Who, What, Where, and How? The State of Family Science in Pediatric Palliative Care
Broden E, Boyden J, Keller S, James R, Mooney-Doyle K. Who, What, Where, and How? The State of Family Science in Pediatric Palliative Care. Journal Of Pain And Symptom Management 2024, 68: e254-e279. PMID: 38992396, DOI: 10.1016/j.jpainsymman.2024.06.022.Peer-Reviewed Original ResearchPediatric palliative carePediatric palliative care researchPalliative careProvision of PPCPalliative care researchPediatric illnessResponsive to family needsPerspectives of parents of childrenFamily-focused interventionsParents of childrenNature of evidenceReviewers assessed eligibilityHealth equityCare researchFamily healthScoping reviewClinical provisionFamily needsFamily impactSerious illnessFamily experiencesStudy participantsFamily voiceStructural barriersFamily processesThe Alluring, Enduring, and Troubling Concept of a “Good Death” in Pediatric Palliative Care
Broden E, McCarthy S, Snaman J. The Alluring, Enduring, and Troubling Concept of a “Good Death” in Pediatric Palliative Care. Journal Of Pain And Symptom Management 2024, 67: e665. DOI: 10.1016/j.jpainsymman.2024.02.119.Peer-Reviewed Original ResearchEnd-of-life experiencesGood deathChild deathsImprove end-of-life careImprove end-of-life experiencesIntensive interventionEnd-of-life careClinical carePediatric palliative careMedical care settingsEnd-of-lifeCare partnersPalliative careDying childrenMoral distressSymptom managementCare settingsCompassionate communicationMitigate distressAuthorship teamPredominant narrativesEarly bereavementCareResearch lensesSurviving family