2024
“At Least I Can Push this Morphine”: PICU Nurses’ Approaches to Suffering Among Dying Children
Broden E, Eche-Ugwu I, DeCourcey D, Wolfe J, Hinds P, Snaman J. “At Least I Can Push this Morphine”: PICU Nurses’ Approaches to Suffering Among Dying Children. Journal Of Pain And Symptom Management 2024, 68: 132-141.e2. PMID: 38679304, DOI: 10.1016/j.jpainsymman.2024.04.018.Peer-Reviewed Original ResearchConceptsPICU nursesPediatric intensive care unitFocus groupsInterpretive descriptive qualitative studyVirtual focus groupsParents of childrenChild sufferingNursing approachPICU experienceNursing careDying childrenPsychosocial trainingPsychosocial responsesGeographically diverse sampleCare systemNursesThematic analysisOptimal careQualitative studyCare casesGrieving experiencePhysical sufferingTeam relationshipsIntensive care unitCare
2023
The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life
Broden E, Mazzola E, DeCourcey D, Blume E, Wolfe J, Snaman J. The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life. Journal Of Pediatric Nursing 2023, 72: e166-e173. PMID: 37355461, DOI: 10.1016/j.pedn.2023.06.024.Peer-Reviewed Original ResearchConceptsComplex chronic conditionsChild sufferingParents' perceptionsPalliative care involvementCare-related factorsEnd of lifeEffective support interventionsMultivariate logistic regression modelHeart diseasePerception of sufferingLogistic regression modelsEOL careCare involvementSupport interventionsSurvey of parentsIllness experienceDying processChronic conditionsBereavement experiencesFamily supportAdvanced heart diseaseIdentified factorsEOLMultivariate modelRegression modelsRisk Factors for Decisional Regret among Parents Early in Bereavement (Sci251)
Feifer D, Broden E, Xiong N, Mazzola E, Baker J, Wolfe J, Snaman J. Risk Factors for Decisional Regret among Parents Early in Bereavement (Sci251). Journal Of Pain And Symptom Management 2023, 65: e667-e668. DOI: 10.1016/j.jpainsymman.2023.02.301.Peer-Reviewed Original ResearchEnd-of-lifeEnd-of-life symptomsDecisional regretParental decisional regretEnd-of-life circumstancesCross-sectional survey of parentsFisher's exact testLocation of deathCross-sectional surveyRisk factorsMultinomial logistic regression modelParents of childrenChild sufferingHigh riskPerception of sufferingLogistic regression modelsMultinomial logistic regressionCaregiving roleExact testRelated risk factorsSurvey of parentsPrimary caregiversBereaved parentsRelative riskParents' perceptionsFactors Associated with Parents’ Perceptions of Their Child's End-of-Life Suffering (Sci229)
Broden E, Decourcey D, Blume E, Wolfe J, Snaman J. Factors Associated with Parents’ Perceptions of Their Child's End-of-Life Suffering (Sci229). Journal Of Pain And Symptom Management 2023, 65: e655-e656. DOI: 10.1016/j.jpainsymman.2023.02.279.Peer-Reviewed Original ResearchEnd of lifeLocation of deathEnd of life circumstancesBereaved parentsChild sufferingEnd-of-life sufferingCare-related factorsFactors associated with parental perceptionsAssociated with parental perceptionsSample of bereaved parentsPerception of sufferingDying childrenIllness experienceAssociated with diagnosisEffective interventionsModifiable targetsParents' perceptionsParent surveyFisher's exact testCompare parentPrimary outcomeChild characteristicsMultivariate modelCardiac diseaseDiagnostic groups“It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents
Feifer D, Broden E, Baker J, Wolfe J, Snaman J. “It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents. Journal Of Pain And Symptom Management 2023, 65: e399-e407. PMID: 36641003, DOI: 10.1016/j.jpainsymman.2022.12.144.Peer-Reviewed Original ResearchConceptsDecisional regretBereaved parentsEnd-of-lifeFree-text responsesStudy of ParentsFree textParents of childrenEnd-of-life characteristicsDecision-making processCare teamChild deathsEarly bereavementBereavementChild's lifeParental riskSelf-blameParental responsibilityContent analysisIdentified factorsHeightened riskLongitudinal studyAnalyzed responsesChild sufferingFrequency of categoriesRecurrent categories
2022
“I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either”
Broden E, Hinds P, Werner-Lin A, Curley M. “I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either”. Journal Of Hospice And Palliative Nursing 2022, 24: 271-280. PMID: 35666188, PMCID: PMC9437116, DOI: 10.1097/njh.0000000000000884.Peer-Reviewed Original ResearchConceptsChild's end-of-life careEnd-of-life careComplex chronic illnessIntensive care cliniciansChild sufferingParents' memoriesNursing careDying childrenIllness trajectoryCare cliniciansCritical care requirementsChildren's painChronic illnessInterviewed 7Care requirementsBereaved parentsPatient's painChild's comfortParental distressQualitative interviewsMethods designParental bereavementParents' descriptionsParents' abilityCare