2023
The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life
Broden E, Mazzola E, DeCourcey D, Blume E, Wolfe J, Snaman J. The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life. Journal Of Pediatric Nursing 2023, 72: e166-e173. PMID: 37355461, DOI: 10.1016/j.pedn.2023.06.024.Peer-Reviewed Original ResearchConceptsComplex chronic conditionsChild sufferingParents' perceptionsPalliative care involvementCare-related factorsEnd of lifeEffective support interventionsMultivariate logistic regression modelHeart diseasePerception of sufferingLogistic regression modelsEOL careCare involvementSupport interventionsSurvey of parentsIllness experienceDying processChronic conditionsBereavement experiencesFamily supportAdvanced heart diseaseIdentified factorsEOLMultivariate modelRegression modelsFactors Associated with Parents’ Perceptions of Their Child's End-of-Life Suffering (Sci229)
Broden E, Decourcey D, Blume E, Wolfe J, Snaman J. Factors Associated with Parents’ Perceptions of Their Child's End-of-Life Suffering (Sci229). Journal Of Pain And Symptom Management 2023, 65: e655-e656. DOI: 10.1016/j.jpainsymman.2023.02.279.Peer-Reviewed Original ResearchEnd of lifeLocation of deathEnd of life circumstancesBereaved parentsChild sufferingEnd-of-life sufferingCare-related factorsFactors associated with parental perceptionsAssociated with parental perceptionsSample of bereaved parentsPerception of sufferingDying childrenIllness experienceAssociated with diagnosisEffective interventionsModifiable targetsParents' perceptionsParent surveyFisher's exact testCompare parentPrimary outcomeChild characteristicsMultivariate modelCardiac diseaseDiagnostic groups
2021
“I Had a Lot More Planned”: The Existential Dimensions of Prognosis Communication with Adults with Advanced Cancer
Tarbi E, Gramling R, Bradway C, Broden E, Meghani S. “I Had a Lot More Planned”: The Existential Dimensions of Prognosis Communication with Adults with Advanced Cancer. Journal Of Palliative Medicine 2021, 24: 1443-1454. PMID: 33534644, PMCID: PMC8568783, DOI: 10.1089/jpm.2020.0696.Peer-Reviewed Original ResearchConceptsPalliative care conversationsPrognosis communicationCare conversationsExistential dimensionPalliative care communicationPalliative care cliniciansAdvanced cancerEffective palliative careExplanatory sequential mixed methods designSequential mixed methods designMixed methods designExistential distressPalliative careCare communicationExistential communicationCare cliniciansPrognostic understandingIllness experienceAudio-recordedParent studyMethods designStudy sampleResearch initiativesAdultsCare