2024
Partnering With Parents to Dismantle “Good-Death” Narratives
Broden E, McCarthy S, Snaman J. Partnering With Parents to Dismantle “Good-Death” Narratives. JAMA Pediatrics 2024, 178: 431-432. PMID: 38466276, DOI: 10.1001/jamapediatrics.2024.0103.Peer-Reviewed Original ResearchThe Alluring, Enduring, and Troubling Concept of a “Good Death” in Pediatric Palliative Care
Broden E, McCarthy S, Snaman J. The Alluring, Enduring, and Troubling Concept of a “Good Death” in Pediatric Palliative Care. Journal Of Pain And Symptom Management 2024, 67: e665. DOI: 10.1016/j.jpainsymman.2024.02.119.Peer-Reviewed Original ResearchEnd-of-life experiencesGood deathChild deathsImprove end-of-life careImprove end-of-life experiencesIntensive interventionEnd-of-life careClinical carePediatric palliative careMedical care settingsEnd-of-lifeCare partnersPalliative careDying childrenMoral distressSymptom managementCare settingsCompassionate communicationMitigate distressAuthorship teamPredominant narrativesEarly bereavementCareResearch lensesSurviving family“At Least I Can Push this Morphine”: PICU Nurses’ Approaches to Suffering Among Dying Children
Broden E, Eche-Ugwu I, DeCourcey D, Wolfe J, Hinds P, Snaman J. “At Least I Can Push this Morphine”: PICU Nurses’ Approaches to Suffering Among Dying Children. Journal Of Pain And Symptom Management 2024, 68: 132-141.e2. PMID: 38679304, DOI: 10.1016/j.jpainsymman.2024.04.018.Peer-Reviewed Original ResearchConceptsPICU nursesPediatric intensive care unitFocus groupsInterpretive descriptive qualitative studyVirtual focus groupsParents of childrenChild sufferingNursing approachPICU experienceNursing careDying childrenPsychosocial trainingPsychosocial responsesGeographically diverse sampleCare systemNursesThematic analysisOptimal careQualitative studyCare casesGrieving experiencePhysical sufferingTeam relationshipsIntensive care unitCareTop Ten Tips Palliative Care Clinicians Should Know About Attending to the Existential Experience
Tarbi E, Moore C, Wallace C, Beaussant Y, Broden E, Chammas D, Galchutt P, Gilchrist D, Hayden A, Morgan B, Rosenberg L, Sager Z, Solomon S, Rosa W, Chochinov H. Top Ten Tips Palliative Care Clinicians Should Know About Attending to the Existential Experience. Journal Of Palliative Medicine 2024, 27: 1379-1389. PMID: 38546453, DOI: 10.1089/jpm.2024.0070.Peer-Reviewed Original ResearchPalliative careImplement evidence-based interventionsCulture of health carePalliative care cliniciansEvidence-based interventionsCare partnersExistential careCare cliniciansHealth careSystemic barriersExistential needsCareExistential experienceIll-preparedExistential dimensionLived experienceIndividual factorsCliniciansInterventionIllnessPatientsNeedsPersonsSkillsBarriersSupported Privacy: An Essential Principle for End-of-Life Care for Children and Families in the PICU
Butler A, Pasek T, Clark T, Broden E. Supported Privacy: An Essential Principle for End-of-Life Care for Children and Families in the PICU. Pediatric Critical Care Medicine 2024, 25: e258-e262. PMID: 38695704, DOI: 10.1097/pcc.0000000000003440.Peer-Reviewed Original ResearchConceptsEnd-of-lifeEnd-of-life care practicesDelivery of high-quality careEnd-of-life experiencesHigh-quality careProvision of privacyPICU staffCare practicesPICU teamChild deathsFamily feelingsMedicine perspectivePractical needsPICUCareStaffNeedsChildrenFamilyEmotional responsesParadoxical needPediatricCliniciansTeamDelivery
2023
Existential Care in Daily Nursing Practice
Tarbi E, Broden E, Rosa W, Hayden A, Morgan B. Existential Care in Daily Nursing Practice. American Journal Of Nursing 2023, 123: 42-48. PMID: 37732668, PMCID: PMC10805359, DOI: 10.1097/01.naj.0000979092.39243.d4.Peer-Reviewed Original ResearchSuffering in Acute and Critical Care
Broden E, Foxwell A. Suffering in Acute and Critical Care. 2023, 107-119. DOI: 10.1093/oso/9780197667934.003.0009.Peer-Reviewed Original ResearchCritical care settingNursing perspectiveBedside nursesInpatient contextCare settingsCritical careNursesHospital admissionIntensive care unitCare unitPatient populationFamilies of choicePotential barriersMultiple domainsSufferingEveryday routinesCareFamilyPatientsHospitalAdmissionBedsideAcutePeopleBarriersThe 2023-2026 Hospice and Palliative Nurses Association Research Agenda
Coats H, Doyon K, Isaacson M, Tay D, Rosa W, Mayahara M, Kates J, Frechman E, Wright P, Boyden J, Broden E, Hinds P, James R, Keller S, Thrane S, Mooney-Doyle K, Sullivan S, Xu J, Tanner J, Natal M. The 2023-2026 Hospice and Palliative Nurses Association Research Agenda. Journal Of Hospice And Palliative Nursing 2023, 25: 55-74. PMID: 36843048, DOI: 10.1097/njh.0000000000000935.Peer-Reviewed Original ResearchConceptsDelivery of hospicePalliative Nurses AssociationQuality improvement initiativesEvidence-based practiceNurses AssociationPalliative careEquitable deliveryImprovement initiativesExpert careHospiceCareResearch agendaNursesOrganizational fundingHPNAIllnessAssociationPalliationPracticeStakeholdersFocusAgendaFundingQualityResearch
2022
“I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either”
Broden E, Hinds P, Werner-Lin A, Curley M. “I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either”. Journal Of Hospice And Palliative Nursing 2022, 24: 271-280. PMID: 35666188, PMCID: PMC9437116, DOI: 10.1097/njh.0000000000000884.Peer-Reviewed Original ResearchConceptsChild's end-of-life careEnd-of-life careComplex chronic illnessIntensive care cliniciansChild sufferingParents' memoriesNursing careDying childrenIllness trajectoryCare cliniciansCritical care requirementsChildren's painChronic illnessInterviewed 7Care requirementsBereaved parentsPatient's painChild's comfortParental distressQualitative interviewsMethods designParental bereavementParents' descriptionsParents' abilityCare
2021
“I Had a Lot More Planned”: The Existential Dimensions of Prognosis Communication with Adults with Advanced Cancer
Tarbi E, Gramling R, Bradway C, Broden E, Meghani S. “I Had a Lot More Planned”: The Existential Dimensions of Prognosis Communication with Adults with Advanced Cancer. Journal Of Palliative Medicine 2021, 24: 1443-1454. PMID: 33534644, PMCID: PMC8568783, DOI: 10.1089/jpm.2020.0696.Peer-Reviewed Original ResearchConceptsPalliative care conversationsPrognosis communicationCare conversationsExistential dimensionPalliative care communicationPalliative care cliniciansAdvanced cancerEffective palliative careExplanatory sequential mixed methods designSequential mixed methods designMixed methods designExistential distressPalliative careCare communicationExistential communicationCare cliniciansPrognostic understandingIllness experienceAudio-recordedParent studyMethods designStudy sampleResearch initiativesAdultsCare
2020
Defining a "Good Death" in the Pediatric Intensive Care Unit.
Broden E, Deatrick J, Ulrich C, Curley M. Defining a "Good Death" in the Pediatric Intensive Care Unit. American Journal Of Critical Care 2020, 29: 111-121. PMID: 32114610, PMCID: PMC11288184, DOI: 10.4037/ajcc2020466.Peer-Reviewed Original ResearchConceptsEnd-of-lifeDying childrenPediatric intensive care unitIntensive care unitEnd-of-life careParents' perspectivesCare unitBedside nursing careEnd-of-life eventsConcept analysisStudy of ParentsCase of carePerspective of parentsNursing carePediatric nursesInpatient settingChild deathsDeceased childrenPromote parentEmpirical study of parentsParents' viewsCareEmpirical referentsSocietal attitudesDatabase search