantle “Good-Death” Narratives
Broden E, McCarthy S, Snaman J. Partnering With Parents to Dismantle “Good-Death” Narratives. JAMA Pediatrics 2024, 178: 431-432. PMID: 38466276, DOI: 10.1001/jamapediatrics.2024.0103.Peer-Reviewed Original Research“At Least I Can Push this Morphine”: PICU Nurses’ Approaches to Suffering Among Dying Children
Broden E, Eche-Ugwu I, DeCourcey D, Wolfe J, Hinds P, Snaman J. “At Least I Can Push this Morphine”: PICU Nurses’ Approaches to Suffering Among Dying Children. Journal Of Pain And Symptom Management 2024, 68: 132-141.e2. PMID: 38679304, DOI: 10.1016/j.jpainsymman.2024.04.018.Peer-Reviewed Original ResearchConceptsPICU nursesPediatric intensive care unitFocus groupsInterpretive descriptive qualitative studyVirtual focus groupsParents of childrenChild sufferingNursing approachPICU experienceNursing careDying childrenPsychosocial trainingPsychosocial responsesGeographically diverse sampleCare systemNursesThematic analysisOptimal careQualitative studyCare casesGrieving experiencePhysical sufferingTeam relationshipsIntensive care unitCareSupported Privacy: An Essential Principle for End-of-Life Care for Children and Families in the PICU
Butler A, Pasek T, Clark T, Broden E. Supported Privacy: An Essential Principle for End-of-Life Care for Children and Families in the PICU. Pediatric Critical Care Medicine 2024, 25: e258-e262. PMID: 38695704, DOI: 10.1097/pcc.0000000000003440.Peer-Reviewed Original ResearchConceptsEnd-of-lifeEnd-of-life care practicesDelivery of high-quality careEnd-of-life experiencesHigh-quality careProvision of privacyPICU staffCare practicesPICU teamChild deathsFamily feelingsMedicine perspectivePractical needsPICUCareStaffNeedsChildrenFamilyEmotional responsesParadoxical needPediatricCliniciansTeamDelivery
2023
"Palliative Intensive Care" at the End of a Child's Life.
Porter A, Gouda S, Broden E, Snaman J. "Palliative Intensive Care" at the End of a Child's Life. Hospital Pediatrics 2023, 13: e395-e398. PMID: 37920949, DOI: 10.1542/hpeds.2023-007348.Peer-Reviewed Original ResearchDying and Death in a Pediatric Cardiac ICU: Mixed Methods Evaluation of Multidisciplinary Staff Responses
Broden E, Bailey V, Beke D, Snaman J, Moynihan K. Dying and Death in a Pediatric Cardiac ICU: Mixed Methods Evaluation of Multidisciplinary Staff Responses. Pediatric Critical Care Medicine 2023, 25: e91-e102. PMID: 37678228, DOI: 10.1097/pcc.0000000000003357.Peer-Reviewed Original ResearchConceptsEnd-of-lifeFree-text responsesPediatric cardiac ICUFamily experiencesStaff responsesPediatric end-of-lifeImproving EOL careFree-text survey responsesMixed methods evaluationCross-sectional surveyEnd-of-life characteristicsCardiac ICUEOL careNurses' responsesAllied healthStaff surveyStaff experienceMedication intensityMultidisciplinary staffYears of experienceImprove familyMultidisciplinary teamScore quartilesEducational initiativesStaffMixed‐methods analysis of decisional regret in parents following a child's death from cancer
Feifer D, Broden E, Xiong N, Mazzola E, Baker J, Wolfe J, Snaman J. Mixed‐methods analysis of decisional regret in parents following a child's death from cancer. Pediatric Blood & Cancer 2023, 70: e30541. PMID: 37414728, DOI: 10.1002/pbc.30541.Peer-Reviewed Original ResearchConceptsFree-text responsesDecisional regretChild deathsCancer-bereaved parentsAssociated with decreased riskMixed-methods designQualitative content analysisParental decisional regretChild's lifeMixed-methods analysisPrimary caregiversBereaved parentsQuantitative itemsSelf-blameParents 6Increased riskContent analysisFree textResults of qualitative content analysisQualitative reflectionsRisk of regretTreatment choiceMothersChildrenSufferingThe roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life
Broden E, Mazzola E, DeCourcey D, Blume E, Wolfe J, Snaman J. The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life. Journal Of Pediatric Nursing 2023, 72: e166-e173. PMID: 37355461, DOI: 10.1016/j.pedn.2023.06.024.Peer-Reviewed Original ResearchConceptsComplex chronic conditionsChild sufferingParents' perceptionsPalliative care involvementCare-related factorsEnd of lifeEffective support interventionsMultivariate logistic regression modelHeart diseasePerception of sufferingLogistic regression modelsEOL careCare involvementSupport interventionsSurvey of parentsIllness experienceDying processChronic conditionsBereavement experiencesFamily supportAdvanced heart diseaseIdentified factorsEOLMultivariate modelRegression modelsThe 2023-2026 Hospice and Palliative Nurses Association Research Agenda
Coats H, Doyon K, Isaacson M, Tay D, Rosa W, Mayahara M, Kates J, Frechman E, Wright P, Boyden J, Broden E, Hinds P, James R, Keller S, Thrane S, Mooney-Doyle K, Sullivan S, Xu J, Tanner J, Natal M. The 2023-2026 Hospice and Palliative Nurses Association Research Agenda. Journal Of Hospice And Palliative Nursing 2023, 25: 55-74. PMID: 36843048, DOI: 10.1097/njh.0000000000000935.Peer-Reviewed Original ResearchConceptsDelivery of hospicePalliative Nurses AssociationQuality improvement initiativesEvidence-based practiceNurses AssociationPalliative careEquitable deliveryImprovement initiativesExpert careHospiceCareResearch agendaNursesOrganizational fundingHPNAIllnessAssociationPalliationPracticeStakeholdersFocusAgendaFundingQualityResearch“It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents
Feifer D, Broden E, Baker J, Wolfe J, Snaman J. “It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents. Journal Of Pain And Symptom Management 2023, 65: e399-e407. PMID: 36641003, DOI: 10.1016/j.jpainsymman.2022.12.144.Peer-Reviewed Original ResearchConceptsDecisional regretBereaved parentsEnd-of-lifeFree-text responsesStudy of ParentsFree textParents of childrenEnd-of-life characteristicsDecision-making processCare teamChild deathsEarly bereavementBereavementChild's lifeParental riskSelf-blameParental responsibilityContent analysisIdentified factorsHeightened riskLongitudinal studyAnalyzed responsesChild sufferingFrequency of categoriesRecurrent categories
2022
Proxy ratings of psychological well‐being in patients with primary brain tumors: A systematic review
Sannes T, Yusufov M, Amonoo H, Broden E, Burgers D, Bain P, Pozo‐Kaderman C, Miran D, Smith T, Braun I, Pirl W. Proxy ratings of psychological well‐being in patients with primary brain tumors: A systematic review. Psycho-Oncology 2022, 32: 203-213. PMID: 36371618, PMCID: PMC10373343, DOI: 10.1002/pon.6063.Peer-Reviewed Original ResearchConceptsRates of depressionProxy ratingsJoanna Briggs Institute Critical Appraisal ChecklistSystematic reviewBrain cancer ratesCritical Appraisal ChecklistPotential risk of biasRisk of biasRatings of psychological well-beingNeuro-oncology patientsPsychological well-beingPatients' mood symptomsAppraisal checklistMethodological qualityDepression ratesWell-beingAnxietyDepressionMood symptomsRatersModerate levelsSample sizeBrain cancerPatientsJoanna“I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either”
Broden E, Hinds P, Werner-Lin A, Curley M. “I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either”. Journal Of Hospice And Palliative Nursing 2022, 24: 271-280. PMID: 35666188, PMCID: PMC9437116, DOI: 10.1097/njh.0000000000000884.Peer-Reviewed Original ResearchConceptsChild's end-of-life careEnd-of-life careComplex chronic illnessIntensive care cliniciansChild sufferingParents' memoriesNursing careDying childrenIllness trajectoryCare cliniciansCritical care requirementsChildren's painChronic illnessInterviewed 7Care requirementsBereaved parentsPatient's painChild's comfortParental distressQualitative interviewsMethods designParental bereavementParents' descriptionsParents' abilityCareNursing Care at End of Life in Pediatric Intensive Care Unit Patients Requiring Mechanical Ventilation.
Broden E, Hinds P, Werner-Lin A, Quinn R, Asaro L, Curley M. Nursing Care at End of Life in Pediatric Intensive Care Unit Patients Requiring Mechanical Ventilation. American Journal Of Critical Care 2022, 31: 230-239. PMID: 35466341, PMCID: PMC11289849, DOI: 10.4037/ajcc2022294.Peer-Reviewed Original ResearchConceptsNursing care requirementsPediatric intensive care unitIllness trajectoryCare requirementsNursing care needsWithdrawal of life-sustaining treatmentWithdrawal of life supportLife-sustaining treatmentAssociated with pain scoresPattern of painCritical care devicesPain scoresDay of deathNursing careRandomized Evaluation of Sedation TitrationCare needsRespiratory Failure trialComfort medicationsDaily painNursesPediatric intensive care unit patientsParents' perspectivesSecondary analysisCritical careParents' perceptionsShifting and intersecting needs: Parents’ experiences during and following the withdrawal of life sustaining treatments in the paediatric intensive care unit
Broden E, Werner-Lin A, Curley M, Hinds P. Shifting and intersecting needs: Parents’ experiences during and following the withdrawal of life sustaining treatments in the paediatric intensive care unit. Intensive And Critical Care Nursing 2022, 70: 103216. PMID: 35219558, PMCID: PMC9128001, DOI: 10.1016/j.iccn.2022.103216.Peer-Reviewed Original ResearchConceptsPaediatric intensive care unitDying childrenCare needsChild's end-of-life careEnd-of-life careEnd-of-life needsIntensive care unit processesNursing care needsIntensive care unitWithdrawal of life-sustaining treatmentWithdrawal of life supportLong-term griefLife-sustaining treatmentCare unitNursing careNursing supportClinical careNursesParents' prioritiesParents' experiencesParents' perceptionsParental griefArray of emotionsParental adaptationLife support
2021
“I Had a Lot More Planned”: The Existential Dimensions of Prognosis Communication with Adults with Advanced Cancer
Tarbi E, Gramling R, Bradway C, Broden E, Meghani S. “I Had a Lot More Planned”: The Existential Dimensions of Prognosis Communication with Adults with Advanced Cancer. Journal Of Palliative Medicine 2021, 24: 1443-1454. PMID: 33534644, PMCID: PMC8568783, DOI: 10.1089/jpm.2020.0696.Peer-Reviewed Original ResearchConceptsPalliative care conversationsPrognosis communicationCare conversationsExistential dimensionPalliative care communicationPalliative care cliniciansAdvanced cancerEffective palliative careExplanatory sequential mixed methods designSequential mixed methods designMixed methods designExistential distressPalliative careCare communicationExistential communicationCare cliniciansPrognostic understandingIllness experienceAudio-recordedParent studyMethods designStudy sampleResearch initiativesAdultsCare
2020
Defining a "Good Death" in the Pediatric Intensive Care Unit.
Broden E, Deatrick J, Ulrich C, Curley M. Defining a "Good Death" in the Pediatric Intensive Care Unit. American Journal Of Critical Care 2020, 29: 111-121. PMID: 32114610, PMCID: PMC11288184, DOI: 10.4037/ajcc2020466.Peer-Reviewed Original ResearchConceptsEnd-of-lifeDying childrenPediatric intensive care unitIntensive care unitEnd-of-life careParents' perspectivesCare unitBedside nursing careEnd-of-life eventsConcept analysisStudy of ParentsCase of carePerspective of parentsNursing carePediatric nursesInpatient settingChild deathsDeceased childrenPromote parentEmpirical study of parentsParents' viewsCareEmpirical referentsSocietal attitudesDatabase search
2019
Challenges to Family Management for Caregivers of Adolescent and Young Adult Survivors of Childhood Brain Tumors
SanGiacomo N, Toth J, Hobbie W, Broden E, Hoeve E, Knafl K, Barakat L, Ogle S, Deatrick J. Challenges to Family Management for Caregivers of Adolescent and Young Adult Survivors of Childhood Brain Tumors. Journal Of Pediatric Hematology/Oncology Nursing 2019, 36: 402-412. PMID: 31046569, PMCID: PMC6791045, DOI: 10.1177/1043454219844229.Peer-Reviewed Original ResearchConceptsSurvivors of childhood brain tumorsFamily Management Style FrameworkChildhood brain tumorsLate effectsYoung adult survivors of childhood brain tumorsDirected content analysisCaregivers of adolescentsTreatment late effectsFamily managementYoung adult survivorsWell-beingSurvivors' well-beingAdult survivors of childhood brain tumorsSurvivor independenceAYA survivorsSibling well-beingChronic conditionsSemistructured interviewsCaregiversAnticipatory guidanceClinical expertiseMaternal caregivingAYAFamily activitiesFunctional restrictions
2018
Applications of Grief and Bereavement Theory for Critical Care Nurses.
Broden E, Uveges M. Applications of Grief and Bereavement Theory for Critical Care Nurses. AACN Advanced Critical Care 2018, 29: 354-359. PMID: 30185503, DOI: 10.4037/aacnacc2018595.Peer-Reviewed Original ResearchPatterns of Family Management for Adolescent and Young Adult Brain Tumor Survivors
Deatrick J, Barakat L, Knafl G, Hobbie W, Ogle S, Ginsberg J, Fisher M, Hardie T, Reilly M, Broden E, Toth J, SanGiacomo N, Knafl K. Patterns of Family Management for Adolescent and Young Adult Brain Tumor Survivors. Journal Of Family Psychology 2018, 32: 321-332. PMID: 29698006, PMCID: PMC5926795, DOI: 10.1037/fam0000352.Peer-Reviewed Original ResearchConceptsFM patternsFamily caregiversAYA survivorsYoung adult brain tumor survivorsFamily Management Style FrameworkCancer-related variablesChronic health conditionsFamily Management MeasureAnalysis of dataMixed-methods designFamily managementSurvivors of childhood brain tumorsSignificant demographic characteristicsSurvivors' engagementBrain tumor survivorsSurvivors' qualityQualitative analysis of dataCondition managementPrimary caregiversHealth conditionsSecondary aimMaternal qualityCaregiversComplex intersectionsDemographic characteristics