2024
Use of Hospice and End-of-Life Care Quality Among Medical Centers with High Versus Lower Specialist Palliative Care Reach Among People with Heart Failure: An Observational Study
Feder S, Han L, Zhan Y, Abel E, Akgün K, Fried T, Ersek M, Redeker N. Use of Hospice and End-of-Life Care Quality Among Medical Centers with High Versus Lower Specialist Palliative Care Reach Among People with Heart Failure: An Observational Study. Journal Of Palliative Medicine 2024 PMID: 39515377, DOI: 10.1089/jpm.2024.0182.Peer-Reviewed Original ResearchSpecialist palliative careVeterans Affairs Medical CenterEnd of lifeCare qualityInpatient hospiceEnd of life outcomesUse of hospiceInpatient hospice careMedical CenterMultilevel logistic regressionFamilies of patientsAffairs Medical CenterHospice carePalliative careRetrospective cohort studyAdvanced heart failureBlack adultsHospiceCohort studyFacility rateLogistic regressionStudy outcomesObservational studyCareHeart failureEmergency Department Visits Among Patients With Dementia Before and After Diagnosis
Gettel C, Song Y, Rothenberg C, Kitchen C, Gilmore-Bykovskyi A, Fried T, Brody A, Nothelle S, Wolff J, Venkatesh A. Emergency Department Visits Among Patients With Dementia Before and After Diagnosis. JAMA Network Open 2024, 7: e2439421. PMID: 39401040, PMCID: PMC11581500, DOI: 10.1001/jamanetworkopen.2024.39421.Peer-Reviewed Original ResearchDesire for Prognostic Information Among Persons With Advanced Heart Failure
Blum M, Gelfman L, Fried T, McKendrick K, Schoenrath F, Goldstein N. Desire for Prognostic Information Among Persons With Advanced Heart Failure. JACC Heart Failure 2024 PMID: 39207322, DOI: 10.1016/j.jchf.2024.06.017.Peer-Reviewed Original ResearchAn innovative approach to aligning healthcare with what matters most to patients: A hybrid type 1 trial protocol of patient priorities care for older adults with multiple chronic conditions
Naik A, Shanahan M, Dindo L, Mecca M, Arney J, Amspoker A, Wydermyer S, Banks J, Street R, Kiefer L, Zenoni M, Rosen T, Gonzalez R, Catic A, Fried T. An innovative approach to aligning healthcare with what matters most to patients: A hybrid type 1 trial protocol of patient priorities care for older adults with multiple chronic conditions. Contemporary Clinical Trials 2024, 143: 107613. PMID: 38914308, DOI: 10.1016/j.cct.2024.107613.Peer-Reviewed Original ResearchMultiple chronic conditionsHealth priorityOlder adultsCare approachChronic conditionsTreatment burdenPriorities of older adultsPatient-centered care approachPatient Priorities CarePatients' health prioritiesPrimary care providersVeterans Affairs Medical CenterHealth care decisionsAffairs Medical CenterHigh treatment burdenComplexity of patientsRandomized controlled trialsPrimary careUsual carePriority careCare providersImplementation outcomesCare decisionsCare optionsAssessor-blindedAssociation Between Cognitive Trajectories and Subsequent Health Status, Depressive Symptoms, and Mortality Among Older Adults in the United States: Findings From a Nationally Representative Study
Zang E, Zhang Y, Wang Y, Wu B, Fried T, Becher R, Gill T. Association Between Cognitive Trajectories and Subsequent Health Status, Depressive Symptoms, and Mortality Among Older Adults in the United States: Findings From a Nationally Representative Study. The Journals Of Gerontology Series A 2024, 79: glae143. PMID: 38845419, PMCID: PMC11212484, DOI: 10.1093/gerona/glae143.Peer-Reviewed Original ResearchPoor health statusHealth statusDepressive symptomsOlder adultsHealth outcomesCognitive trajectoriesNational Health and Aging Trends StudyScreening of cognitive functionTrajectory groupsCognitive functionHigher depressive symptomsPopulation-based dataAdverse health outcomesNationally representative cohortGroup-based trajectory modelingHigher mortality riskAssociated with higher riskNationally-representative studyLogistic regression modelsTrends StudyRepresentative cohortGlobal cognitionLiving respondentsRegular screeningMortality riskVariation in Specialist Palliative Care Reach and Associated Factors Among People With Advanced Heart Failure in the Department of Veterans Affairs
Feder S, Han L, Zhan Y, Abel E, Akgün K, Fried T, Ersek M, Redeker N. Variation in Specialist Palliative Care Reach and Associated Factors Among People With Advanced Heart Failure in the Department of Veterans Affairs. Journal Of Pain And Symptom Management 2024, 68: 22-31.e1. PMID: 38561132, PMCID: PMC11168897, DOI: 10.1016/j.jpainsymman.2024.03.022.Peer-Reviewed Original ResearchOutpatient specialist palliative careSpecialist palliative careVeterans Affairs Medical CenterPalliative careSpecialist palliative care consultationRandom intercept multilevel logistic regressionDepartment of Veterans AffairsMultilevel logistic regressionAffairs Medical CenterClinical practice guidelinesICD-9/10 codesAdvanced heart failureRetrospective cohort studyVeterans AffairsOutpatient palliativeOutpatient deliveryPractice guidelinesCohort studyLogistic regressionCardiology involvementDelivery characteristicsAssociated factorsMedical CenterIdentified factorsICD-9/10High-Intensity Care for Nursing Home Residents with Severe Dementia Hospitalized at the End of Life: A Mixed Methods Study
Cohen A, McDonald W, O'Leary J, Omer Z, Fried T. High-Intensity Care for Nursing Home Residents with Severe Dementia Hospitalized at the End of Life: A Mixed Methods Study. Journal Of The American Medical Directors Association 2024, 25: 871-875. PMID: 38462230, PMCID: PMC11065599, DOI: 10.1016/j.jamda.2024.02.001.Peer-Reviewed Original ResearchNursing home residentsHigh-intensity careSevere dementiaMixed methods studyHome residentsIntensive care unit transferVeterans AffairsIntensive care unitMethods studyHealth system-level factorsDepartment of Veterans AffairsMinimum Data SetEnd of lifeSystem-level factorsNon-Hispanic whitesEnd-of-lifeElectronic medical recordsQualitative content analysisNursing homesLiving willsVA hospitalsHigh-intensity treatmentIdentified veteransNursesPatient preferencesPatient Priorities Care Increases Long-Term Service and Support Use: Propensity Match Cohort Study
Samper-Ternent R, Razjouyan J, Dindo L, Halaszynski J, Silva J, Fried T, Naik A. Patient Priorities Care Increases Long-Term Service and Support Use: Propensity Match Cohort Study. Journal Of The American Medical Directors Association 2024, 25: 751-756. PMID: 38320742, PMCID: PMC11137700, DOI: 10.1016/j.jamda.2023.12.014.Peer-Reviewed Original ResearchPatient Priorities CareLTSS useUsual care groupVeterans Health AdministrationHealth priorityEmergency departmentCare groupElectronic medical record notesUrgent care usePropensity-matched veteransSocial workersUrgent care visitsMedical record notesQuasi-experimental studyEvidence-based approachCare visitsCare usePriority carePatient prioritiesIntervention groupPropensity-matched controlsUrgent careCare increasesAssociated with higher EDHealth AdministrationDiagnostic uncertainty and decision‐making in home‐based primary care: A qualitative study of antibiotic prescribing
Datta R, Kiwak E, Fried T, Benjamin A, Iannone L, Krein S, Carter W, Cohen A. Diagnostic uncertainty and decision‐making in home‐based primary care: A qualitative study of antibiotic prescribing. Journal Of The American Geriatrics Society 2024, 72: 1468-1475. PMID: 38241465, PMCID: PMC11090732, DOI: 10.1111/jgs.18778.Peer-Reviewed Original ResearchHome-based primary carePrimary carePromote antibiotic stewardshipHome-based primary care programAntibiotic decision-makingPrimary care programsHome care settingPerspectives of cliniciansConstant comparative methodSemi-structured interviewsDeliver medical careHomebound patientsCare settingsCare programDiagnostic uncertaintyYears of experienceTheoretical saturationMedical careQualitative studyDecision-makingAntibiotic prescribingCareGrounded theoryAntibiotic stewardshipPrescribing“How can I be a caregiver for a second time?” A call to action to acknowledge and support experienced family caregivers
Mroz E, Fried T, Monin J. “How can I be a caregiver for a second time?” A call to action to acknowledge and support experienced family caregivers. Journal Of The American Geriatrics Society 2024, 72: 971-975. PMID: 38206857, PMCID: PMC10947907, DOI: 10.1111/jgs.18740.Peer-Reviewed Original Research
2023
Development of the COMET tool: Caregiver‐reported Outcome Measure for Emergency care Transitions
Gettel C, Galske J, Uzamere I, Serina P, Hernandez‐Bigos K, Mane S, Chen K, Ottilie‐Kovelman S, Sandoval J, Venkatesh A, Cohen A, Monin J, Fried T, Hwang U. Development of the COMET tool: Caregiver‐reported Outcome Measure for Emergency care Transitions. Alzheimer's & Dementia 2023, 19 DOI: 10.1002/alz.074213.Peer-Reviewed Original ResearchCare transitionsOutcome measuresCare partnersED discharge processPhase 3Results Phase 1Phase 2Health care systemPhase 1Candidate itemsAcute illnessED encountersEmergency departmentCare considerationsPhase 4Outcome assessmentConclusion DevelopmentScreening toolCare systemResearch team membersContent validityPoor communicationEDMultidisciplinary stakeholdersDelphi approachPREPARING “EXPERIENCED” CAREGIVERS FOR FUTURE CARE: PERSPECTIVES FROM FORMER CAREGIVERS OF PARENTS WITH DEMENTIA
Mroz E, Piechota A, Ali T, Matta-Singh T, Abboud A, Sharma S, Fried T, Monin J. PREPARING “EXPERIENCED” CAREGIVERS FOR FUTURE CARE: PERSPECTIVES FROM FORMER CAREGIVERS OF PARENTS WITH DEMENTIA. Innovation In Aging 2023, 7: 414-415. PMCID: PMC10735791, DOI: 10.1093/geroni/igad104.1370.Peer-Reviewed Original ResearchFormer caregiversCaregiving roleNegative psychological consequencesPast experienceConsensual qualitative researchAdult child caregiversCare partnersPsychological consequencesDiminished senseDiminished confidencePositive senseNegative consequencesPersonal narrativesCaregiversParentsQualitative studyCumulative advantageConfidenceDementiaExperienceQualitative researchSkillsCare rolesTheory techniquesAdulthoodHOW DO FORMER DEMENTIA CAREGIVERS STRUCTURE HIGH- AND LOW-POINT NARRATIVES?
Matta-Singh T, Sharma S, Ali T, Piechota A, Abboud A, Fried T, Monin J, Mroz E. HOW DO FORMER DEMENTIA CAREGIVERS STRUCTURE HIGH- AND LOW-POINT NARRATIVES? Innovation In Aging 2023, 7: 342-342. PMCID: PMC10735917, DOI: 10.1093/geroni/igad104.1140.Peer-Reviewed Original ResearchPersonal Health Planning in Adult-Child Former Caregivers of Parents Living With Dementia
Mroz E, Ali T, Piechota A, Matta-Singh T, Abboud A, Sharma S, Monin J, Fried T. Personal Health Planning in Adult-Child Former Caregivers of Parents Living With Dementia. American Journal Of Health Promotion 2023, 38: 402-411. PMID: 37770019, PMCID: PMC10922991, DOI: 10.1177/08901171231204670.Peer-Reviewed Original ResearchFormer caregiversPersonal health planningDiverse teamsSemi-structured interviewsPrimary caregiversHealthy agingHealth planningInterview recordingsDementia engageCaregiversParentsInterview promptsPessimistic viewQualitative studyResearch domainHealth planning activitiesDementia 3DementiaAnxietyFeelingsParticipantsPromptsHealthEngageInterventionFormer dementia caregivers’ high and low point narratives: what is remembered, and how is it shared?
Matta-Singh T, Sharma S, Ali T, Piechota A, Abboud A, Fried T, Monin J, Mroz E. Former dementia caregivers’ high and low point narratives: what is remembered, and how is it shared? Aging & Mental Health 2023, 28: 427-435. PMID: 37712688, PMCID: PMC10922763, DOI: 10.1080/13607863.2023.2256252.Peer-Reviewed Original ResearchValidation of Electronic Health Record-Based Algorithms to Identify Specialist Palliative Care Within the Department of Veterans Affairs
Feder S, Zhan Y, Abel E, Smith D, Ersek M, Fried T, Redeker N, Akgün K. Validation of Electronic Health Record-Based Algorithms to Identify Specialist Palliative Care Within the Department of Veterans Affairs. Journal Of Pain And Symptom Management 2023, 66: e475-e483. PMID: 37364737, PMCID: PMC10527602, DOI: 10.1016/j.jpainsymman.2023.06.023.Peer-Reviewed Original ResearchConceptsSpecialist palliative careInpatient encountersCurrent Procedural TerminologyPalliative careICD-9/ICDICD-9/10 codesCohort of peopleVeterans Affairs facilitiesStop codeNegative predictive valueElectronic health recordsChart reviewHeart failureAdministrative databasesSpecific clinicPredictive valueICD codesProcedural TerminologyVeterans AffairsOutpatientsHealth recordsAdministrative dataReference standardCareConsultationAntimicrobial resistance in Escherichia coli and Klebsiella pneumoniae urine isolates from a national sample of home-based primary care patients with dementia
Datta R, Pirruccio G, Fried T, O’Leary J, Zullo A, Cohen A. Antimicrobial resistance in Escherichia coli and Klebsiella pneumoniae urine isolates from a national sample of home-based primary care patients with dementia. Infection Control And Hospital Epidemiology 2023, 44: 1873-1876. PMID: 37211919, PMCID: PMC10663380, DOI: 10.1017/ice.2023.98.Peer-Reviewed Original ResearchDevelopment of REDCap-based architecture for a clinical decision support tool linked to the electronic health record for assessment of medication appropriateness
Charpentier P, Mecca M, Brandt C, Fried T. Development of REDCap-based architecture for a clinical decision support tool linked to the electronic health record for assessment of medication appropriateness. JAMIA Open 2023, 6: ooad041. PMID: 37333904, PMCID: PMC10276359, DOI: 10.1093/jamiaopen/ooad041.Peer-Reviewed Original ResearchRewriting the Story of Mid- and Late-Life Family Caregiving: Applying a Narrative Identity Framework
Mroz E, Monin J, Gaugler J, Matta-Singh T, Fried T. Rewriting the Story of Mid- and Late-Life Family Caregiving: Applying a Narrative Identity Framework. The Gerontologist 2023, 64: gnad040. PMID: 37018754, PMCID: PMC10809219, DOI: 10.1093/geront/gnad040.Peer-Reviewed Original ResearchNarrative identity frameworkIdentity frameworkMemory systemNarrative therapy interventionFamily caregiversBehavioral outcomesTherapy interventionHealth-related outcomesFamily caregivingNegative consequencesLater lifeCaregiversLater life healthStress modelAdverse consequencesOlder peopleHealth needsExperienceIntensive supportLived experienceLife healthCaregivingBehaviorResearchCentral mechanisms
2022
“Been there, done that:” A grounded theory of future caregiver preparedness in former caregivers of parents living with dementia
Mroz E, Piechota A, Ali T, Matta‐Singh T, Abboud A, Sharma S, White M, Fried T, Monin J. “Been there, done that:” A grounded theory of future caregiver preparedness in former caregivers of parents living with dementia. Journal Of The American Geriatrics Society 2022, 71: 1495-1504. PMID: 36571504, PMCID: PMC10175151, DOI: 10.1111/jgs.18209.Peer-Reviewed Original Research