2023
The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life
Broden E, Mazzola E, DeCourcey D, Blume E, Wolfe J, Snaman J. The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life. Journal Of Pediatric Nursing 2023, 72: e166-e173. PMID: 37355461, DOI: 10.1016/j.pedn.2023.06.024.Peer-Reviewed Original ResearchConceptsComplex chronic conditionsChild sufferingParents' perceptionsPalliative care involvementCare-related factorsEnd of lifeEffective support interventionsMultivariate logistic regression modelHeart diseasePerception of sufferingLogistic regression modelsEOL careCare involvementSupport interventionsSurvey of parentsIllness experienceDying processChronic conditionsBereavement experiencesFamily supportAdvanced heart diseaseIdentified factorsEOLMultivariate modelRegression models
2022
Shifting and Intersecting Needs: Parents’ Experiences During and Following Withdrawal of Life Sustaining Treatments (GP772)
Broden E, Werner-Lin A, Curley M, Hinds P. Shifting and Intersecting Needs: Parents’ Experiences During and Following Withdrawal of Life Sustaining Treatments (GP772). Journal Of Pain And Symptom Management 2022, 63: 1152. DOI: 10.1016/j.jpainsymman.2022.04.163.Peer-Reviewed Original ResearchEnd-of-life careEnd-of-lifePediatric intensive care unitImprove end-of-life careEnd-of-life care needsBereaved parentsContent analysis of semistructured interviewsEnd-of-life circumstancesParental griefIntensive care unit processesAnalysis of semistructured interviewsWithdrawal of life-sustaining treatmentWithdrawal of life supportComplex chronic conditionsLife-sustaining treatmentPotential quality improvementDying childrenCare needsClinician supportChronic conditionsClinical careIntersectional needsParents' experiencesParents' prioritiesLong-term bereavement
2019
Challenges to Family Management for Caregivers of Adolescent and Young Adult Survivors of Childhood Brain Tumors
SanGiacomo N, Toth J, Hobbie W, Broden E, Hoeve E, Knafl K, Barakat L, Ogle S, Deatrick J. Challenges to Family Management for Caregivers of Adolescent and Young Adult Survivors of Childhood Brain Tumors. Journal Of Pediatric Hematology/Oncology Nursing 2019, 36: 402-412. PMID: 31046569, PMCID: PMC6791045, DOI: 10.1177/1043454219844229.Peer-Reviewed Original ResearchConceptsSurvivors of childhood brain tumorsFamily Management Style FrameworkChildhood brain tumorsLate effectsYoung adult survivors of childhood brain tumorsDirected content analysisCaregivers of adolescentsTreatment late effectsFamily managementYoung adult survivorsWell-beingSurvivors' well-beingAdult survivors of childhood brain tumorsSurvivor independenceAYA survivorsSibling well-beingChronic conditionsSemistructured interviewsCaregiversAnticipatory guidanceClinical expertiseMaternal caregivingAYAFamily activitiesFunctional restrictions