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Center for Outcomes Research & Evaluation (CORE)
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INFORMATION FOR

Person-Centered Outcomes

The patient is at the center of all the work we do at CORE. Ensuring that patients receive high quality, equitable, cost-efficient care and achieve the best outcomes is our highest priority. We strive to integrate the voices of patients, family members and caregivers into all aspects of CORE’s research and quality measurement. Further, we are at the frontier of patient-generated data, working to ensure seamless data interoperability between wearables and patient portals to point-of-care.

To achieve patient-centered outcomes, we are at the forefront of developing strategies and solutions. Our Person and Family Engagement (PFE) team is extremely knowledgeable and dedicated to discovering ways to best incorporate patients throughout our work. This includes identifying techniques to amplify the patient and family voice through engagement in the quality measurement and research processes. We do this by designing measures using patient-reported outcomes, translating highly technical information to make it more accessible to broader audiences, and identifying novel practices to collect active and passive patient-reported and patient-generated data.

Examples of CORE’s successes include:

  • Creating the first national Person and Family Engagement Network for the Centers for Medicare and Medicaid Services (CMS) quality measure development – This network of patients and caregivers advised on the development and application of quality measures in federal hospital payment programs. To further expand patients’ voice in quality measurement, CORE also developed the original Person and Family Engagement Toolkit: A Guide for Measure Developers for the Centers for Medicare and Medicaid Services
  • Developing the first hospital-level patient-reported outcome performance measure (PRO-PM) focused on assessing patient function and pain after joint replacement surgery to be used in a mandatory national pay-for-reporting program.
  • Designing and enacting a national clinic trial of COVID treatments designed to support patients’ needs, including home visits to simplify survey response and biological sample collection.
  • Enacting a decentralized, digital, and democratized national clinical trial designed with patient input and configured for convenience, including with home visits.