2024
Family characteristics and childcare patterns associated with early social functioning in cancer‐bereaved parents
Snaman J, Chen L, Mazzola E, Helton G, Feifer D, Broden E, McCarthy S, Rosenberg A, Baker J, Wolfe J. Family characteristics and childcare patterns associated with early social functioning in cancer‐bereaved parents. Cancer 2024, 130: 2822-2833. PMID: 38620040, DOI: 10.1002/cncr.35325.Peer-Reviewed Original ResearchEnd-of-lifeHousehold material hardshipMaterial hardshipSocial functioningChild's end-of-lifeChild deathsEnd-of-life circumstancesImproved bereavement outcomesCancer-bereaved parentsEarly social functionParental social functioningMultivariate logistic regression modelParents of childrenLogistic regression modelsSupport interventionsPsychosocial distressBereavement outcomesChildcare patternsBereaved parentsBereavement experiencesSurvey completionIncreased oddsFamily characteristicsMultivariate modelHardship
2023
Risk Factors for Decisional Regret among Parents Early in Bereavement (Sci251)
Feifer D, Broden E, Xiong N, Mazzola E, Baker J, Wolfe J, Snaman J. Risk Factors for Decisional Regret among Parents Early in Bereavement (Sci251). Journal Of Pain And Symptom Management 2023, 65: e667-e668. DOI: 10.1016/j.jpainsymman.2023.02.301.Peer-Reviewed Original ResearchEnd-of-lifeEnd-of-life symptomsDecisional regretParental decisional regretEnd-of-life circumstancesCross-sectional survey of parentsFisher's exact testLocation of deathCross-sectional surveyRisk factorsMultinomial logistic regression modelParents of childrenChild sufferingHigh riskPerception of sufferingLogistic regression modelsMultinomial logistic regressionCaregiving roleExact testRelated risk factorsSurvey of parentsPrimary caregiversBereaved parentsRelative riskParents' perceptions
2022
Shifting and Intersecting Needs: Parents’ Experiences During and Following Withdrawal of Life Sustaining Treatments (GP772)
Broden E, Werner-Lin A, Curley M, Hinds P. Shifting and Intersecting Needs: Parents’ Experiences During and Following Withdrawal of Life Sustaining Treatments (GP772). Journal Of Pain And Symptom Management 2022, 63: 1152. DOI: 10.1016/j.jpainsymman.2022.04.163.Peer-Reviewed Original ResearchEnd-of-life careEnd-of-lifePediatric intensive care unitImprove end-of-life careEnd-of-life care needsBereaved parentsContent analysis of semistructured interviewsEnd-of-life circumstancesParental griefIntensive care unit processesAnalysis of semistructured interviewsWithdrawal of life-sustaining treatmentWithdrawal of life supportComplex chronic conditionsLife-sustaining treatmentPotential quality improvementDying childrenCare needsClinician supportChronic conditionsClinical careIntersectional needsParents' experiencesParents' prioritiesLong-term bereavement