2024
Supported Privacy: An Essential Principle for End-of-Life Care for Children and Families in the PICU
Butler A, Pasek T, Clark T, Broden E. Supported Privacy: An Essential Principle for End-of-Life Care for Children and Families in the PICU. Pediatric Critical Care Medicine 2024, 25: e258-e262. PMID: 38695704, DOI: 10.1097/pcc.0000000000003440.Peer-Reviewed Original ResearchConceptsEnd-of-lifeEnd-of-life care practicesDelivery of high-quality careEnd-of-life experiencesHigh-quality careProvision of privacyPICU staffCare practicesPICU teamChild deathsFamily feelingsMedicine perspectivePractical needsPICUCareStaffNeedsChildrenFamilyEmotional responsesParadoxical needPediatricCliniciansTeamDelivery
2018
Patterns of Family Management for Adolescent and Young Adult Brain Tumor Survivors
Deatrick J, Barakat L, Knafl G, Hobbie W, Ogle S, Ginsberg J, Fisher M, Hardie T, Reilly M, Broden E, Toth J, SanGiacomo N, Knafl K. Patterns of Family Management for Adolescent and Young Adult Brain Tumor Survivors. Journal Of Family Psychology 2018, 32: 321-332. PMID: 29698006, PMCID: PMC5926795, DOI: 10.1037/fam0000352.Peer-Reviewed Original ResearchConceptsFM patternsFamily caregiversAYA survivorsYoung adult brain tumor survivorsFamily Management Style FrameworkCancer-related variablesChronic health conditionsFamily Management MeasureAnalysis of dataMixed-methods designFamily managementSurvivors of childhood brain tumorsSignificant demographic characteristicsSurvivors' engagementBrain tumor survivorsSurvivors' qualityQualitative analysis of dataCondition managementPrimary caregiversHealth conditionsSecondary aimMaternal qualityCaregiversComplex intersectionsDemographic characteristics