2016
Comparative analysis of stakeholder experiences with an online approach to prioritizing patient-centered research topics
Khodyakov D, Grant S, Meeker D, Booth M, Pacheco-Santivanez N, Kim K. Comparative analysis of stakeholder experiences with an online approach to prioritizing patient-centered research topics. Journal Of The American Medical Informatics Association 2016, 24: 537-543. PMID: 28011596, PMCID: PMC7651951, DOI: 10.1093/jamia/ocw157.Peer-Reviewed Original ResearchConceptsStudy participationPatient/caregiver experienceKawasaki diseaseHeart failureRating roundsCaregivers' experiencesProfessional stakeholdersMultivariate modelConvenience samplePatientsDelphi panelCliniciansPerson meetingsResearch prioritizationSelf-reported willingnessLittle evidenceParticipants' experiencesStakeholder experiencesObesityDiseaseExperience index
2015
A system to build distributed multivariate models and manage disparate data sharing policies: implementation in the scalable national network for effectiveness research
Meeker D, Jiang X, Matheny M, Farcas C, D’Arcy M, Pearlman L, Nookala L, Day M, Kim K, Kim H, Boxwala A, El-Kareh R, Kuo G, Resnic F, Kesselman C, Ohno-Machado L. A system to build distributed multivariate models and manage disparate data sharing policies: implementation in the scalable national network for effectiveness research. Journal Of The American Medical Informatics Association 2015, 22: 1187-1195. PMID: 26142423, PMCID: PMC4639714, DOI: 10.1093/jamia/ocv017.Peer-Reviewed Original ResearchConceptsFederated networkData sharing policiesParallel computation methodSharing policiesPolicy management systemData exchange policiesData storage requirementsWeb servicesNetwork queriesQuery functionalityComputation resourcesFederated modelGraphical interfaceData transportCentralized networkStorage requirementsNetwork participantsManagement systemQueriesNetworkComputation methodNew featuresMultivariate statistical estimationDifferent state lawsImportant new feature