2022
Proxy ratings of psychological well‐being in patients with primary brain tumors: A systematic review
Sannes T, Yusufov M, Amonoo H, Broden E, Burgers D, Bain P, Pozo‐Kaderman C, Miran D, Smith T, Braun I, Pirl W. Proxy ratings of psychological well‐being in patients with primary brain tumors: A systematic review. Psycho-Oncology 2022, 32: 203-213. PMID: 36371618, PMCID: PMC10373343, DOI: 10.1002/pon.6063.Peer-Reviewed Original ResearchConceptsRates of depressionProxy ratingsJoanna Briggs Institute Critical Appraisal ChecklistSystematic reviewBrain cancer ratesCritical Appraisal ChecklistPotential risk of biasRisk of biasRatings of psychological well-beingNeuro-oncology patientsPsychological well-beingPatients' mood symptomsAppraisal checklistMethodological qualityDepression ratesWell-beingAnxietyDepressionMood symptomsRatersModerate levelsSample sizeBrain cancerPatientsJoanna
2019
Challenges to Family Management for Caregivers of Adolescent and Young Adult Survivors of Childhood Brain Tumors
SanGiacomo N, Toth J, Hobbie W, Broden E, Hoeve E, Knafl K, Barakat L, Ogle S, Deatrick J. Challenges to Family Management for Caregivers of Adolescent and Young Adult Survivors of Childhood Brain Tumors. Journal Of Pediatric Hematology/Oncology Nursing 2019, 36: 402-412. PMID: 31046569, PMCID: PMC6791045, DOI: 10.1177/1043454219844229.Peer-Reviewed Original ResearchConceptsSurvivors of childhood brain tumorsFamily Management Style FrameworkChildhood brain tumorsLate effectsYoung adult survivors of childhood brain tumorsDirected content analysisCaregivers of adolescentsTreatment late effectsFamily managementYoung adult survivorsWell-beingSurvivors' well-beingAdult survivors of childhood brain tumorsSurvivor independenceAYA survivorsSibling well-beingChronic conditionsSemistructured interviewsCaregiversAnticipatory guidanceClinical expertiseMaternal caregivingAYAFamily activitiesFunctional restrictions
2018
Patterns of Family Management for Adolescent and Young Adult Brain Tumor Survivors
Deatrick J, Barakat L, Knafl G, Hobbie W, Ogle S, Ginsberg J, Fisher M, Hardie T, Reilly M, Broden E, Toth J, SanGiacomo N, Knafl K. Patterns of Family Management for Adolescent and Young Adult Brain Tumor Survivors. Journal Of Family Psychology 2018, 32: 321-332. PMID: 29698006, PMCID: PMC5926795, DOI: 10.1037/fam0000352.Peer-Reviewed Original ResearchConceptsFM patternsFamily caregiversAYA survivorsYoung adult brain tumor survivorsFamily Management Style FrameworkCancer-related variablesChronic health conditionsFamily Management MeasureAnalysis of dataMixed-methods designFamily managementSurvivors of childhood brain tumorsSignificant demographic characteristicsSurvivors' engagementBrain tumor survivorsSurvivors' qualityQualitative analysis of dataCondition managementPrimary caregiversHealth conditionsSecondary aimMaternal qualityCaregiversComplex intersectionsDemographic characteristics