Challenges to Family Management for Caregivers of Adolescent and Young Adult Survivors of Childhood Brain Tumors
SanGiacomo N, Toth J, Hobbie W, Broden E, Hoeve E, Knafl K, Barakat L, Ogle S, Deatrick J. Challenges to Family Management for Caregivers of Adolescent and Young Adult Survivors of Childhood Brain Tumors. Journal Of Pediatric Hematology/Oncology Nursing 2019, 36: 402-412. PMID: 31046569, PMCID: PMC6791045, DOI: 10.1177/1043454219844229.Peer-Reviewed Original ResearchConceptsSurvivors of childhood brain tumorsFamily Management Style FrameworkChildhood brain tumorsLate effectsYoung adult survivors of childhood brain tumorsDirected content analysisCaregivers of adolescentsTreatment late effectsFamily managementYoung adult survivorsWell-beingSurvivors' well-beingAdult survivors of childhood brain tumorsSurvivor independenceAYA survivorsSibling well-beingChronic conditionsSemistructured interviewsCaregiversAnticipatory guidanceClinical expertiseMaternal caregivingAYAFamily activitiesFunctional restrictions