2024
The Alluring, Enduring, and Troubling Concept of a “Good Death” in Pediatric Palliative Care
Broden E, McCarthy S, Snaman J. The Alluring, Enduring, and Troubling Concept of a “Good Death” in Pediatric Palliative Care. Journal Of Pain And Symptom Management 2024, 67: e665. DOI: 10.1016/j.jpainsymman.2024.02.119.Peer-Reviewed Original ResearchEnd-of-life experiencesGood deathChild deathsImprove end-of-life careImprove end-of-life experiencesIntensive interventionEnd-of-life careClinical carePediatric palliative careMedical care settingsEnd-of-lifeCare partnersPalliative careDying childrenMoral distressSymptom managementCare settingsCompassionate communicationMitigate distressAuthorship teamPredominant narrativesEarly bereavementCareResearch lensesSurviving familyPreparing for the Unimaginable: How Pediatric ICU Nurses Prepare Families for the Dying Process
Broden E, Eche-Ugwu I, DeCourcey D, Snaman J. Preparing for the Unimaginable: How Pediatric ICU Nurses Prepare Families for the Dying Process. Journal Of Pain And Symptom Management 2024, 67: e662-e663. DOI: 10.1016/j.jpainsymman.2024.02.116.Peer-Reviewed Original ResearchEnd-of-lifeEnd-of-life symptomsPICU nursesDying processPediatric intensive care unitRisk of adverse outcomesNurse-initiatedChild deathsNurse-led interventionPediatric ICU nursesTeam collaborationAnalyzing focus groupsQualitative descriptive studyICU nursesNursing perspectiveDying childrenDecisional regretNursesBereaved parentsThematic analysisDescriptive studyFocus groupsParents' perspectivesGrief outcomesPreparatory actionsFamily characteristics and childcare patterns associated with early social functioning in cancer‐bereaved parents
Snaman J, Chen L, Mazzola E, Helton G, Feifer D, Broden E, McCarthy S, Rosenberg A, Baker J, Wolfe J. Family characteristics and childcare patterns associated with early social functioning in cancer‐bereaved parents. Cancer 2024, 130: 2822-2833. PMID: 38620040, DOI: 10.1002/cncr.35325.Peer-Reviewed Original ResearchEnd-of-lifeHousehold material hardshipMaterial hardshipSocial functioningChild's end-of-lifeChild deathsEnd-of-life circumstancesImproved bereavement outcomesCancer-bereaved parentsEarly social functionParental social functioningMultivariate logistic regression modelParents of childrenLogistic regression modelsSupport interventionsPsychosocial distressBereavement outcomesChildcare patternsBereaved parentsBereavement experiencesSurvey completionIncreased oddsFamily characteristicsMultivariate modelHardshipSupported Privacy: An Essential Principle for End-of-Life Care for Children and Families in the PICU
Butler A, Pasek T, Clark T, Broden E. Supported Privacy: An Essential Principle for End-of-Life Care for Children and Families in the PICU. Pediatric Critical Care Medicine 2024, 25: e258-e262. PMID: 38695704, DOI: 10.1097/pcc.0000000000003440.Peer-Reviewed Original ResearchConceptsEnd-of-lifeEnd-of-life care practicesDelivery of high-quality careEnd-of-life experiencesHigh-quality careProvision of privacyPICU staffCare practicesPICU teamChild deathsFamily feelingsMedicine perspectivePractical needsPICUCareStaffNeedsChildrenFamilyEmotional responsesParadoxical needPediatricCliniciansTeamDelivery
2023
Dying and Death in a Pediatric Cardiac ICU: Mixed Methods Evaluation of Multidisciplinary Staff Responses
Broden E, Bailey V, Beke D, Snaman J, Moynihan K. Dying and Death in a Pediatric Cardiac ICU: Mixed Methods Evaluation of Multidisciplinary Staff Responses. Pediatric Critical Care Medicine 2023, 25: e91-e102. PMID: 37678228, DOI: 10.1097/pcc.0000000000003357.Peer-Reviewed Original ResearchConceptsEnd-of-lifeFree-text responsesPediatric cardiac ICUFamily experiencesStaff responsesPediatric end-of-lifeImproving EOL careFree-text survey responsesMixed methods evaluationCross-sectional surveyEnd-of-life characteristicsCardiac ICUEOL careNurses' responsesAllied healthStaff surveyStaff experienceMedication intensityMultidisciplinary staffYears of experienceImprove familyMultidisciplinary teamScore quartilesEducational initiativesStaffRisk Factors for Decisional Regret among Parents Early in Bereavement (Sci251)
Feifer D, Broden E, Xiong N, Mazzola E, Baker J, Wolfe J, Snaman J. Risk Factors for Decisional Regret among Parents Early in Bereavement (Sci251). Journal Of Pain And Symptom Management 2023, 65: e667-e668. DOI: 10.1016/j.jpainsymman.2023.02.301.Peer-Reviewed Original ResearchEnd-of-lifeEnd-of-life symptomsDecisional regretParental decisional regretEnd-of-life circumstancesCross-sectional survey of parentsFisher's exact testLocation of deathCross-sectional surveyRisk factorsMultinomial logistic regression modelParents of childrenChild sufferingHigh riskPerception of sufferingLogistic regression modelsMultinomial logistic regressionCaregiving roleExact testRelated risk factorsSurvey of parentsPrimary caregiversBereaved parentsRelative riskParents' perceptions“It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents
Feifer D, Broden E, Baker J, Wolfe J, Snaman J. “It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents. Journal Of Pain And Symptom Management 2023, 65: e399-e407. PMID: 36641003, DOI: 10.1016/j.jpainsymman.2022.12.144.Peer-Reviewed Original ResearchConceptsDecisional regretBereaved parentsEnd-of-lifeFree-text responsesStudy of ParentsFree textParents of childrenEnd-of-life characteristicsDecision-making processCare teamChild deathsEarly bereavementBereavementChild's lifeParental riskSelf-blameParental responsibilityContent analysisIdentified factorsHeightened riskLongitudinal studyAnalyzed responsesChild sufferingFrequency of categoriesRecurrent categories
2022
Shifting and Intersecting Needs: Parents’ Experiences During and Following Withdrawal of Life Sustaining Treatments (GP772)
Broden E, Werner-Lin A, Curley M, Hinds P. Shifting and Intersecting Needs: Parents’ Experiences During and Following Withdrawal of Life Sustaining Treatments (GP772). Journal Of Pain And Symptom Management 2022, 63: 1152. DOI: 10.1016/j.jpainsymman.2022.04.163.Peer-Reviewed Original ResearchEnd-of-life careEnd-of-lifePediatric intensive care unitImprove end-of-life careEnd-of-life care needsBereaved parentsContent analysis of semistructured interviewsEnd-of-life circumstancesParental griefIntensive care unit processesAnalysis of semistructured interviewsWithdrawal of life-sustaining treatmentWithdrawal of life supportComplex chronic conditionsLife-sustaining treatmentPotential quality improvementDying childrenCare needsClinician supportChronic conditionsClinical careIntersectional needsParents' experiencesParents' prioritiesLong-term bereavementCaring for Actively Dying Children and Their Parents in the Pediatric ICU: A Mixed Methods Study (S523)
Broden E, Hinds P, Werner-Lin A, Curley M. Caring for Actively Dying Children and Their Parents in the Pediatric ICU: A Mixed Methods Study (S523). Journal Of Pain And Symptom Management 2022, 63: 917-918. DOI: 10.1016/j.jpainsymman.2022.02.146.Peer-Reviewed Original ResearchEnd-of-life careEnd-of-lifeCritical care requirementsCare requirementsIllness trajectoryChildren's painEnd-of-life care strategiesPediatric ICUPatient factorsComplex chronic illnessTelephone interview 7Withdrawal of life supportMixed methods studyContent analysis of qualitative interviewsAnalysis of qualitative interviewsDying childrenPICU cliniciansCare strategiesChronic illnessInterviewed 7Methods studySecondary analysisChild's comfortQualitative interviewsParents' perceptions
2020
Defining a "Good Death" in the Pediatric Intensive Care Unit.
Broden E, Deatrick J, Ulrich C, Curley M. Defining a "Good Death" in the Pediatric Intensive Care Unit. American Journal Of Critical Care 2020, 29: 111-121. PMID: 32114610, PMCID: PMC11288184, DOI: 10.4037/ajcc2020466.Peer-Reviewed Original ResearchConceptsEnd-of-lifeDying childrenPediatric intensive care unitIntensive care unitEnd-of-life careParents' perspectivesCare unitBedside nursing careEnd-of-life eventsConcept analysisStudy of ParentsCase of carePerspective of parentsNursing carePediatric nursesInpatient settingChild deathsDeceased childrenPromote parentEmpirical study of parentsParents' viewsCareEmpirical referentsSocietal attitudesDatabase search