2024
Partnering With Parents to Dismantle “Good-Death” Narratives
Broden E, McCarthy S, Snaman J. Partnering With Parents to Dismantle “Good-Death” Narratives. JAMA Pediatrics 2024, 178: 431-432. PMID: 38466276, DOI: 10.1001/jamapediatrics.2024.0103.Peer-Reviewed Original ResearchThe Alluring, Enduring, and Troubling Concept of a “Good Death” in Pediatric Palliative Care
Broden E, McCarthy S, Snaman J. The Alluring, Enduring, and Troubling Concept of a “Good Death” in Pediatric Palliative Care. Journal Of Pain And Symptom Management 2024, 67: e665. DOI: 10.1016/j.jpainsymman.2024.02.119.Peer-Reviewed Original ResearchEnd-of-life experiencesGood deathChild deathsImprove end-of-life careImprove end-of-life experiencesIntensive interventionEnd-of-life careClinical carePediatric palliative careMedical care settingsEnd-of-lifeCare partnersPalliative careDying childrenMoral distressSymptom managementCare settingsCompassionate communicationMitigate distressAuthorship teamPredominant narrativesEarly bereavementCareResearch lensesSurviving family
2022
“I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either”
Broden E, Hinds P, Werner-Lin A, Curley M. “I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either”. Journal Of Hospice And Palliative Nursing 2022, 24: 271-280. PMID: 35666188, PMCID: PMC9437116, DOI: 10.1097/njh.0000000000000884.Peer-Reviewed Original ResearchConceptsChild's end-of-life careEnd-of-life careComplex chronic illnessIntensive care cliniciansChild sufferingParents' memoriesNursing careDying childrenIllness trajectoryCare cliniciansCritical care requirementsChildren's painChronic illnessInterviewed 7Care requirementsBereaved parentsPatient's painChild's comfortParental distressQualitative interviewsMethods designParental bereavementParents' descriptionsParents' abilityCareShifting and Intersecting Needs: Parents’ Experiences During and Following Withdrawal of Life Sustaining Treatments (GP772)
Broden E, Werner-Lin A, Curley M, Hinds P. Shifting and Intersecting Needs: Parents’ Experiences During and Following Withdrawal of Life Sustaining Treatments (GP772). Journal Of Pain And Symptom Management 2022, 63: 1152. DOI: 10.1016/j.jpainsymman.2022.04.163.Peer-Reviewed Original ResearchEnd-of-life careEnd-of-lifePediatric intensive care unitImprove end-of-life careEnd-of-life care needsBereaved parentsContent analysis of semistructured interviewsEnd-of-life circumstancesParental griefIntensive care unit processesAnalysis of semistructured interviewsWithdrawal of life-sustaining treatmentWithdrawal of life supportComplex chronic conditionsLife-sustaining treatmentPotential quality improvementDying childrenCare needsClinician supportChronic conditionsClinical careIntersectional needsParents' experiencesParents' prioritiesLong-term bereavementCaring for Actively Dying Children and Their Parents in the Pediatric ICU: A Mixed Methods Study (S523)
Broden E, Hinds P, Werner-Lin A, Curley M. Caring for Actively Dying Children and Their Parents in the Pediatric ICU: A Mixed Methods Study (S523). Journal Of Pain And Symptom Management 2022, 63: 917-918. DOI: 10.1016/j.jpainsymman.2022.02.146.Peer-Reviewed Original ResearchEnd-of-life careEnd-of-lifeCritical care requirementsCare requirementsIllness trajectoryChildren's painEnd-of-life care strategiesPediatric ICUPatient factorsComplex chronic illnessTelephone interview 7Withdrawal of life supportMixed methods studyContent analysis of qualitative interviewsAnalysis of qualitative interviewsDying childrenPICU cliniciansCare strategiesChronic illnessInterviewed 7Methods studySecondary analysisChild's comfortQualitative interviewsParents' perceptionsShifting and intersecting needs: Parents’ experiences during and following the withdrawal of life sustaining treatments in the paediatric intensive care unit
Broden E, Werner-Lin A, Curley M, Hinds P. Shifting and intersecting needs: Parents’ experiences during and following the withdrawal of life sustaining treatments in the paediatric intensive care unit. Intensive And Critical Care Nursing 2022, 70: 103216. PMID: 35219558, PMCID: PMC9128001, DOI: 10.1016/j.iccn.2022.103216.Peer-Reviewed Original ResearchConceptsPaediatric intensive care unitDying childrenCare needsChild's end-of-life careEnd-of-life careEnd-of-life needsIntensive care unit processesNursing care needsIntensive care unitWithdrawal of life-sustaining treatmentWithdrawal of life supportLong-term griefLife-sustaining treatmentCare unitNursing careNursing supportClinical careNursesParents' prioritiesParents' experiencesParents' perceptionsParental griefArray of emotionsParental adaptationLife support
2020
Defining a "Good Death" in the Pediatric Intensive Care Unit.
Broden E, Deatrick J, Ulrich C, Curley M. Defining a "Good Death" in the Pediatric Intensive Care Unit. American Journal Of Critical Care 2020, 29: 111-121. PMID: 32114610, PMCID: PMC11288184, DOI: 10.4037/ajcc2020466.Peer-Reviewed Original ResearchConceptsEnd-of-lifeDying childrenPediatric intensive care unitIntensive care unitEnd-of-life careParents' perspectivesCare unitBedside nursing careEnd-of-life eventsConcept analysisStudy of ParentsCase of carePerspective of parentsNursing carePediatric nursesInpatient settingChild deathsDeceased childrenPromote parentEmpirical study of parentsParents' viewsCareEmpirical referentsSocietal attitudesDatabase search