2023
Mixed‐methods analysis of decisional regret in parents following a child's death from cancer
Feifer D, Broden E, Xiong N, Mazzola E, Baker J, Wolfe J, Snaman J. Mixed‐methods analysis of decisional regret in parents following a child's death from cancer. Pediatric Blood & Cancer 2023, 70: e30541. PMID: 37414728, DOI: 10.1002/pbc.30541.Peer-Reviewed Original ResearchConceptsFree-text responsesDecisional regretChild deathsCancer-bereaved parentsAssociated with decreased riskMixed-methods designQualitative content analysisParental decisional regretChild's lifeMixed-methods analysisPrimary caregiversBereaved parentsQuantitative itemsSelf-blameParents 6Increased riskContent analysisFree textResults of qualitative content analysisQualitative reflectionsRisk of regretTreatment choiceMothersChildrenSufferingRisk Factors for Decisional Regret among Parents Early in Bereavement (Sci251)
Feifer D, Broden E, Xiong N, Mazzola E, Baker J, Wolfe J, Snaman J. Risk Factors for Decisional Regret among Parents Early in Bereavement (Sci251). Journal Of Pain And Symptom Management 2023, 65: e667-e668. DOI: 10.1016/j.jpainsymman.2023.02.301.Peer-Reviewed Original ResearchEnd-of-lifeEnd-of-life symptomsDecisional regretParental decisional regretEnd-of-life circumstancesCross-sectional survey of parentsFisher's exact testLocation of deathCross-sectional surveyRisk factorsMultinomial logistic regression modelParents of childrenChild sufferingHigh riskPerception of sufferingLogistic regression modelsMultinomial logistic regressionCaregiving roleExact testRelated risk factorsSurvey of parentsPrimary caregiversBereaved parentsRelative riskParents' perceptions
2018
Patterns of Family Management for Adolescent and Young Adult Brain Tumor Survivors
Deatrick J, Barakat L, Knafl G, Hobbie W, Ogle S, Ginsberg J, Fisher M, Hardie T, Reilly M, Broden E, Toth J, SanGiacomo N, Knafl K. Patterns of Family Management for Adolescent and Young Adult Brain Tumor Survivors. Journal Of Family Psychology 2018, 32: 321-332. PMID: 29698006, PMCID: PMC5926795, DOI: 10.1037/fam0000352.Peer-Reviewed Original ResearchConceptsFM patternsFamily caregiversAYA survivorsYoung adult brain tumor survivorsFamily Management Style FrameworkCancer-related variablesChronic health conditionsFamily Management MeasureAnalysis of dataMixed-methods designFamily managementSurvivors of childhood brain tumorsSignificant demographic characteristicsSurvivors' engagementBrain tumor survivorsSurvivors' qualityQualitative analysis of dataCondition managementPrimary caregiversHealth conditionsSecondary aimMaternal qualityCaregiversComplex intersectionsDemographic characteristics