2024
Partnering With Parents to Dismantle “Good-Death” Narratives
Broden E, McCarthy S, Snaman J. Partnering With Parents to Dismantle “Good-Death” Narratives. JAMA Pediatrics 2024, 178: 431-432. PMID: 38466276, DOI: 10.1001/jamapediatrics.2024.0103.Peer-Reviewed Original ResearchPreparing for the Unimaginable: How Pediatric ICU Nurses Prepare Families for the Dying Process
Broden E, Eche-Ugwu I, DeCourcey D, Snaman J. Preparing for the Unimaginable: How Pediatric ICU Nurses Prepare Families for the Dying Process. Journal Of Pain And Symptom Management 2024, 67: e662-e663. DOI: 10.1016/j.jpainsymman.2024.02.116.Peer-Reviewed Original ResearchEnd-of-lifeEnd-of-life symptomsPICU nursesDying processPediatric intensive care unitRisk of adverse outcomesNurse-initiatedChild deathsNurse-led interventionPediatric ICU nursesTeam collaborationAnalyzing focus groupsQualitative descriptive studyICU nursesNursing perspectiveDying childrenDecisional regretNursesBereaved parentsThematic analysisDescriptive studyFocus groupsParents' perspectivesGrief outcomesPreparatory actionsFamily characteristics and childcare patterns associated with early social functioning in cancer‐bereaved parents
Snaman J, Chen L, Mazzola E, Helton G, Feifer D, Broden E, McCarthy S, Rosenberg A, Baker J, Wolfe J. Family characteristics and childcare patterns associated with early social functioning in cancer‐bereaved parents. Cancer 2024, 130: 2822-2833. PMID: 38620040, DOI: 10.1002/cncr.35325.Peer-Reviewed Original ResearchEnd-of-lifeHousehold material hardshipMaterial hardshipSocial functioningChild's end-of-lifeChild deathsEnd-of-life circumstancesImproved bereavement outcomesCancer-bereaved parentsEarly social functionParental social functioningMultivariate logistic regression modelParents of childrenLogistic regression modelsSupport interventionsPsychosocial distressBereavement outcomesChildcare patternsBereaved parentsBereavement experiencesSurvey completionIncreased oddsFamily characteristicsMultivariate modelHardship
2023
Mixed‐methods analysis of decisional regret in parents following a child's death from cancer
Feifer D, Broden E, Xiong N, Mazzola E, Baker J, Wolfe J, Snaman J. Mixed‐methods analysis of decisional regret in parents following a child's death from cancer. Pediatric Blood & Cancer 2023, 70: e30541. PMID: 37414728, DOI: 10.1002/pbc.30541.Peer-Reviewed Original ResearchConceptsFree-text responsesDecisional regretChild deathsCancer-bereaved parentsAssociated with decreased riskMixed-methods designQualitative content analysisParental decisional regretChild's lifeMixed-methods analysisPrimary caregiversBereaved parentsQuantitative itemsSelf-blameParents 6Increased riskContent analysisFree textResults of qualitative content analysisQualitative reflectionsRisk of regretTreatment choiceMothersChildrenSufferingRisk Factors for Decisional Regret among Parents Early in Bereavement (Sci251)
Feifer D, Broden E, Xiong N, Mazzola E, Baker J, Wolfe J, Snaman J. Risk Factors for Decisional Regret among Parents Early in Bereavement (Sci251). Journal Of Pain And Symptom Management 2023, 65: e667-e668. DOI: 10.1016/j.jpainsymman.2023.02.301.Peer-Reviewed Original ResearchEnd-of-lifeEnd-of-life symptomsDecisional regretParental decisional regretEnd-of-life circumstancesCross-sectional survey of parentsFisher's exact testLocation of deathCross-sectional surveyRisk factorsMultinomial logistic regression modelParents of childrenChild sufferingHigh riskPerception of sufferingLogistic regression modelsMultinomial logistic regressionCaregiving roleExact testRelated risk factorsSurvey of parentsPrimary caregiversBereaved parentsRelative riskParents' perceptionsFactors Associated with Parents’ Perceptions of Their Child's End-of-Life Suffering (Sci229)
Broden E, Decourcey D, Blume E, Wolfe J, Snaman J. Factors Associated with Parents’ Perceptions of Their Child's End-of-Life Suffering (Sci229). Journal Of Pain And Symptom Management 2023, 65: e655-e656. DOI: 10.1016/j.jpainsymman.2023.02.279.Peer-Reviewed Original ResearchEnd of lifeLocation of deathEnd of life circumstancesBereaved parentsChild sufferingEnd-of-life sufferingCare-related factorsFactors associated with parental perceptionsAssociated with parental perceptionsSample of bereaved parentsPerception of sufferingDying childrenIllness experienceAssociated with diagnosisEffective interventionsModifiable targetsParents' perceptionsParent surveyFisher's exact testCompare parentPrimary outcomeChild characteristicsMultivariate modelCardiac diseaseDiagnostic groups“It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents
Feifer D, Broden E, Baker J, Wolfe J, Snaman J. “It's Hard Not to Have Regrets:” Qualitative Analysis of Decisional Regret in Bereaved Parents. Journal Of Pain And Symptom Management 2023, 65: e399-e407. PMID: 36641003, DOI: 10.1016/j.jpainsymman.2022.12.144.Peer-Reviewed Original ResearchConceptsDecisional regretBereaved parentsEnd-of-lifeFree-text responsesStudy of ParentsFree textParents of childrenEnd-of-life characteristicsDecision-making processCare teamChild deathsEarly bereavementBereavementChild's lifeParental riskSelf-blameParental responsibilityContent analysisIdentified factorsHeightened riskLongitudinal studyAnalyzed responsesChild sufferingFrequency of categoriesRecurrent categories
2022
“I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either”
Broden E, Hinds P, Werner-Lin A, Curley M. “I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either”. Journal Of Hospice And Palliative Nursing 2022, 24: 271-280. PMID: 35666188, PMCID: PMC9437116, DOI: 10.1097/njh.0000000000000884.Peer-Reviewed Original ResearchConceptsChild's end-of-life careEnd-of-life careComplex chronic illnessIntensive care cliniciansChild sufferingParents' memoriesNursing careDying childrenIllness trajectoryCare cliniciansCritical care requirementsChildren's painChronic illnessInterviewed 7Care requirementsBereaved parentsPatient's painChild's comfortParental distressQualitative interviewsMethods designParental bereavementParents' descriptionsParents' abilityCareShifting and Intersecting Needs: Parents’ Experiences During and Following Withdrawal of Life Sustaining Treatments (GP772)
Broden E, Werner-Lin A, Curley M, Hinds P. Shifting and Intersecting Needs: Parents’ Experiences During and Following Withdrawal of Life Sustaining Treatments (GP772). Journal Of Pain And Symptom Management 2022, 63: 1152. DOI: 10.1016/j.jpainsymman.2022.04.163.Peer-Reviewed Original ResearchEnd-of-life careEnd-of-lifePediatric intensive care unitImprove end-of-life careEnd-of-life care needsBereaved parentsContent analysis of semistructured interviewsEnd-of-life circumstancesParental griefIntensive care unit processesAnalysis of semistructured interviewsWithdrawal of life-sustaining treatmentWithdrawal of life supportComplex chronic conditionsLife-sustaining treatmentPotential quality improvementDying childrenCare needsClinician supportChronic conditionsClinical careIntersectional needsParents' experiencesParents' prioritiesLong-term bereavement