2024
Who, What, Where, and How? The State of Family Science in Pediatric Palliative Care
Broden E, Boyden J, Keller S, James R, Mooney-Doyle K. Who, What, Where, and How? The State of Family Science in Pediatric Palliative Care. Journal Of Pain And Symptom Management 2024, 68: e254-e279. PMID: 38992396, DOI: 10.1016/j.jpainsymman.2024.06.022.Peer-Reviewed Original ResearchPediatric palliative carePediatric palliative care researchPalliative careProvision of PPCPalliative care researchPediatric illnessResponsive to family needsPerspectives of parents of childrenFamily-focused interventionsParents of childrenNature of evidenceReviewers assessed eligibilityHealth equityCare researchFamily healthScoping reviewClinical provisionFamily needsFamily impactSerious illnessFamily experiencesStudy participantsFamily voiceStructural barriersFamily processesThe Alluring, Enduring, and Troubling Concept of a “Good Death” in Pediatric Palliative Care
Broden E, McCarthy S, Snaman J. The Alluring, Enduring, and Troubling Concept of a “Good Death” in Pediatric Palliative Care. Journal Of Pain And Symptom Management 2024, 67: e665. DOI: 10.1016/j.jpainsymman.2024.02.119.Peer-Reviewed Original ResearchEnd-of-life experiencesGood deathChild deathsImprove end-of-life careImprove end-of-life experiencesIntensive interventionEnd-of-life careClinical carePediatric palliative careMedical care settingsEnd-of-lifeCare partnersPalliative careDying childrenMoral distressSymptom managementCare settingsCompassionate communicationMitigate distressAuthorship teamPredominant narrativesEarly bereavementCareResearch lensesSurviving familyTop Ten Tips Palliative Care Clinicians Should Know About Attending to the Existential Experience
Tarbi E, Moore C, Wallace C, Beaussant Y, Broden E, Chammas D, Galchutt P, Gilchrist D, Hayden A, Morgan B, Rosenberg L, Sager Z, Solomon S, Rosa W, Chochinov H. Top Ten Tips Palliative Care Clinicians Should Know About Attending to the Existential Experience. Journal Of Palliative Medicine 2024, 27: 1379-1389. PMID: 38546453, DOI: 10.1089/jpm.2024.0070.Peer-Reviewed Original ResearchPalliative careImplement evidence-based interventionsCulture of health carePalliative care cliniciansEvidence-based interventionsCare partnersExistential careCare cliniciansHealth careSystemic barriersExistential needsCareExistential experienceIll-preparedExistential dimensionLived experienceIndividual factorsCliniciansInterventionIllnessPatientsNeedsPersonsSkillsBarriers
2023
The 2023-2026 Hospice and Palliative Nurses Association Research Agenda
Coats H, Doyon K, Isaacson M, Tay D, Rosa W, Mayahara M, Kates J, Frechman E, Wright P, Boyden J, Broden E, Hinds P, James R, Keller S, Thrane S, Mooney-Doyle K, Sullivan S, Xu J, Tanner J, Natal M. The 2023-2026 Hospice and Palliative Nurses Association Research Agenda. Journal Of Hospice And Palliative Nursing 2023, 25: 55-74. PMID: 36843048, DOI: 10.1097/njh.0000000000000935.Peer-Reviewed Original ResearchConceptsDelivery of hospicePalliative Nurses AssociationQuality improvement initiativesEvidence-based practiceNurses AssociationPalliative careEquitable deliveryImprovement initiativesExpert careHospiceCareResearch agendaNursesOrganizational fundingHPNAIllnessAssociationPalliationPracticeStakeholdersFocusAgendaFundingQualityResearch
2021
“I Had a Lot More Planned”: The Existential Dimensions of Prognosis Communication with Adults with Advanced Cancer
Tarbi E, Gramling R, Bradway C, Broden E, Meghani S. “I Had a Lot More Planned”: The Existential Dimensions of Prognosis Communication with Adults with Advanced Cancer. Journal Of Palliative Medicine 2021, 24: 1443-1454. PMID: 33534644, PMCID: PMC8568783, DOI: 10.1089/jpm.2020.0696.Peer-Reviewed Original ResearchConceptsPalliative care conversationsPrognosis communicationCare conversationsExistential dimensionPalliative care communicationPalliative care cliniciansAdvanced cancerEffective palliative careExplanatory sequential mixed methods designSequential mixed methods designMixed methods designExistential distressPalliative careCare communicationExistential communicationCare cliniciansPrognostic understandingIllness experienceAudio-recordedParent studyMethods designStudy sampleResearch initiativesAdultsCare