2024
The Alluring, Enduring, and Troubling Concept of a “Good Death” in Pediatric Palliative Care
Broden E, McCarthy S, Snaman J. The Alluring, Enduring, and Troubling Concept of a “Good Death” in Pediatric Palliative Care. Journal Of Pain And Symptom Management 2024, 67: e665. DOI: 10.1016/j.jpainsymman.2024.02.119.Peer-Reviewed Original ResearchEnd-of-life experiencesGood deathChild deathsImprove end-of-life careImprove end-of-life experiencesIntensive interventionEnd-of-life careClinical carePediatric palliative careMedical care settingsEnd-of-lifeCare partnersPalliative careDying childrenMoral distressSymptom managementCare settingsCompassionate communicationMitigate distressAuthorship teamPredominant narrativesEarly bereavementCareResearch lensesSurviving family
2022
Shifting and Intersecting Needs: Parents’ Experiences During and Following Withdrawal of Life Sustaining Treatments (GP772)
Broden E, Werner-Lin A, Curley M, Hinds P. Shifting and Intersecting Needs: Parents’ Experiences During and Following Withdrawal of Life Sustaining Treatments (GP772). Journal Of Pain And Symptom Management 2022, 63: 1152. DOI: 10.1016/j.jpainsymman.2022.04.163.Peer-Reviewed Original ResearchEnd-of-life careEnd-of-lifePediatric intensive care unitImprove end-of-life careEnd-of-life care needsBereaved parentsContent analysis of semistructured interviewsEnd-of-life circumstancesParental griefIntensive care unit processesAnalysis of semistructured interviewsWithdrawal of life-sustaining treatmentWithdrawal of life supportComplex chronic conditionsLife-sustaining treatmentPotential quality improvementDying childrenCare needsClinician supportChronic conditionsClinical careIntersectional needsParents' experiencesParents' prioritiesLong-term bereavement