2023
The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life
Broden E, Mazzola E, DeCourcey D, Blume E, Wolfe J, Snaman J. The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life. Journal Of Pediatric Nursing 2023, 72: e166-e173. PMID: 37355461, DOI: 10.1016/j.pedn.2023.06.024.Peer-Reviewed Original ResearchConceptsComplex chronic conditionsChild sufferingParents' perceptionsPalliative care involvementCare-related factorsEnd of lifeEffective support interventionsMultivariate logistic regression modelHeart diseasePerception of sufferingLogistic regression modelsEOL careCare involvementSupport interventionsSurvey of parentsIllness experienceDying processChronic conditionsBereavement experiencesFamily supportAdvanced heart diseaseIdentified factorsEOLMultivariate modelRegression modelsRisk Factors for Decisional Regret among Parents Early in Bereavement (Sci251)
Feifer D, Broden E, Xiong N, Mazzola E, Baker J, Wolfe J, Snaman J. Risk Factors for Decisional Regret among Parents Early in Bereavement (Sci251). Journal Of Pain And Symptom Management 2023, 65: e667-e668. DOI: 10.1016/j.jpainsymman.2023.02.301.Peer-Reviewed Original ResearchEnd-of-lifeEnd-of-life symptomsDecisional regretParental decisional regretEnd-of-life circumstancesCross-sectional survey of parentsFisher's exact testLocation of deathCross-sectional surveyRisk factorsMultinomial logistic regression modelParents of childrenChild sufferingHigh riskPerception of sufferingLogistic regression modelsMultinomial logistic regressionCaregiving roleExact testRelated risk factorsSurvey of parentsPrimary caregiversBereaved parentsRelative riskParents' perceptionsFactors Associated with Parents’ Perceptions of Their Child's End-of-Life Suffering (Sci229)
Broden E, Decourcey D, Blume E, Wolfe J, Snaman J. Factors Associated with Parents’ Perceptions of Their Child's End-of-Life Suffering (Sci229). Journal Of Pain And Symptom Management 2023, 65: e655-e656. DOI: 10.1016/j.jpainsymman.2023.02.279.Peer-Reviewed Original ResearchEnd of lifeLocation of deathEnd of life circumstancesBereaved parentsChild sufferingEnd-of-life sufferingCare-related factorsFactors associated with parental perceptionsAssociated with parental perceptionsSample of bereaved parentsPerception of sufferingDying childrenIllness experienceAssociated with diagnosisEffective interventionsModifiable targetsParents' perceptionsParent surveyFisher's exact testCompare parentPrimary outcomeChild characteristicsMultivariate modelCardiac diseaseDiagnostic groups
2022
Nursing Care at End of Life in Pediatric Intensive Care Unit Patients Requiring Mechanical Ventilation.
Broden E, Hinds P, Werner-Lin A, Quinn R, Asaro L, Curley M. Nursing Care at End of Life in Pediatric Intensive Care Unit Patients Requiring Mechanical Ventilation. American Journal Of Critical Care 2022, 31: 230-239. PMID: 35466341, PMCID: PMC11289849, DOI: 10.4037/ajcc2022294.Peer-Reviewed Original ResearchConceptsNursing care requirementsPediatric intensive care unitIllness trajectoryCare requirementsNursing care needsWithdrawal of life-sustaining treatmentWithdrawal of life supportLife-sustaining treatmentAssociated with pain scoresPattern of painCritical care devicesPain scoresDay of deathNursing careRandomized Evaluation of Sedation TitrationCare needsRespiratory Failure trialComfort medicationsDaily painNursesPediatric intensive care unit patientsParents' perspectivesSecondary analysisCritical careParents' perceptionsCaring for Actively Dying Children and Their Parents in the Pediatric ICU: A Mixed Methods Study (S523)
Broden E, Hinds P, Werner-Lin A, Curley M. Caring for Actively Dying Children and Their Parents in the Pediatric ICU: A Mixed Methods Study (S523). Journal Of Pain And Symptom Management 2022, 63: 917-918. DOI: 10.1016/j.jpainsymman.2022.02.146.Peer-Reviewed Original ResearchEnd-of-life careEnd-of-lifeCritical care requirementsCare requirementsIllness trajectoryChildren's painEnd-of-life care strategiesPediatric ICUPatient factorsComplex chronic illnessTelephone interview 7Withdrawal of life supportMixed methods studyContent analysis of qualitative interviewsAnalysis of qualitative interviewsDying childrenPICU cliniciansCare strategiesChronic illnessInterviewed 7Methods studySecondary analysisChild's comfortQualitative interviewsParents' perceptionsShifting and intersecting needs: Parents’ experiences during and following the withdrawal of life sustaining treatments in the paediatric intensive care unit
Broden E, Werner-Lin A, Curley M, Hinds P. Shifting and intersecting needs: Parents’ experiences during and following the withdrawal of life sustaining treatments in the paediatric intensive care unit. Intensive And Critical Care Nursing 2022, 70: 103216. PMID: 35219558, PMCID: PMC9128001, DOI: 10.1016/j.iccn.2022.103216.Peer-Reviewed Original ResearchConceptsPaediatric intensive care unitDying childrenCare needsChild's end-of-life careEnd-of-life careEnd-of-life needsIntensive care unit processesNursing care needsIntensive care unitWithdrawal of life-sustaining treatmentWithdrawal of life supportLong-term griefLife-sustaining treatmentCare unitNursing careNursing supportClinical careNursesParents' prioritiesParents' experiencesParents' perceptionsParental griefArray of emotionsParental adaptationLife support