2024
Who, What, Where, and How? The State of Family Science in Pediatric Palliative Care
Broden E, Boyden J, Keller S, James R, Mooney-Doyle K. Who, What, Where, and How? The State of Family Science in Pediatric Palliative Care. Journal Of Pain And Symptom Management 2024, 68: e254-e279. PMID: 38992396, DOI: 10.1016/j.jpainsymman.2024.06.022.Peer-Reviewed Original ResearchPediatric palliative carePediatric palliative care researchPalliative careProvision of PPCPalliative care researchPediatric illnessResponsive to family needsPerspectives of parents of childrenFamily-focused interventionsParents of childrenNature of evidenceReviewers assessed eligibilityHealth equityCare researchFamily healthScoping reviewClinical provisionFamily needsFamily impactSerious illnessFamily experiencesStudy participantsFamily voiceStructural barriersFamily processes
2023
Dying and Death in a Pediatric Cardiac ICU: Mixed Methods Evaluation of Multidisciplinary Staff Responses
Broden E, Bailey V, Beke D, Snaman J, Moynihan K. Dying and Death in a Pediatric Cardiac ICU: Mixed Methods Evaluation of Multidisciplinary Staff Responses. Pediatric Critical Care Medicine 2023, 25: e91-e102. PMID: 37678228, DOI: 10.1097/pcc.0000000000003357.Peer-Reviewed Original ResearchConceptsEnd-of-lifeFree-text responsesPediatric cardiac ICUFamily experiencesStaff responsesPediatric end-of-lifeImproving EOL careFree-text survey responsesMixed methods evaluationCross-sectional surveyEnd-of-life characteristicsCardiac ICUEOL careNurses' responsesAllied healthStaff surveyStaff experienceMedication intensityMultidisciplinary staffYears of experienceImprove familyMultidisciplinary teamScore quartilesEducational initiativesStaff