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Ethical Issues we have Faced over the Pandemic and Lessons Learned

May 18, 2022
  • 00:00OK, welcome to the evening Ethics
  • 00:03seminar series for the program
  • 00:05for Biomedical Ethics at Yale.
  • 00:07My name is Mark Mercurio.
  • 00:09I'm direct for the program and
  • 00:10I'm delighted you're here and I'm
  • 00:12delighted to to introduce our guest
  • 00:14speaker in just a moment to let
  • 00:16you know how this is going to work.
  • 00:19As always, Doctor Solomon will speak
  • 00:21for about 45 minutes, give or take some,
  • 00:24and then we'll have plenty of time
  • 00:26for question and answer, comment.
  • 00:27And I'm going to ask you to put your
  • 00:30questions and comments through the Q&A.
  • 00:32A function on zoom and I'll be monitoring.
  • 00:34I'll read those to Millie and
  • 00:36we'll have a terrific discussion.
  • 00:37We'll have a hard stop.
  • 00:38As always at 6:30,
  • 00:40so please forgive me if there was
  • 00:42something you were hoping to say and
  • 00:44I didn't get to you or hoping to ask.
  • 00:47Does the CME information.
  • 00:48Karen will be putting through the
  • 00:51chat portion of the zoom as well.
  • 00:53So welcome and I think we'll
  • 00:54go ahead and get started.
  • 00:55Let me introduce please our guest tonight.
  • 00:57I'm so pleased that that my friend
  • 01:00Millie has been here before she is.
  • 01:02A longstanding friend of our program and
  • 01:05a major figure in the world of bioethics.
  • 01:09And I'll let me tell you a little
  • 01:11bit about our Mildred Solomon.
  • 01:12Education Doctor is the president
  • 01:14of the Hastings Center,
  • 01:15the nation's founding Bioethics
  • 01:17Research Institute, and I would say,
  • 01:20probably the leading bioethics
  • 01:21think tank in the country.
  • 01:22She's also a professor of global health and
  • 01:24social medicine at Harvard Medical School,
  • 01:27where she directs the school's
  • 01:29Fellowship in Bioethics.
  • 01:30Dr Salman's research is focused on
  • 01:32the ethics of end of life care,
  • 01:34organ transplantations,
  • 01:35medical professionalism,
  • 01:36responsible conduct of research, and.
  • 01:39Evidence based medicine.
  • 01:40She served on numerous committees,
  • 01:42including the National Academy of Sciences,
  • 01:44Engineering and Medicine,
  • 01:45the World Economic Forums,
  • 01:47Global Futures Council on Technology,
  • 01:49the US Secretary of Health and Human Services
  • 01:52Advisory Committee on Oregon Transplantation,
  • 01:55and several others.
  • 01:56She's frequently cited in the mainstream.
  • 01:58Media included the Wall Street Journal,
  • 02:00NPR, and the New York Review of Books,
  • 02:03The Daily Beast forms,
  • 02:04Science News, the scientist,
  • 02:06and others.
  • 02:06She's a frequent public speaker
  • 02:08at many places.
  • 02:09Most notably at the Yale University School
  • 02:12of Medicine program for Biomedical Ethics,
  • 02:15she holds a BA from Smith College and
  • 02:17a doctorate in educational research
  • 02:19methods from Harvard University.
  • 02:21We are absolutely delighted
  • 02:22that you're with us tonight.
  • 02:23Doctor Solomon to speak to us about
  • 02:26some ethical issues during the
  • 02:28pandemic and the lessons learned.
  • 02:30I'm going to turn her over to
  • 02:32NYU doctor Millie Salman.
  • 02:34A warm welcome.
  • 02:36Thank you so much Mark.
  • 02:37It is it's really a pleasure to be here
  • 02:39and I love all the opportunities that we
  • 02:42take to have collaborations between the
  • 02:44Yale program and the Hastings Center.
  • 02:46So it's really a treat.
  • 02:48Mark asked me to reflect on the lessons
  • 02:50to be learned from the pandemic,
  • 02:52and I'm going to offer some
  • 02:53reflections and then I look forward
  • 02:55to a robust discussion with many
  • 02:57of you later in the session.
  • 02:59I also want to acknowledge
  • 03:01and thank Danny Passia,
  • 03:03who is a program manager and a research
  • 03:05assistant at the Hastings Center.
  • 03:06You aren't seeing her,
  • 03:07but she's fundamental.
  • 03:09She's going to be advancing my
  • 03:10slides and she and I'll probably
  • 03:12be talking in front of everyone.
  • 03:14So thank you, Danny for your help.
  • 03:17I want to start first with
  • 03:20the positive side of things.
  • 03:22Science really came through.
  • 03:24With safe and effective vaccines and
  • 03:28now some promising therapeutics.
  • 03:30This took massive investment on
  • 03:32the part of government with strong
  • 03:35private Public Partnerships which were
  • 03:37essential for the vaccine development.
  • 03:40For its part,
  • 03:41government was willing to provide
  • 03:43payment guarantees to industry so that
  • 03:45if their attempts did not pan out,
  • 03:46they would still be assured of payment.
  • 03:49And for the most part, there was two.
  • 03:51There was good international
  • 03:54cooperation among scientists.
  • 03:55We now have M RNA technologies
  • 03:58that promise to be useful for
  • 04:00a very wide range of viruses,
  • 04:03and we have new antiviral treatments
  • 04:05packs loaded in particular,
  • 04:06and an increasing number of
  • 04:09diagnostic tests so well done science.
  • 04:12And yet more than two years in,
  • 04:15we still face enormous challenges.
  • 04:18More than 20% of Americans
  • 04:20have not been vaccinated.
  • 04:22Almost half of all US adults
  • 04:24who did receive the first two
  • 04:27vaccinations have not gotten boosters,
  • 04:29so their facilitating viral mutation.
  • 04:33And while so far the mutation seemed
  • 04:35to be increasing transmissibility,
  • 04:37but not affecting severity of illness that
  • 04:40might simply be the luck of the draw.
  • 04:43Viruses can just as easily mutate
  • 04:45in ways that exacerbate their
  • 04:48lethality as diminish it,
  • 04:50and so long as large numbers
  • 04:53of people remain unvaccinated,
  • 04:54we are creating the conditions
  • 04:56for the virus to evolve.
  • 04:58This threatens everyone of the
  • 05:01unvaccinated and vaccinated since
  • 05:02many of those who are vaccinated
  • 05:05may still become infected,
  • 05:06and they will be especially at risk if
  • 05:09the mutations enable vaccine escape.
  • 05:11And of course a large number of people.
  • 05:14Millions of people who are immune
  • 05:17compromised or remain at risk.
  • 05:19So vaccine refusal is a huge and
  • 05:23lingering problem and one that I'm
  • 05:26going to return to later in the talk.
  • 05:29We also have not addressed the
  • 05:33tension between national sovereignty
  • 05:35on the one hand and international
  • 05:38obligations on the other.
  • 05:39While the wealthy countries have been
  • 05:41the direct beneficiaries of science,
  • 05:43we have done precious little to help
  • 05:45low and middle income countries.
  • 05:47Only 6% of people on the African
  • 05:51continent have been vaccinated.
  • 05:54Of course, that's a moral problem.
  • 05:56It's also something all of us in
  • 05:58the developed world
  • 05:59should be concerned about,
  • 06:00just on the basis of self interest.
  • 06:03Viral mutation is a direct result of the size
  • 06:06of the population able to host the virus.
  • 06:09The more hosts, the more mutations,
  • 06:11because each and every transmission
  • 06:13opportunity is an opportunity
  • 06:15for the virus to evolve.
  • 06:17And this requires not just more
  • 06:20generous sharing of our vaccines,
  • 06:22which we must do,
  • 06:25but much more fundamental action.
  • 06:28We need to share intellectual property
  • 06:31and help those countries build
  • 06:34their own manufacturing capacities.
  • 06:36Over the first part of the pandemic,
  • 06:38North America,
  • 06:39Europe and India successfully
  • 06:41ramped up their manufacturing
  • 06:43manufacturing capabilities,
  • 06:45but we have to help.
  • 06:47In Africa and in South and Central America,
  • 06:50so that they too have their
  • 06:53own capacity for manufacturing.
  • 06:56They they also need help building
  • 06:59basic healthcare infrastructure.
  • 07:01And in many places where it doesn't exist,
  • 07:03and again,
  • 07:04that's a role that we can play that
  • 07:06would be extremely facilitative.
  • 07:10Of course, our unwillingness to
  • 07:12see the plight of others is not
  • 07:16only an unwillingness to care for
  • 07:19the other across national borders.
  • 07:22But it's a huge and troubling
  • 07:24reality within our own country.
  • 07:26The pandemic had a vastly
  • 07:28disproportionate impact on communities
  • 07:30of color and indigenous tribes.
  • 07:33It laid bare, thus systemic
  • 07:35racism and health inequities that
  • 07:37we've known about for decades.
  • 07:40Hopefully these realities will
  • 07:41create an authentic call for action.
  • 07:44How authentic. We don't know yet.
  • 07:46Hopefully the response will be
  • 07:48authentic and not long lasting,
  • 07:51but that remains to be seen.
  • 07:54For the most part,
  • 07:55these kind of failures that
  • 07:57I've been listing.
  • 07:58The mainly the failure to
  • 08:00see the suffering of others.
  • 08:02The failure to accept vaccines and non
  • 08:06pharmaceutical interventions like masks,
  • 08:09our failures to act in
  • 08:11mutually supportive ways,
  • 08:13their failures to recognize
  • 08:15our interdependence.
  • 08:17And they're also failures
  • 08:18to resist our need for.
  • 08:20Let's call it immediate gratification.
  • 08:24I'm going to say a little bit
  • 08:25about what I mean by that.
  • 08:26In a second,
  • 08:27these problems haven't risen from
  • 08:29lack of knowledge or imagination,
  • 08:33nor even primarily from lack
  • 08:35of financial resources.
  • 08:36They're driven by distrust
  • 08:39and self interest rather than
  • 08:42reciprocity and mutual support.
  • 08:44The result.
  • 08:47Has been the erosion of social
  • 08:49cohesion and trust in one another.
  • 08:52In government,
  • 08:53in science and in expertise of all kinds.
  • 08:58So I guess to summarize that,
  • 08:59that point is that these problems are
  • 09:03not problems of inadequate knowledge.
  • 09:07But of inadequate action shaped
  • 09:11by problematic values.
  • 09:13That's what I want to talk about.
  • 09:15What values have we deprioritized?
  • 09:19What values have we allowed to
  • 09:21languish in our body politic?
  • 09:23So let's take up a few examples.
  • 09:25Danny that now we're going to
  • 09:27get to the first slide.
  • 09:29For years we have allowed our public
  • 09:32health infrastructure to languish
  • 09:34when COVID hit most States and
  • 09:36counties had insufficient surveillance
  • 09:38and contact tracing capabilities.
  • 09:40I mean,
  • 09:40I don't need to tell that to you.
  • 09:42This audience is largely an audience
  • 09:44of the of healthcare professionals
  • 09:47who know better than anyone.
  • 09:49We didn't have adequate equipment,
  • 09:53not adequate support.
  • 09:56Personal protective equipment
  • 09:57and ventilators should have been
  • 09:59stockpiled and even though they were,
  • 10:00their viability wasn't checked,
  • 10:02so all that should have happened.
  • 10:04All those shortages.
  • 10:05All that putting our healthcare
  • 10:07professionals at risk was avoidable.
  • 10:09We have known for years that
  • 10:13pandemics were coming and really
  • 10:15good guidance was already out there
  • 10:18in the form of major reports by the
  • 10:20National Academy of Medicine and
  • 10:22key states like the New York State
  • 10:24Task Force on Life and the law.
  • 10:25There was good guidance.
  • 10:27Out there on how to prepare
  • 10:29the diseases were different,
  • 10:30but most of this advice was
  • 10:33similar and converged on the
  • 10:35ethical requirement to prepare.
  • 10:38Be prepared is a moral requirement
  • 10:42prepared by stockpiling equipment
  • 10:45anticipating manufacturing
  • 10:46chokeholds using tools,
  • 10:48especially federal tools available
  • 10:50for bringing production to scale by
  • 10:53developing guidelines for providing
  • 10:56care under conditions of scarcity.
  • 10:58And building and sustaining the public
  • 11:01health infrastructure necessary for
  • 11:03surveillance. We knew what to do.
  • 11:06But we didn't do it.
  • 11:09So I'm going to talk a little bit
  • 11:11about why I mean obviously and Danny,
  • 11:14I need the next slide for that.
  • 11:15Obviously there's a time scale problem.
  • 11:19To what I mean by that is to be effective.
  • 11:23We have to spend money now and keep
  • 11:26spending it to sustain readiness for an
  • 11:29uncertain benefit sometime in the future.
  • 11:32And that's what I meant about
  • 11:34submitting to instant gratification
  • 11:36rather than delaying gratification,
  • 11:38we have to spend effort now.
  • 11:41For a future benefit.
  • 11:44Unknown beneficiaries and uncertainty.
  • 11:47Doing the right thing would require
  • 11:50an old fashioned value sacrifice and
  • 11:53it would take extraordinary political
  • 11:55leadership with integrity to ask the
  • 11:58current electorate to sacrifice for
  • 12:00uncertain benefits and unknown beneficiaries.
  • 12:02Very often when faced with
  • 12:04time scale problems like this,
  • 12:06we humans do what we do.
  • 12:08We procrastinate.
  • 12:11Another reason is that we overvalue
  • 12:14some things and undervalue others.
  • 12:17Our society invests vastly more in
  • 12:20cures and rescue medicine than it
  • 12:22does in prevention and public health.
  • 12:27Of the $3.6 trillion
  • 12:28spent on health annually,
  • 12:30only three percent is directed
  • 12:33toward public health and prevention.
  • 12:36You know, again, there are many reasons.
  • 12:39One is that we are culture
  • 12:42infatuated with technology.
  • 12:43Another reason is that there are
  • 12:46economic drivers behind rescue but
  • 12:49not behind public health readiness.
  • 12:52Cures capable of rescuing us from
  • 12:54disease usually come at least in in this
  • 12:57society in the form of medicines and
  • 12:59devices that are quickly commercialized.
  • 13:01There's no similar commercial
  • 13:04incentive for public health readiness.
  • 13:07But despite these constraints,
  • 13:08I think there are things we can do,
  • 13:10and most importantly,
  • 13:12we can consciously strive to build a
  • 13:15more intriguing cultural narrative that
  • 13:18values prevention as much as rescue,
  • 13:21and that would encourage investment
  • 13:24and public health infrastructure.
  • 13:26I'll give you an example of
  • 13:27a time that I did that,
  • 13:28and maybe it's a model for something
  • 13:30people might adapt in terms of wanting
  • 13:32to keep the importance of prevention
  • 13:34prominent in people's minds and investment.
  • 13:36In the future,
  • 13:38as a young social scientist
  • 13:39like it was early in my career,
  • 13:42I was living in Boston and the
  • 13:45Boston newspapers and TV airwaves
  • 13:47were covering the story of a toddler
  • 13:50who very badly needed a kidney.
  • 13:52The media story was everywhere
  • 13:54and it seemed like the whole city
  • 13:56was holding its breath until
  • 13:58the kidney could be found for.
  • 13:59Let's call her Amanda.
  • 14:01Then suddenly a kidney was
  • 14:04available and again,
  • 14:05the airwaves were alive.
  • 14:07That excitement with many commentators
  • 14:10beaming at this happy ending.
  • 14:12But I was wondering who was it
  • 14:14a happy ending for?
  • 14:16It turns out that Amanda's new kidney
  • 14:18came from another toddler whom we
  • 14:20shall call Elizabeth whose parents
  • 14:22had not secured her into a car seat.
  • 14:24This was a time before public health had
  • 14:27mounted its successful car seat laws,
  • 14:29and amidst the celebrations for Amanda,
  • 14:32no one mentioned that Elizabeth's death
  • 14:35was most likely preventable if we had
  • 14:38had such public health legislation in place.
  • 14:41Unfortunately,
  • 14:42messages of prevention just
  • 14:43don't have the same appeal.
  • 14:45They don't engender the same compassion
  • 14:48as narratives focused on rescue.
  • 14:50The need to use car seats is just
  • 14:52not as exciting or exhilarating
  • 14:54as the truly awesome story of
  • 14:56what biomedical technologies like
  • 14:58organ transplantation can do.
  • 15:01I was concerned by the 11 levels of
  • 15:03compassion toward these two toddlers,
  • 15:05and I wrote an OP Ed,
  • 15:06which appeared in the Boston
  • 15:08go in the Boston Globe.
  • 15:10One small drop of my effort to
  • 15:12try to focus our attention on
  • 15:15prevention as much as rescue.
  • 15:20A second big area that points out
  • 15:25values that we have not prioritized.
  • 15:27Is the. Profound disregard for
  • 15:31health inequities that that we
  • 15:33see in so many different ways.
  • 15:36One of the major.
  • 15:38Issues the pandemic has raised
  • 15:41for us is COVID-19 terribly
  • 15:44unequal toll on African Americans,
  • 15:46Native Americans,
  • 15:47and the Latin X community
  • 15:49and indigenous people.
  • 15:50I said that Native Americans and Latin X.
  • 15:55People of color live dramatically shorter
  • 15:57and harder lives in the United States.
  • 16:01The average life expectancy
  • 16:02for a black man is 68 years old
  • 16:04and for a white man it is 76.
  • 16:06For black women it is just shy
  • 16:08of 76 years for white women, 81.
  • 16:13We've known for decades that black
  • 16:15Americans face the burdens of chronic
  • 16:17illness much earlier than whites and
  • 16:20have significantly poorer health
  • 16:21outcomes on a number of dimensions.
  • 16:24But throughout the 20th century,
  • 16:26we didn't really fully understand
  • 16:28why there were many hypothesis.
  • 16:33As important as poverty is,
  • 16:34it's very important,
  • 16:36but some thought that poverty
  • 16:38alone accounted for the differences
  • 16:41we now know that's not true.
  • 16:43People also hypothesize that it was
  • 16:46because African Americans distrusted the
  • 16:48healthcare system and came in later for
  • 16:50care were more reluctant to have surgery.
  • 16:53They finally got care when their
  • 16:55disease was more advanced,
  • 16:56or maybe because they lacked insurance
  • 16:59or were less able to have time
  • 17:01off or didn't have transportation.
  • 17:04These were all guesses.
  • 17:05You could call them hypothesis, I suppose.
  • 17:07That were prominent in the latter
  • 17:09half of the 20th century.
  • 17:11It's it's very noteworthy that most
  • 17:14of these hypothesis had to do with
  • 17:18healthcare professionals perceptions
  • 17:20of patients of color and their lives.
  • 17:23But almost nothing to do with the behavior
  • 17:26of the healthcare professionals themselves.
  • 17:30Then came a landmark report in
  • 17:332002 by the Institute of Medicine,
  • 17:35now the National Academy of Medicine.
  • 17:38And I think the next slide shows
  • 17:40it's cover unequal treatment.
  • 17:42A very famous report.
  • 17:43It's synthesized a whole new
  • 17:46generation of research.
  • 17:47This new research showed unequivocably
  • 17:51an important causal factor.
  • 17:53That few people would have
  • 17:56expected or accepted without the
  • 17:58sophisticated studies to back it up.
  • 18:00And what was that causal factor?
  • 18:02It was implicit physician bias,
  • 18:05which results in significant
  • 18:08under referral to specialist care.
  • 18:11Unconscious physician bias.
  • 18:14You unequal treatment documented
  • 18:16hundreds of studies that controlled
  • 18:18for all those things that people
  • 18:21were guessing about earlier.
  • 18:23The these studies were sophisticated because
  • 18:25they controlled for lack of insurance.
  • 18:28They controlled for differences in
  • 18:30patients preferences and for many
  • 18:32other factors that were thought
  • 18:34to cause unequal outcomes.
  • 18:35Some of those factors did show up
  • 18:38as significant, but when you can,
  • 18:40they played some role,
  • 18:42but when you controlled for them,
  • 18:43there was no no escaping that a
  • 18:47significant additional factor was
  • 18:49that physicians were referring fewer.
  • 18:51Black patients for specialist
  • 18:53care than white patients,
  • 18:55and therefore African Americans,
  • 18:57had less and later utilization
  • 18:59of specialty care.
  • 19:03Now unequal treatment had 100 page
  • 19:06appendix which listed hundreds of studies
  • 19:09that were all confirming this bias.
  • 19:12I'm going to show just one of these studies,
  • 19:15a little going to give you a
  • 19:16little taste for one of them,
  • 19:16to remind to remind us all of this
  • 19:20important report and to give you a
  • 19:22flavor of the the nature of the studies.
  • 19:25So yes, thanks Danny,
  • 19:26this is a study by Kevin Schulman,
  • 19:29John Eisenberg and their college
  • 19:31and colleagues from several
  • 19:32academic medical centers.
  • 19:34And also Rand was involved with
  • 19:35it and it was published in the
  • 19:36New England Journal of Medicine.
  • 19:40Epidemiological studies have reported
  • 19:42differences in the use of cardiovascular
  • 19:44procedures like cardiac catheterization.
  • 19:47They were reporting differences
  • 19:48by race and by sex.
  • 19:50But the reasons for these
  • 19:53differences were unclear.
  • 19:54Solman at all hypothesized that it might
  • 19:57have to do with physician recommendations,
  • 20:00and specifically whether physicians
  • 20:02referred all their patients at the
  • 20:06same rate for cardiac catheterization.
  • 20:08So they constructed an online survey with
  • 20:12standardized patients played by actors who,
  • 20:15in video segments, described their symptoms.
  • 20:18The physicians were given consistent
  • 20:21information about the symptoms, background,
  • 20:23health type and severity of coma comorbidity.
  • 20:27All patients were described as having
  • 20:30insurance and as having a family
  • 20:33history of myocardial infarction.
  • 20:35They made sure to dress the white and
  • 20:37black patients in equivalent ways.
  • 20:38Here.
  • 20:39For example,
  • 20:39in the next slide is what the
  • 20:41black patients look like,
  • 20:43and they had younger ones
  • 20:45described as age 55.
  • 20:47You can see them in the top row and
  • 20:50older ones at age 75 in the bottom row.
  • 20:54And here I have the white
  • 20:56patients looked in the study.
  • 20:58I think you'll agree they did a
  • 21:00good job of creating socioeconomic
  • 21:02and age related equivalents.
  • 21:06And they asked.
  • 21:11They presented these videos at A
  • 21:12at a meeting of internal medicine.
  • 21:15I believe it was and asked them.
  • 21:17Given all this equivalent information,
  • 21:19asking them who they would recommend
  • 21:22for cardiac catheterization.
  • 21:23The results were really striking.
  • 21:26Both race and sex were highly
  • 21:28significant predictors for rates of
  • 21:30referral for cardiac catheterization.
  • 21:32This was after controlling for all
  • 21:34the other potential predictors,
  • 21:35even controlling for physicians
  • 21:37own assessment of the risk,
  • 21:39they thought each patient presented.
  • 21:42They also found an important
  • 21:44interaction between race and sex
  • 21:46with black women being referred
  • 21:48much less than any other group.
  • 21:50With the sophisticated ways in which they
  • 21:52had controlled for other predictors,
  • 21:53it was hard to say that anything other
  • 21:56than physicians lack of referral
  • 21:58could account for these differences.
  • 22:02So this introduced the whole
  • 22:04notion of physician. Bias. Now.
  • 22:08Unequal treatment was focused
  • 22:10primarily on unequal access to care and
  • 22:14therefore unequal medical treatment.
  • 22:16It uncovered this individual
  • 22:19level unconscious bias.
  • 22:21But these early 21st century studies
  • 22:23and some late 20th century studies
  • 22:26couldn't say much of anything.
  • 22:28About the social determinants of health.
  • 22:31The structural injustices that
  • 22:34disadvantaged communities of color.
  • 22:36Thanks to social epidemiologists like Nancy
  • 22:40Krieger and sociologist like David Williams.
  • 22:44Also, a legal historian,
  • 22:46Richard Rothstein and a
  • 22:48philosopher Elizabeth Anderson.
  • 22:50We can now trace the connection between
  • 22:53historical and political injustices
  • 22:55that in turn create unequal social
  • 22:58determinants of health and how those
  • 23:02ultimately create inequitable health
  • 23:04outcomes for African Americans.
  • 23:07So the early studies were at an
  • 23:10individual level of individual bias,
  • 23:12and the later studies connect a history
  • 23:17of discrimination to social inequities,
  • 23:20which in turn are the reason
  • 23:23for the health inequities.
  • 23:25I'm going to give you just
  • 23:26a couple of examples.
  • 23:27Historical research shows that
  • 23:29most African American soldiers
  • 23:31returning from World War Two were
  • 23:33blocked from access to the GI Bill.
  • 23:35And they were therefore denied the
  • 23:38same opportunities for education that
  • 23:40white Americans got from that bill.
  • 23:42Think about that.
  • 23:42Think about the role that the GI Bill
  • 23:45might have had in your own family.
  • 23:47I know that in my family it
  • 23:49was absolutely critical.
  • 23:49My dad came back from World War Two.
  • 23:53And he went to college and later to
  • 23:56professional school on the GI Bill.
  • 23:57His education that education paid
  • 24:00for by a grateful country lifted my
  • 24:03whole family into the middle class.
  • 24:05And is responsible for a lot of the
  • 24:07opportunities I've had in my own life,
  • 24:09and even in the lives of my kids.
  • 24:13Those benefits were mostly not
  • 24:15available to black returning
  • 24:17soldiers and their families.
  • 24:19Also, the practice of 20th century redlining,
  • 24:22which we've all heard about,
  • 24:23has also denied black
  • 24:24Americans access to mortgages,
  • 24:26and that too has had a tremendous
  • 24:28ripple effect across generations.
  • 24:30It locked African Americans into
  • 24:33residentially segregated neighborhoods
  • 24:34with worse schools with which then
  • 24:37links to poorer prospects for higher
  • 24:40education and well paying jobs.
  • 24:42Not to mention the toll that's
  • 24:44taken by poor housing stock,
  • 24:46lead contamination,
  • 24:47food deserts,
  • 24:48and a lack of safe green recreational spaces.
  • 24:53We also know that the daily experience
  • 24:56of discrimination that black Americans
  • 24:58face leads to chronic inflammation,
  • 25:00which in turn leads to the onset
  • 25:03of chronic illness roughly 10
  • 25:04years ahead of white Americans.
  • 25:07We now could see that there are multiple
  • 25:10interlocking causal explanations,
  • 25:12including social,
  • 25:14economic and environmental ones.
  • 25:17My colleague Tia Powell,
  • 25:18who heads the bioethics center at Montefiore,
  • 25:21shared an example with me
  • 25:23that makes this point.
  • 25:24Modify your as you probably know,
  • 25:26is located in the Bronx,
  • 25:27the poorest most disadvantaged
  • 25:29borough in New York City a
  • 25:32Montefiore pediatric surgeon,
  • 25:33noticed that her practice was getting
  • 25:36far more children with broken bones,
  • 25:38particularly among black boys,
  • 25:41than one should expect.
  • 25:43It would be possible to hypothesize
  • 25:45many reasons right,
  • 25:46including nutrition, genetics, neglect.
  • 25:48But it was determined eventually that the
  • 25:52main reason was lack of parks and spaces.
  • 25:55To play, these kids were playing
  • 25:57on the street and running into
  • 25:59traffic after errant falls.
  • 26:01As the story goes,
  • 26:02the pediatric surgeon noticed this
  • 26:04pattern in these young boys and did
  • 26:07something more than surgery to address it.
  • 26:10She worked with the community to
  • 26:12create green recreational space.
  • 26:16There are similar efforts
  • 26:18unfolding today in Denver,
  • 26:19where the community is planning on
  • 26:21planting hundreds of trees in its
  • 26:24most disadvantaged neighborhood.
  • 26:25They're doing this as an environmental
  • 26:27adaptation to global warming because it's
  • 26:30been recognized that these segregated
  • 26:31areas where historically there's been
  • 26:33little to no public investment in trees
  • 26:35or parks are experiencing harmful
  • 26:38health effects as temperatures rise.
  • 26:41So the question I'd like to pose to you,
  • 26:43in which I hope we can discuss at the end,
  • 26:46is how far do health care providers
  • 26:49responsibilities actually go?
  • 26:51I'll share my answer.
  • 26:53It's that, at a minimum,
  • 26:55health care providers should be
  • 26:57studying disparities in their
  • 26:59own patient populations and then
  • 27:01designing interventions specifically
  • 27:03targeted to redressing the observed
  • 27:05problems in under referrals, care,
  • 27:08delivery and follow-up services.
  • 27:10But one can also go beyond care,
  • 27:13delivery into community interventions.
  • 27:15For you know.
  • 27:18I've given you a couple examples.
  • 27:19Another example would be that some
  • 27:21health systems are working with lawyers
  • 27:23and tenants rights organizations to
  • 27:24make sure that landlords respond
  • 27:26to environmental threats,
  • 27:28undermining Children's Health.
  • 27:29And some institutions have become so
  • 27:32frustrated by repeat bouts of life
  • 27:34threatening asthma that they are
  • 27:36directly providing air conditioners
  • 27:38themselves for the homes of their
  • 27:41pediatric patients with asthma.
  • 27:44So how far do you think healthcare
  • 27:47professional responsibilities should go?
  • 27:48What is reasonable to expect
  • 27:51of healthcare organizations?
  • 27:53What should become a core responsibility?
  • 27:55Maybe even a professional obligation
  • 27:58and what should be supererogatory
  • 28:01but praiseworthy?
  • 28:02So let's come back to that in
  • 28:05the conversation.
  • 28:05And now I want to enter kind
  • 28:07of the third part of my talk.
  • 28:09I've already talked about.
  • 28:10You know our emphasis on rescue
  • 28:12rather on cure rather than rescue.
  • 28:15I've talked about a kind of
  • 28:18blindness to inequity,
  • 28:19and now the third thing I want to talk about.
  • 28:23Is shown in this slide the way in
  • 28:27which vaccine refusal shines a light.
  • 28:30On what I want to call
  • 28:32unfettered individualism.
  • 28:38One of the fault lines exacerbating distrust
  • 28:41and making it very hard to figure out how
  • 28:43to live together has been the challenge
  • 28:45of navigating an age old ethical tension,
  • 28:48which is always seen in pandemics
  • 28:50and is very common in public health.
  • 28:53The tension between individual liberty
  • 28:56on the one hand and the common good.
  • 28:59There's a long tradition of laws,
  • 29:01policies, and norms that have recognized
  • 29:04that during times of existential threat.
  • 29:07Like pandemics, the state needs and
  • 29:10must have the authority to restrict some
  • 29:13liberties demanding quarantine or isolation,
  • 29:16or cordoning off a region
  • 29:19by restricting travel.
  • 29:20This goes back a really long way.
  • 29:22I want to share a nice experience I had.
  • 29:24I was in Dubrovnik,
  • 29:26Croatia several summers ago and my host
  • 29:29pointed with great pride to this building.
  • 29:33The building with the red roof.
  • 29:36He told me this was the first
  • 29:39facility in Europe to quarantine
  • 29:42international travelers to Dubrovnik,
  • 29:44Dubrovnik.
  • 29:44At that time was the New York City or
  • 29:48the Hong Kong of its time a major hub
  • 29:51of international trade and travel.
  • 29:54This building was built for quarantine.
  • 29:58In 1377,
  • 30:00more than 600 years ago.
  • 30:03He was proud of this because it
  • 30:06demonstrated his nation's very early,
  • 30:08though admittedly rudimentary
  • 30:09understanding of science and of
  • 30:12infectious disease transmission,
  • 30:13and because it showed a state governing
  • 30:15well by acting to protect its population.
  • 30:20Today, there's a dangerous
  • 30:22misunderstanding of liberty.
  • 30:24People are waving.
  • 30:25Don't tread on me flags both
  • 30:27literally and figuratively,
  • 30:29asserting that state requirements to
  • 30:30wear a mask or to get vaccinated are
  • 30:33serious restrictions on their liberty.
  • 30:38Despite all these this pushback,
  • 30:42it looked as though.
  • 30:44Employer mandates might turn the
  • 30:46tide and get us to a point where
  • 30:50we had maximum vaccination rates.
  • 30:52The Biden administration implemented an
  • 30:55OSHA rule that all employers with 100
  • 30:58employees or more must require either
  • 31:01vaccination or that employees be tested
  • 31:03frequently and have negative tests.
  • 31:06Of course, some people complained,
  • 31:08but in the end rather than lose their
  • 31:11jobs or test so frequently that many
  • 31:13people were beginning to get vaccinated,
  • 31:15the the mandate worked and I became
  • 31:18hopeful that the United States would reach
  • 31:21a more appropriate level of vaccination.
  • 31:24But now, just as it was showing promise,
  • 31:27states began passing legislation and
  • 31:30their governors drew up executive
  • 31:32orders to make it illegal for school
  • 31:34districts or county governments to
  • 31:36require basic protections like masks.
  • 31:38And some states attempted to stop
  • 31:42employers from requiring vaccinations
  • 31:44as a condition of work.
  • 31:46Eventually, in January 2022,
  • 31:47just a few months ago,
  • 31:49the issue came before the US Supreme Court.
  • 31:52Which allowed a state prohibition against
  • 31:56the OSHA employer mandate to stay in place.
  • 31:59That SCOTUS decision was the end of,
  • 32:02in my view,
  • 32:02of any chance to get very widespread
  • 32:05levels of vaccination.
  • 32:06The employer mandates were working.
  • 32:09The states tried to limit them
  • 32:10and the US Supreme Court allowed
  • 32:12the prohibition to stand.
  • 32:16Similarly, a US District Court in
  • 32:17Florida has overturned a federal
  • 32:19mass mandate on public transportation
  • 32:21that's still being played out.
  • 32:22I want to also mention because this is
  • 32:25an audience of healthcare workers that
  • 32:27healthcare worker mandates have stayed in
  • 32:29place and have been reaffirmed repeatedly.
  • 32:33I'm talking about general
  • 32:36employment mandates,
  • 32:37employer mandates in general.
  • 32:41This recent Supreme Court decision on the
  • 32:43federal mandate for employer requirements
  • 32:46threatens the federal government's
  • 32:48ability to protect the population,
  • 32:49not just during this pandemic.
  • 32:52But it could vastly limit the
  • 32:54federal ability to manage all manner
  • 32:56of future public health crises.
  • 32:58Our society is failing to recognize that
  • 33:00many of the biggest challenges we face,
  • 33:03cross state lines and our
  • 33:06federal emergencies that require
  • 33:08coordinated federal assistance.
  • 33:10And rules for the common good.
  • 33:16These actions taken against vaccination
  • 33:18and mask mandates are being justified
  • 33:21on the basis of liberty claims.
  • 33:23And in my view these are false claims.
  • 33:25The ones that are based on a very
  • 33:28thin understanding of liberty.
  • 33:30For hundreds of years,
  • 33:31political philosophies of all types
  • 33:33have recognized that one's rights
  • 33:36end where one's actions harm others.
  • 33:38John Locke, who 17th century
  • 33:40writings on liberty,
  • 33:41were greatly influential on our
  • 33:43nation's founders and are on
  • 33:45our own Constitution emphasized
  • 33:47that liberty is not synonymous
  • 33:50with the license to harm others.
  • 33:53This quote is a wonderful quote
  • 33:56from his writings in 1690.
  • 33:58Reason teaches all mankind,
  • 34:00who will but consult it.
  • 34:02That being all equal and independent,
  • 34:05no one ought to harm another in his life,
  • 34:07health, liberty or possessions.
  • 34:11The lives of the immunocompromised,
  • 34:13for whom the vaccines may be less protective,
  • 34:15as well as the health of many people
  • 34:18contracting long COVID are at stake.
  • 34:20In fact,
  • 34:20all of our health is at stake
  • 34:22because so long as there are
  • 34:24large populations on vaccinated,
  • 34:26we may see more and more mutations,
  • 34:28and some of them may prove
  • 34:30more and more lethal.
  • 34:32But the arguments about liberty are,
  • 34:35I think,
  • 34:36to wrongheaded because it's not only
  • 34:38that our actions are harming others,
  • 34:41and so you can't Trump.
  • 34:42You can't use liberty as your
  • 34:44excuse if you're harming others,
  • 34:45but also it's important to
  • 34:48ask what is liberty for?
  • 34:51What does liberty for if it's not?
  • 34:54To create the conditions in
  • 34:56which people can flourish.
  • 34:58And as new variants emerge like the
  • 35:00next generation of Omicron's Omicron sub
  • 35:02variants that we're seeing right now,
  • 35:04there is growing likelihood of a return
  • 35:07to restrictions on social interaction,
  • 35:09travel, recreational activities,
  • 35:10and in person education far
  • 35:13from supporting liberty.
  • 35:15Vaccine refusal is undermining everyone's
  • 35:17ability to pursue their life goals,
  • 35:20which of course is the reason we care so
  • 35:22deeply about liberty in the first place.
  • 35:25Now I don't mean to imply that
  • 35:28public policy here is cut and dry.
  • 35:31You know black or white.
  • 35:32It's actually very nuanced.
  • 35:34Not all public health measures are
  • 35:36reasonable nor self evidently,
  • 35:38right.
  • 35:40For us to support limitations on free
  • 35:43movement and constraints on liberty,
  • 35:45the limitations and the constraints should
  • 35:48be reasonable and proportionate and
  • 35:50not unduly restrict individual rights.
  • 35:53The keywords here are the qualifiers
  • 35:57unduly reasonable, proportionate,
  • 35:59like many criteria in ethics.
  • 36:02They require careful consideration,
  • 36:03and they're not self evident.
  • 36:06People can legitimately disagree
  • 36:07when a law or policy goes over the
  • 36:11line to become unduly restrictive
  • 36:13or unreasonable or disproportionate.
  • 36:16But in order to be able to draw those
  • 36:19lines to make any well considered judgments,
  • 36:22we need to have enough trust in one
  • 36:24another to have a meaningful conversation.
  • 36:27In the end,
  • 36:28government policies may not be
  • 36:30acceptable to everyone.
  • 36:31They rarely are universally accepted,
  • 36:34but they should at least be informed
  • 36:37by science.
  • 36:37Discussed and trustworthy venues and
  • 36:40include explanations and justifications
  • 36:42that are transparent and well explained.
  • 36:46And of course we shouldn't just
  • 36:48do everything scientists tell
  • 36:50us. Ultimately, questions like to
  • 36:52lock down or not, or to mandate
  • 36:55vaccines are political questions.
  • 36:56They should be informed by science, but.
  • 36:59They shouldn't be decided by scientists.
  • 37:02They should be decided through civic
  • 37:05participation and good governance.
  • 37:07And unfortunately its civic participation
  • 37:11that is now threatened by the
  • 37:13forces that have undermined trust,
  • 37:15made all of us vulnerable to
  • 37:19conspiracy theories and demagoguery.
  • 37:21And greatly impeded our ability
  • 37:24to manage this pandemic.
  • 37:26Earlier this year,
  • 37:27the Hastings Center examined the
  • 37:29erosion of democracy in the United
  • 37:31States and offered recommendations
  • 37:33for building more robust,
  • 37:35respectful and inclusive
  • 37:37citizen participation.
  • 37:39The next slide shows the cover of our
  • 37:41report and I hope you can see the subtitle.
  • 37:44Let me read it for you.
  • 37:45It's called democracy in crisis.
  • 37:48Civic learning and the reconstruction
  • 37:51of common purpose by civic learning.
  • 37:55We meant all the activities
  • 37:57by which citizens learn about,
  • 37:59talk about,
  • 38:00debate and make collective decisions
  • 38:03about civic issues.
  • 38:05This happens at many many levels and
  • 38:07takes many forms from classroom debates
  • 38:10to community town halls to formal,
  • 38:13structured deliberations.
  • 38:14When civic learning is encouraged
  • 38:16and practiced,
  • 38:17people develop habits of the heart.
  • 38:19In the mind that build trust
  • 38:21and a sense of common purpose.
  • 38:23By doing this thinking together,
  • 38:25we build trust.
  • 38:27But citizen participation has
  • 38:29been in decline for decades.
  • 38:32So our report.
  • 38:33Describes a path forward for
  • 38:36strengthening it.
  • 38:38First and foremost,
  • 38:39we take justice to be a basis for
  • 38:42civic participation and that means
  • 38:44redressing systemic racism as well
  • 38:47as the vast material inequality.
  • 38:50The wealth gap in American Society,
  • 38:53which has left large numbers of
  • 38:55people both black and white living in
  • 38:58both rural and urban areas in great
  • 39:01financial precarity and that vulnerability.
  • 39:05Predisposes people to
  • 39:07resentment against elites.
  • 39:09And makes them susceptible.
  • 39:11Makes all of us who feel that
  • 39:15susceptible to conspiracy theories.
  • 39:18Civic learning requires a
  • 39:19sense of common purpose,
  • 39:21but citizens will not have a sense of
  • 39:23common purpose when they recognize
  • 39:25that their interests are ignored
  • 39:27and they and the communities they
  • 39:29live in are struggling to survive.
  • 39:32So the provision of basic public
  • 39:34goods like healthcare,
  • 39:35a quality education,
  • 39:37food,
  • 39:37security and housing are essential
  • 39:39to building the conditions for
  • 39:42civic participation in a democracy.
  • 39:44Our report also acknowledges that the
  • 39:46business models of broadcast media,
  • 39:48the Internet and social media,
  • 39:50monetize public attention and
  • 39:52therefore create strong incentives
  • 39:55to share outrageous,
  • 39:56bizarre and conflict provoking information.
  • 40:00This has to be fixed through regulation
  • 40:03or perhaps replaced with business
  • 40:05models that create incentives to surface,
  • 40:07you know more trustworthy information,
  • 40:09but it is a huge problem.
  • 40:11There are many other recommendations
  • 40:13in the report.
  • 40:14Including reforms to science education.
  • 40:17Beautiful essay on that and the
  • 40:19restoration of civics in school curriculum.
  • 40:23I'm not going to try to attempt
  • 40:25to summarize all of the essays
  • 40:27in this essay set,
  • 40:28but the Hastings Center will
  • 40:30provide a summary of the findings
  • 40:32and the link to the report itself.
  • 40:34If you contact Schiefer busy,
  • 40:37you can see her email VIZIS.
  • 40:41At thehastingscenter.org,
  • 40:44I also think it's retrievable on my
  • 40:47Twitter account and I'll check on that
  • 40:50after this talk at Mildred's Salon.
  • 40:55So let me let me wrap this up with a summary.
  • 41:00I've talked about trust.
  • 41:02If we can regain trust in
  • 41:05each other in our government.
  • 41:09And in science, then I hope.
  • 41:11We will have a strong enough foundation
  • 41:15to commit to some core values essential
  • 41:18to working together to address
  • 41:20collective problems like pandemics.
  • 41:22So first I see trust as the
  • 41:26primary enabling condition. And.
  • 41:29If we regain it and build trust. Umm?
  • 41:37I hope we will be able to rebuild
  • 41:40public health infrastructure.
  • 41:44I've talked about our failure to
  • 41:46build it because we have undervalued
  • 41:49prevention and overvalued cures.
  • 41:51I've also talked about equity
  • 41:54both within our nation.
  • 41:57Think that there's another
  • 41:59point on the next slide.
  • 42:00Yes, we could advance the slide.
  • 42:02I've talked about equity in three ways,
  • 42:04equity within our nation.
  • 42:05I've just talked a lot about the
  • 42:08wealth gap and about systemic racism.
  • 42:12So that we need to address financial
  • 42:15precarity and discrimination that
  • 42:17breeds distrust and cynicism.
  • 42:20I've talked about equity across generations,
  • 42:22so that we care about things that might have
  • 42:26future benefit for future beneficiaries,
  • 42:29not just ourselves.
  • 42:29This is critical not just for building
  • 42:32public health infrastructure for pandemics,
  • 42:34but it's obvious that that is one
  • 42:36of the stumbling blocks for our
  • 42:38ability to address climate change.
  • 42:40And I've talked about equity between
  • 42:44nations so that we can provide assists to
  • 42:47low and middle income countries so they
  • 42:50will have a chance to protect themselves.
  • 42:52And then I've also talked about rebalancing,
  • 42:55liberty and personal sacrifice so that
  • 42:57we are willing to accept some modest
  • 43:00infringements on our liberty in order
  • 43:03to act on behalf of the common good.
  • 43:07With these values in mind.
  • 43:10That's sort of a summary of other
  • 43:12things I was trying to the point I was
  • 43:14trying to make throughout this talk.
  • 43:16And and I know that some of it is.
  • 43:21I don't know, you know,
  • 43:22you don't necessarily end up
  • 43:24in a happy place. When we,
  • 43:25when we describe these problems.
  • 43:26So I do want to end with
  • 43:29a more optimistic message.
  • 43:31I've named these threats,
  • 43:33but there are also important cultural
  • 43:35shifts toward a more compassionate,
  • 43:37inclusive future.
  • 43:40And let me name just a few things
  • 43:41that do give me a lot of hope
  • 43:43despite the alarming growth
  • 43:45in white supremacist groups.
  • 43:46Recent polls show that a much
  • 43:48larger percentage of us than
  • 43:50ever before in American history
  • 43:52believe that racism is a problem.
  • 43:54There's also growing recognition
  • 43:56that hourly wages have to rise
  • 43:58and even support in some quarters
  • 44:00across the political spectrum,
  • 44:01really across it.
  • 44:03For a universal basic income,
  • 44:05because people are recognizing that
  • 44:08artificial intelligence and robotics
  • 44:10is likely to displace millions of workers.
  • 44:13Scientists,
  • 44:13as I mentioned before,
  • 44:15have shared their findings with
  • 44:17unmatched speed and collaboration
  • 44:18and healthcare professionals have
  • 44:20demonstrated enormous fortitude far
  • 44:22beyond what should be expected of you.
  • 44:25Demonstrating that there is ample goodness,
  • 44:27compassion,
  • 44:28and courage among Americans.
  • 44:30So I see these as hopeful signs if
  • 44:34we can grasp these glimmers of hope
  • 44:37and amplify the core values that I've
  • 44:39been talking about in this talk,
  • 44:41I think we can choose.
  • 44:42A wiser path and we can build a stronger,
  • 44:45more sustainable and more trustworthy
  • 44:49society. That's it, thank you.
  • 44:53That was marvelous really. It really was.
  • 44:55It was a I mean quite a quite a tour.
  • 45:01And I appreciate the last bit
  • 45:02of optimism because I was I was
  • 45:04toward the end kind of looking for
  • 45:06something sharp to cut myself with.
  • 45:07I mean by the end of this,
  • 45:09but but you know, we can run away
  • 45:12from it or we can face it right?
  • 45:13That's our, that's our option.
  • 45:16The idea of sacrificing for the
  • 45:19future is such an important one,
  • 45:22that that investing in things I mean
  • 45:24getting to your initial issue and to
  • 45:26the and to the talk about the pandemic
  • 45:29is is preparing for the next pandemic.
  • 45:31Well, we're not even through with getting
  • 45:34people to invest money that we never pay out.
  • 45:36You know this this the image
  • 45:37of we we've all heard it.
  • 45:39Read and listen.
  • 45:40Of the old man planting a tree under
  • 45:43whose shade he'll never sit to do
  • 45:46some things for future generations.
  • 45:49This was really so nicely done.
  • 45:50I invite folks to to put your comments
  • 45:53or questions into the Q&A portion.
  • 45:55I see there's already several,
  • 45:57so I'm going to get to it here in my friend.
  • 46:01And see what we have.
  • 46:04Let's begin preparations have
  • 46:06become very politicized.
  • 46:08What are your suggestions for mobilizing
  • 46:11desire and overcoming these major
  • 46:13barriers of our current info demic.
  • 46:17Well. I I can make two comments.
  • 46:21I mean it's very troubling and
  • 46:22it's going to be very hard,
  • 46:24but one of the things we've
  • 46:25talked a lot about in our report,
  • 46:27this democracy of crisis in crisis
  • 46:30report is that there's a lot of
  • 46:33opportunity at the local level.
  • 46:35You know, take climate change.
  • 46:36For example.
  • 46:36There's a lot of efforts to do climate
  • 46:39adaptation where you don't have to
  • 46:40fight with each other about the cause.
  • 46:42You don't have to fight over
  • 46:45whether it's man-made or not.
  • 46:46To to make your local community
  • 46:49hardier against water rising and
  • 46:52and heat and things like that.
  • 46:54So there are some promising
  • 46:56examples of where.
  • 46:57If we just stick to working
  • 46:58together to fix a local problem
  • 47:00that everybody can kind of see,
  • 47:01because there is more heat,
  • 47:04there is more water rise we need to
  • 47:06fix some things and not fight about our
  • 47:08differences around what is causing it.
  • 47:10That is one example.
  • 47:14Also. One of the essays.
  • 47:17Actually,
  • 47:18I wrote this with a a very interesting
  • 47:20professor at the Ed school at Harvard.
  • 47:23We talk about how notions of
  • 47:26civic participation have really
  • 47:28eroded in the last 30 years.
  • 47:31It used to be that there were at
  • 47:32least three courses on civics in
  • 47:34every high school experience for
  • 47:36a kid to graduate high school.
  • 47:38They had three and one of them
  • 47:39was problems of democracy.
  • 47:41Where you where nobody was afraid to
  • 47:43bring up real controversial issues
  • 47:45and discuss them in the classroom.
  • 47:47It was the material for for the teaching.
  • 47:50It was it they were real civics examples.
  • 47:53And then this generation doesn't
  • 47:55have that experience.
  • 47:56The whole model of education
  • 47:58has shifted from having a civic
  • 48:01orientation to being financial,
  • 48:03preparing kids for for earning a living.
  • 48:06And the there's.
  • 48:07There's no teaching of that type now.
  • 48:10And of course,
  • 48:11now it's gotten even worse in the last month.
  • 48:12Few months as school and school
  • 48:14boards are becoming a place where
  • 48:16a lot of these polls,
  • 48:18the polarization is getting acted out.
  • 48:20Nevertheless, there there are good examples.
  • 48:23Of reorienting how we?
  • 48:28How we teach kids and prepare
  • 48:30kids for for citizenship,
  • 48:32but the United States was the first
  • 48:34country to have public education
  • 48:36to mandate public education.
  • 48:38Thomas Jefferson said that it was essential
  • 48:41for a democracy to have mandatory
  • 48:43public education to teach people how
  • 48:46to participate in in the in democracy.
  • 48:51And we've just we just
  • 48:52have to get back to that.
  • 48:53We have to keep focusing on that.
  • 48:56The other thing is the Internet,
  • 48:57the party the question had to do with the
  • 49:00Internet and and and Miss disinformation.
  • 49:02The Knight Foundation has just invested.
  • 49:06Scores of millions of dollars to.
  • 49:09Basically,
  • 49:09I don't know if they would use this term,
  • 49:11but I think it's fair.
  • 49:12Basically,
  • 49:13they're trying to create a new field,
  • 49:15a new interdisciplinary field
  • 49:17of inquiry to help us understand
  • 49:20how disinformation gets into our
  • 49:22computers and travels at and
  • 49:24what are the factors that make
  • 49:26disinformation that facilitate the
  • 49:29rapid dissemination of disinformation.
  • 49:32And they're,
  • 49:33they're seeding interdisciplinary research.
  • 49:36About 10 universities to try to really
  • 49:39take a careful look at how is this
  • 49:41happening and how can it be interrupted.
  • 49:47Thank you next question.
  • 49:48How do you reconcile narratives of
  • 49:50preparedness versus rescue when the
  • 49:53tangible experience of most Americans of
  • 49:55color is we demand equitable healthcare?
  • 49:58Which is the right of all people
  • 50:00of color versus institutional and
  • 50:01interpersonal racist and Q, Anon,
  • 50:04and all sectors of American Society?
  • 50:09Additionally, would you speak on
  • 50:11accountability measures for racist
  • 50:13healthcare practices and policies?
  • 50:16I think I could take the second question.
  • 50:17I think I understand the
  • 50:19second question a bit better.
  • 50:22I think that healthcare systems
  • 50:24should be collecting data by
  • 50:27race and looking to see if.
  • 50:30There are differential referrals to
  • 50:32specialist care like we saw in the studies
  • 50:36that the IOM put out in the early 2000s.
  • 50:39I think there's an obligation to be
  • 50:42collecting data about one's own practices
  • 50:45and looking for differences that are
  • 50:47shouldn't be there differences by group.
  • 50:50So I think there's a responsibility
  • 50:52of health systems to collect
  • 50:53that kind of data and learn,
  • 50:55learn from their own patterns and let
  • 50:58their patterns speak to them when, where?
  • 51:00There may be trends that you're
  • 51:01not you that you don't like.
  • 51:03I think that's one really
  • 51:05big area of accountability.
  • 51:07The Hastings Center just sponsored.
  • 51:11A HealthEquity summit. We Co.
  • 51:15Sponsored it with the.
  • 51:17Association of American Medical Colleges.
  • 51:19The double AMC.
  • 51:20The American Medical Association and
  • 51:22the American Board of Internal Medicine.
  • 51:25And we also reached out to nurses.
  • 51:27The American Nurses Association
  • 51:28and all of us work together,
  • 51:30and we developed a two day summit on the.
  • 51:34The first day was on the history of.
  • 51:37It's what I mentioned in my talk.
  • 51:38The first day was on the kind of the history.
  • 51:41What happened in our laws and
  • 51:44policies that ended up with
  • 51:46such residential segregation.
  • 51:48Why do we have all this
  • 51:50residential segregation?
  • 51:50It turns out it's not because people
  • 51:52like to live near each other it it was
  • 51:55actually a consequence of a federal policy.
  • 51:57And we laid that all out in day
  • 52:00one and David Williams showed the
  • 52:02relationship between all that and why
  • 52:05that ends up with health inequities.
  • 52:07Day two we had panels on what
  • 52:11can be done in research.
  • 52:13What can be done in clinical care?
  • 52:14What can be done in clinical education
  • 52:16both for medical and nursing education?
  • 52:18So these are recorded.
  • 52:20We have them all available and I think
  • 52:22the best answer I have for this question
  • 52:25is I gave you Schaefer's email address.
  • 52:29Email her and ask her to
  • 52:30send you all these materials.
  • 52:32It's 8 hours of programming
  • 52:34at least over 2 days.
  • 52:37Thank you so much and someone
  • 52:39actually comments here.
  • 52:40I'm Carol Montgomery Taylor
  • 52:42bioethicist from Omaha, NE.
  • 52:43No question, just appreciation and
  • 52:46also comments that democracy and
  • 52:48crisis is available on Amazon.
  • 52:52There you go. Wow.
  • 52:54It's also about time. She says that
  • 52:57someone addressed the loss of civic
  • 52:59mindedness rampant in our time.
  • 53:00Thank you for that comment, Carol.
  • 53:03A question please,
  • 53:04a significant amount of
  • 53:05vaccine refusal has occurred
  • 53:06within minority communities,
  • 53:08likely because of lack of trust.
  • 53:09As you point out,
  • 53:10how would you balance the need
  • 53:12to build trust with vaccine mandates,
  • 53:15particularly if such mandates
  • 53:16were to undermine trust
  • 53:19so number one? At first there was a
  • 53:21lot of discussion at the beginning of
  • 53:24the pandemic that there were worries
  • 53:27that black Americans would not be and
  • 53:30Native Americans would not be open to.
  • 53:33Vaccine at the same rates as
  • 53:34whites because of lack of trust,
  • 53:36and that's been pretty much disproved.
  • 53:40Black leaders read Tucson, for example.
  • 53:45A number of people put together a social
  • 53:50marketing campaign of black leaders.
  • 53:53Encouraging vaccination in the black
  • 53:55community and also neighborhood
  • 53:57by neighborhood.
  • 53:58Examples of activities like using
  • 54:01hairdressers and stuff and and they
  • 54:03found they were able to increase
  • 54:06black vaccination rates tremendously.
  • 54:08It was a very successful campaign.
  • 54:10And so, and they don't.
  • 54:12They've asked that we stop assuming
  • 54:15that it's lack of trust.
  • 54:17That is the reason there may
  • 54:20be lack of access.
  • 54:21And that when the message
  • 54:23comes from people who.
  • 54:25You look you know who who you identify with.
  • 54:28You're more likely to to respond,
  • 54:31so I think there's been a.
  • 54:33In fact. We've also seen that.
  • 54:34Hope that principle of the
  • 54:36message coming from somebody
  • 54:38you identify with and you trust,
  • 54:40is also true in the evangelical community.
  • 54:42Now we know that evangelicals have
  • 54:44been very resistant to vaccine,
  • 54:46but when you start to look closer,
  • 54:48you can see that there's actually a
  • 54:50fissure in in the evangelical community,
  • 54:52and some were very pro vaccine,
  • 54:54and some were not.
  • 54:56And so again,
  • 54:57a leader from inside that community
  • 54:59itself took it upon himself.
  • 55:01I'm just blocking out his name to develop
  • 55:03a program that answers evangelicals,
  • 55:06questions,
  • 55:06questions that are cynical about
  • 55:08vaccination or cynical about pharmaceutical
  • 55:10companies and answers them from within
  • 55:13the framework of their own thinking.
  • 55:15And he too has been able to have,
  • 55:17you know,
  • 55:18be quite persuasive.
  • 55:20I don't think vaccine mandates
  • 55:21have to just one last point.
  • 55:23I don't think vaccine mandates have to.
  • 55:25That's a good question.
  • 55:27Like if you mandate something,
  • 55:29might you get a?
  • 55:31Might you enhance the?
  • 55:33The whiplash might there be a whiplash
  • 55:35and you might actually undermine trust.
  • 55:38I think that's worth thinking
  • 55:40about and worrying about.
  • 55:42But my reply would be.
  • 55:46If we invested more in Health Communications,
  • 55:50we should be researching.
  • 55:52I just gave you 2 examples
  • 55:54of communication style.
  • 55:55You know the importance of the messenger in
  • 55:57both the black community and the evangelical.
  • 56:00I think we should be studying and investing
  • 56:02in studying Health Communications and
  • 56:05doing Health Communications research.
  • 56:07I believe there is probably a
  • 56:10message about mandates that
  • 56:12people who might otherwise have.
  • 56:15Had a reaction against might begin.
  • 56:18There might be ways to frame
  • 56:21the mandate issue that different
  • 56:24groups could identify with better,
  • 56:27you know if we thought about
  • 56:30like you're helping children,
  • 56:31you're helping your relative who's
  • 56:33immune compromised there have to
  • 56:35be a way to design messages that
  • 56:37helps people get the hot get away
  • 56:40from this cardboard reaction.
  • 56:44There are also I mean.
  • 56:46I think one of the fundamental
  • 56:47questions in terms of lessons
  • 56:48learned a lesson not yet learned.
  • 56:50One of the fundamental questions
  • 56:52that so many physicians have asked
  • 56:54is how is it that I've cared for
  • 56:57this person for the last 30 years?
  • 56:59Last 20 years, the last 10 years.
  • 57:02And I tell this person,
  • 57:03you really for your own
  • 57:04health should get a vaccine,
  • 57:06and then they see something on on
  • 57:08Facebook or they see someone on TV,
  • 57:10tell them otherwise,
  • 57:11and that that's enough to plant
  • 57:13the doubt that they don't get it.
  • 57:14How is it that one?
  • 57:16Trust the stranger that one
  • 57:17never even meets physically
  • 57:19meets over one's own physician.
  • 57:20I think that's a question that
  • 57:23physicians should be doing everything
  • 57:25possible to get the answer to.
  • 57:27How did we lose?
  • 57:28How did we, as a profession,
  • 57:30absolutely lose that?
  • 57:31I mean, I, I mean,
  • 57:32I see it in my own extended
  • 57:34family of people who say, well,
  • 57:35my my pediatrician says going to do this.
  • 57:37But then again,
  • 57:38there's some people who say to that.
  • 57:39Well,
  • 57:39we're the same people that you're
  • 57:41believing over your own pediatrician.
  • 57:42There's
  • 57:43something very damaging
  • 57:44going on, and we're losing.
  • 57:47Trust and expertise of all kinds.
  • 57:49We are, but I have a specific question.
  • 57:51You mentioned the evangelicals,
  • 57:52so can you explain to me why in
  • 57:56particular you talked about vaccine
  • 57:58resistance among evangelicals?
  • 57:59Is there a a theory or is there an
  • 58:02explanation for why this particular
  • 58:04group of individuals would be resistant
  • 58:06to vaccines compared to others?
  • 58:09Perhaps because there was a disproportionate
  • 58:11support for Trump among evangelicals,
  • 58:13so they were following his lead and he was
  • 58:16providing all kinds of disinformation.
  • 58:18Although he wasn't against vaccines,
  • 58:19he should get. I mean,
  • 58:21this was part of the credit for this.
  • 58:22Yeah, he was booed actually when
  • 58:24he finally said no, I'm vaccinated.
  • 58:25You should get vaccinated too at a rally
  • 58:28a few months back and he got booed.
  • 58:30So yeah, I. There's a kind of
  • 58:34mass hysteria going on here.
  • 58:35I I don't know. I can't answer that.
  • 58:38I just I just don't know.
  • 58:39But you're right,
  • 58:40that is what we have to be looking at.
  • 58:42Fair enough,
  • 58:42I want to find the evangelical
  • 58:44program that this Minister did
  • 58:46because he took very seriously
  • 58:48some questions that were coming
  • 58:50from their faith tradition and he
  • 58:52answered them in their own terms.
  • 58:55So I will try to.
  • 58:56I will try to locate
  • 58:57that and send it to you.
  • 58:58Mark
  • 58:59that sounds good. Thank you so much.
  • 59:01Next question please from the
  • 59:03perspective of a practicing
  • 59:04clinician and as a researcher.
  • 59:06Some of this lack of trust and lack of
  • 59:08sacrificing for the common good seems
  • 59:10like it might contribute to the greater.
  • 59:12The satisfaction observed
  • 59:14in healthcare workers.
  • 59:16Do you have any thoughts on how to
  • 59:18publicize this risk to clinician
  • 59:20well-being and the workforce?
  • 59:25Well, should we publicize this to
  • 59:27the clinician to clinicians and the
  • 59:29healthcare workforce? Or should we?
  • 59:33Not publicizing it to the clinicians
  • 59:35rather ohh size it more let people
  • 59:39know that this that this climate is
  • 59:41actually burning out the clinicians.
  • 59:44I think we should be advertising that I
  • 59:46think that's a really good idea, Deborah.
  • 59:50Nurses. Are the most trusted
  • 59:53healthcare professionals of all.
  • 59:56And are also being burned out
  • 59:58and feeling betrayed at real.
  • 59:59And you know resilience.
  • 01:00:02I mean and and physicians are being.
  • 01:00:06You know the pressures are just unbelievable,
  • 01:00:09so I do think people should know that.
  • 01:00:11Absolutely,
  • 01:00:11I think that's a really good idea.
  • 01:00:14I don't know how to do that,
  • 01:00:15but I think it's a good idea to do.
  • 01:00:18You know you would see on the news so
  • 01:00:20often that the worst months of the pandemic
  • 01:00:22so often you would see on the news,
  • 01:00:24they show an emergency room.
  • 01:00:26They show just the mayhem and they show
  • 01:00:27some nurse walking home at the end of
  • 01:00:29her shift and they interviewed some
  • 01:00:30physician who was exhausted and they
  • 01:00:32would talk about how you know this is
  • 01:00:34really terrible and this, you know. And.
  • 01:00:36And once the vaccines came out, of course,
  • 01:00:39then it became to the minds of many,
  • 01:00:41myself included,
  • 01:00:42twice as terrible because so much of this,
  • 01:00:44most of that suffering was actually
  • 01:00:46preventable. Not all of it,
  • 01:00:47but most of it was actually preventable.
  • 01:00:49And to see that going on in the
  • 01:00:51hospitals was just an amazing thing.
  • 01:00:53And I was surprised and discouraged that
  • 01:00:55more people weren't weren't moved by that.
  • 01:00:57But somehow I think they that so many
  • 01:01:00folks just flat don't believe it.
  • 01:01:02They say, well, that's all true,
  • 01:01:03but I've also heard.
  • 01:01:04I mean, we see we saw some of this in some.
  • 01:01:07And and so many things in in the in,
  • 01:01:10it may still exist,
  • 01:01:11but certainly in the earlier years of the
  • 01:01:13climate change debate there were really,
  • 01:01:15you know,
  • 01:01:15there were two sides of the argument.
  • 01:01:17Well,
  • 01:01:17some scientists say that climate change is
  • 01:01:19occurring and some scientists say it isn't.
  • 01:01:21Well,
  • 01:01:21that was the simplistic view.
  • 01:01:22But then you realize, OK?
  • 01:01:23Well, 99 scientists say it is,
  • 01:01:26and there's this one that says,
  • 01:01:27well, maybe it's not,
  • 01:01:28you know,
  • 01:01:29and that person's paid for
  • 01:01:30it by the oil company. So
  • 01:01:31you got. But then put simply,
  • 01:01:33well, there's two points of view.
  • 01:01:35Well, that's too simple.
  • 01:01:35A way to look at it, I recognize.
  • 01:01:37But but the the fact that that in
  • 01:01:40this particular problem the fact
  • 01:01:43that folks because I I don't,
  • 01:01:45it's a, it's a pretty rare physician
  • 01:01:47who was telling people this
  • 01:01:48isn't an issue where don't get,
  • 01:01:50don't get vaccinated that.
  • 01:01:54That that fascinates me and worries me,
  • 01:01:55and that's a question that of course,
  • 01:01:57if we get the answer to,
  • 01:01:58we could fix if we could regain
  • 01:02:00that trust somehow, all right enough
  • 01:02:02to complaining about the trust.
  • 01:02:03Let's hear the next question,
  • 01:02:04one of the lingering legacies of the
  • 01:02:06pandemic is resource scarcity such as
  • 01:02:08recurring shortage of blood products.
  • 01:02:10And now I donated contrast.
  • 01:02:14What lessons have we learned about
  • 01:02:16applying resource allocation frameworks
  • 01:02:18to these shortages in ways that are
  • 01:02:20universal and predictable but also
  • 01:02:22take into account the unique factors?
  • 01:02:24Of each shortage,
  • 01:02:25what are we doing about resource shortage?
  • 01:02:27What do we learn?
  • 01:02:29So I think that.
  • 01:02:32There were efforts all around the
  • 01:02:35country to quickly create guidance.
  • 01:02:38For the concern that we were going
  • 01:02:41to be scarce on ventilators and.
  • 01:02:43A lot of those issues are very relevant
  • 01:02:46to any other kind of commodity scarcity.
  • 01:02:49They happen to be worried about
  • 01:02:51ventilators in the first strokes of this,
  • 01:02:53but the reasoning that was published
  • 01:02:55there were important pieces in all
  • 01:02:58the major medical journals, I think,
  • 01:03:00showed an awful lot of good work.
  • 01:03:02They also evolved over time,
  • 01:03:04especially in two ways.
  • 01:03:07One was that people with disabilities
  • 01:03:10became concerned about the first
  • 01:03:13generation of the guidance.
  • 01:03:15And I.
  • 01:03:17Was because the Hastings Centers
  • 01:03:21for years had.
  • 01:03:24Then looked at a lot of ethical
  • 01:03:26issues at the intersection of
  • 01:03:27bioethics and disability justice.
  • 01:03:29I was particularly following the
  • 01:03:31concerns that people in the disability
  • 01:03:33rights community were raising
  • 01:03:35about these allocation schemes,
  • 01:03:37and so I worked with Matt
  • 01:03:40Winia and Larry Gostin,
  • 01:03:41and we produced a prospective in
  • 01:03:43New England Journal of Medicine.
  • 01:03:45So we were adding our two cents.
  • 01:03:47There was an important two cents.
  • 01:03:49I think it was.
  • 01:03:50We were suggesting modifications
  • 01:03:52to the allocation.
  • 01:03:54Themes that were then dominant
  • 01:03:56by paying attention to their
  • 01:03:58impact on people with disability,
  • 01:04:00and we were integrating the
  • 01:04:03disability rights people's concerns
  • 01:04:05into a guidance on on triage.
  • 01:04:10Basically, and then a second thing,
  • 01:04:13I think we learned in the second
  • 01:04:15or third generation of these
  • 01:04:17guidances was that they also could.
  • 01:04:24Discriminate against.
  • 01:04:27Poor people or people of color
  • 01:04:29because they were based on the
  • 01:04:31likelihood of survivability and if
  • 01:04:34poor people or people of color,
  • 01:04:36have chronic illnesses sooner
  • 01:04:38and are sicker than when they're
  • 01:04:41scored for survivability.
  • 01:04:43They they are dinged in
  • 01:04:45the in the scheme and so.
  • 01:04:50People added a way to account for
  • 01:04:53that that had to do with looking at
  • 01:04:57what neighborhoods people lived in and
  • 01:04:59taking into account that they might,
  • 01:05:01that they try to counterbalance the impact.
  • 01:05:05Also, instead of a raw
  • 01:05:08survivability assessment,
  • 01:05:09they made it narrower so that it
  • 01:05:12you were likely if you were likely
  • 01:05:14to survive to discharge rather than
  • 01:05:17trying to prognosticate about your longevity.
  • 01:05:20Since blacks live less long than white,
  • 01:05:23so we made these kind of tweaks
  • 01:05:25and important.
  • 01:05:26I don't mean to under, you know,
  • 01:05:29undermine their significance with that word.
  • 01:05:30We tweaked the the people,
  • 01:05:33quickly,
  • 01:05:33put together guidances,
  • 01:05:34and then they revised them as
  • 01:05:37they got criticized by disability
  • 01:05:39rights and by communities of color,
  • 01:05:41and came out with another generation
  • 01:05:43of guidance.
  • 01:05:44So I don't think that the the
  • 01:05:46guidance is that different.
  • 01:05:47Depending on what the shortages are,
  • 01:05:49the only other thing I'd like to say.
  • 01:05:51Is that even though I've written
  • 01:05:53on this myself,
  • 01:05:54I'm really kind of tired that bioethics
  • 01:05:58is focusing on rationing schemes rather
  • 01:06:01than fighting for more of what is needed.
  • 01:06:05It's hard, it's hard to.
  • 01:06:08We don't like to be advocates,
  • 01:06:10right?
  • 01:06:10We think of ourselves as scholars
  • 01:06:13and analysts and not advocates.
  • 01:06:15And where is the line between
  • 01:06:18ethical analysis and advocacy?
  • 01:06:19But this question makes me want to say,
  • 01:06:23OK, we've done a lot around
  • 01:06:25rationing in an ethical way.
  • 01:06:26Now,
  • 01:06:27could we also do a little bit of
  • 01:06:29advocacy to bring attention to these
  • 01:06:30shortages and make sure they get fixed?
  • 01:06:33OK, let's get to the next
  • 01:06:36question to that point.
  • 01:06:38Doctor Duffy cuts to the chase almost
  • 01:06:40all of what has been identified as
  • 01:06:42necessary to address the current
  • 01:06:44quagmire in America is denied by a
  • 01:06:46political party of former president
  • 01:06:48and possibly the next president.
  • 01:06:49Does the Hastings Center have an
  • 01:06:51obligation to address this threat
  • 01:06:53and its current practice of sowing,
  • 01:06:55distrust and racism in America?
  • 01:06:59We all have a responsibility
  • 01:07:01and we all need to vote the
  • 01:07:03right and we all need to vote.
  • 01:07:06We need to really be present
  • 01:07:08and not look the other way.
  • 01:07:13That's my answer. We also.
  • 01:07:17Are trying to do that by focusing
  • 01:07:19on civic participation and the
  • 01:07:21conditions that give right.
  • 01:07:22You know that encourage
  • 01:07:23people to participate.
  • 01:07:24Vote and other kinds of forms of
  • 01:07:26civic participation and by bringing
  • 01:07:28attention to what's at stake through,
  • 01:07:30for example, our HealthEquity summit.
  • 01:07:33Thank you. As a physician involved
  • 01:07:36in public health education,
  • 01:07:38I was struck that there were times
  • 01:07:40when public health institutions
  • 01:07:41gave inaccurate recommendations and
  • 01:07:43attempts to guide public behavior,
  • 01:07:45EG initially saying masking was unnecessary,
  • 01:07:48advising the public to take
  • 01:07:50whatever vaccine was available.
  • 01:07:51When M RNA vaccines were clearly
  • 01:07:54superior to conventional vaccines,
  • 01:07:55what are your thoughts on what,
  • 01:07:57if anything, public health
  • 01:07:59institutions and experts can do to
  • 01:08:01avoid contributing to mistrust?
  • 01:08:05Respect the audience I mean.
  • 01:08:09For goodness sakes, that was ridiculous.
  • 01:08:11It was showed such distrust of Americans.
  • 01:08:16And do the homework to figure out if you're
  • 01:08:19I understand they were real worries.
  • 01:08:22People had about messages
  • 01:08:25being too complicated.
  • 01:08:27But do the homework to figure
  • 01:08:28out how you can message it.
  • 01:08:30That's why I was saying I would love I.
  • 01:08:32I do believe that CDC has just formed.
  • 01:08:36And resourced center with MCDC that is going
  • 01:08:38to do more Health Communications research.
  • 01:08:41I sure hope so because they need.
  • 01:08:44They need to treat this like it's a field
  • 01:08:47and study it and put resources into it.
  • 01:08:50If they were worried that a more complicated
  • 01:08:53message was going to undermine people,
  • 01:08:55they should have researched it.
  • 01:08:56Focus grouped it,
  • 01:08:57field tested it and treated it
  • 01:08:59like the important thing it was
  • 01:09:01to come up with something that
  • 01:09:02would help people understand it.
  • 01:09:04But instead they just kind of thought.
  • 01:09:06Americans were too stupid to get
  • 01:09:07it and didn't do their own homework
  • 01:09:09to shape it into a helpful message.
  • 01:09:12Well, was it stupid with the with
  • 01:09:14the mask issues was that they were
  • 01:09:15concerned the public was too stupid
  • 01:09:17or was that they just wanted to make
  • 01:09:19sure the public didn't take things for
  • 01:09:20themselves that were needed elsewhere.
  • 01:09:26Here's another question please,
  • 01:09:27that's a good point.
  • 01:09:28Yeah, that's a good point.
  • 01:09:31Another question, please,
  • 01:09:32do you think the effects of the
  • 01:09:35COVID-19 pandemic and particularly
  • 01:09:37choices made by national leaders
  • 01:09:40in earlier stages will effectively
  • 01:09:42translate to lasting policy changes
  • 01:09:45to prepare for future pandemics?
  • 01:09:49I feel like that's what I was trying
  • 01:09:50to say in my talk. You know that.
  • 01:09:53That's our obligation that that's
  • 01:09:55our obligation, and I hope that
  • 01:09:58we're organizing ourselves now.
  • 01:10:00But I don't know that we are so the
  • 01:10:03White House just came out in January.
  • 01:10:06I think it was with a comprehensive plan
  • 01:10:09for for managing the next pandemic.
  • 01:10:11And and they identified all the
  • 01:10:13things that need to be done.
  • 01:10:15And Elie Adachi ADASHI and Glenn
  • 01:10:20Cohen wrote a piece maybe in JAMA
  • 01:10:24saying great about this report.
  • 01:10:25It's wonderful.
  • 01:10:26It says everything we need to do.
  • 01:10:28And has Congress appropriated
  • 01:10:30the money for it now?
  • 01:10:32And have we geared up?
  • 01:10:34It's going to require enormous coordination
  • 01:10:37across different government agencies.
  • 01:10:38Have we figured out how to do that?
  • 01:10:40No, not yet.
  • 01:10:42Yeah, I don't know,
  • 01:10:44so this I'm not trying to get us depressed.
  • 01:10:46Mark.
  • 01:10:48Well here's another question.
  • 01:10:49Basically along the same lines,
  • 01:10:50the same point as someone points
  • 01:10:52out other than other than the COVID
  • 01:10:54pandemic during the last decade,
  • 01:10:55there were five major influenza pandemics,
  • 01:10:58and each time we face the same
  • 01:11:00problem and deciding who lives
  • 01:11:02despite all preparedness plans.
  • 01:11:04So what are your recommendations?
  • 01:11:05In order not to repeat the same mistake
  • 01:11:08over and over and ensure social justice?
  • 01:11:11So we're the same?
  • 01:11:12Mistake being essentially being unprepared.
  • 01:11:16And this is what we've been
  • 01:11:17talking about all along.
  • 01:11:20Perhaps we need a leader or a small
  • 01:11:23a small set of leaders that have the
  • 01:11:25trust of the vast majority of people
  • 01:11:27and a willingness to a willingness
  • 01:11:29as you put to sacrifice the pressure
  • 01:11:31for the sake of the future to
  • 01:11:33sacrifice not to plant those trees.
  • 01:11:37Comment as an immunocompromised patient,
  • 01:11:39I wear a mask at all times
  • 01:11:41outside of my apartment.
  • 01:11:42Even in the building where I live.
  • 01:11:44I literally bought a mask
  • 01:11:45that says it's just a mask.
  • 01:11:47There seems to be a big problem
  • 01:11:49in certain socioeconomic
  • 01:11:50groups about wearing masks.
  • 01:11:52I can see it between types of mega stores.
  • 01:11:57Gently related to social class. Yeah. Umm?
  • 01:12:08There we go.
  • 01:12:10I don't know someone comments
  • 01:12:12and outstanding conference.
  • 01:12:13They're working on bioethics
  • 01:12:16and medical setting.
  • 01:12:17The Pueblos of New Mexico and Navajo
  • 01:12:20Nation have done an excellent job
  • 01:12:22of getting people vaccinated.
  • 01:12:23It's pointed out.
  • 01:12:26I am an evangelical and and
  • 01:12:28twice boosted and have gotten.
  • 01:12:31Have you shown have you shield?
  • 01:12:32Because I am immunocompromised so
  • 01:12:35there's one individual who tells us that.
  • 01:12:38And maybe if you want.
  • 01:12:40If you're interested,
  • 01:12:41Elizabeth sent us a notice to
  • 01:12:43why you think that within the
  • 01:12:45evangelical community there's a
  • 01:12:47significant resistance to to vaccine.
  • 01:12:49Or if you think that's even true,
  • 01:12:51I guess that that's was your observation.
  • 01:12:54But I think there's diversity there. Yeah,
  • 01:12:57OK, thank you very much for
  • 01:12:59such a compelling talk.
  • 01:13:01Trust is a main criteria for
  • 01:13:03developing the common good for all.
  • 01:13:04How do we come up with a common good
  • 01:13:07paradigm with all our diversities and
  • 01:13:09all the inequities in our society?
  • 01:13:11And we must learn to share rather than
  • 01:13:14sacrifice for individual liberty.
  • 01:13:17How do we do that?
  • 01:13:17You got that figured out really?
  • 01:13:19Yeah, come back next year
  • 01:13:20and tell you OK, yeah.
  • 01:13:25That's a cop says one thing
  • 01:13:26we can all do is vote.
  • 01:13:27I think that's what you said as well.
  • 01:13:29Yes, we have to vote.
  • 01:13:30Not a question but a comment.
  • 01:13:32The resource you asked about
  • 01:13:35evangelicals of fears and concerns
  • 01:13:37can be found in an excellent
  • 01:13:40statement from the Christian
  • 01:13:42medical and Dental Association.
  • 01:13:44Cmda.org explains why
  • 01:13:46vaccinations are important,
  • 01:13:47safe and and involves one's responsibility
  • 01:13:50for the common good of society.
  • 01:13:53This is from John Plank Hill.
  • 01:13:54And so there is this statement from
  • 01:13:57the question medical and Dental
  • 01:14:00Association CMA about the vaccines as
  • 01:14:03an informational point for all of us.
  • 01:14:07What recommendation would you have
  • 01:14:09for changing medical education
  • 01:14:10given these issues with effective
  • 01:14:12public Health Communication as a
  • 01:14:15medical education or I have heard
  • 01:14:17frustration from trainees within this
  • 01:14:19issue and that's a great question.
  • 01:14:21Teach medical students.
  • 01:14:22What do we do differently?
  • 01:14:24What do we do better
  • 01:14:25I I love this question. I mean,
  • 01:14:28I know that medical and nursing
  • 01:14:30education is jam packed and nobody
  • 01:14:32wants to add anything to the curriculum.
  • 01:14:35Isn't that the truth?
  • 01:14:37But why not? I mean, this should become
  • 01:14:40a criterion in in the same way that
  • 01:14:43you have to show that you know how to.
  • 01:14:45Do you know a certain kind of diagnosis.
  • 01:14:47You should be able to show that you sit down.
  • 01:14:50You don't stand up,
  • 01:14:51you look the person in the eye.
  • 01:14:52And you make a statement
  • 01:14:54that open is an opener.
  • 01:14:56I mean there there's ways
  • 01:14:58to learn communications and.
  • 01:15:01I I think we have to do this,
  • 01:15:02especially around vaccine refusal
  • 01:15:04and and, you know, in fairness to the
  • 01:15:06people who lead our educational efforts,
  • 01:15:08there is a great deal of effort that
  • 01:15:10is put into teaching our medical
  • 01:15:12students here at Yale, and I'm sure
  • 01:15:14elsewhere about the communication,
  • 01:15:16the communication we learn about.
  • 01:15:19We teach about both for the medical students
  • 01:15:22and for the residents and Fellows is the
  • 01:15:25one to one communication with a patient.
  • 01:15:27There's the other aspect of it which
  • 01:15:29is a communication on a much broader.
  • 01:15:31Kyle, that's a good point,
  • 01:15:32and every physician doesn't necessarily
  • 01:15:34have to be expert at that home.
  • 01:15:36Would wish that there were more of
  • 01:15:38us who were really good at it who
  • 01:15:40could write in the newspaper or go on
  • 01:15:44television and really gain the trust.
  • 01:15:46And it's frustrating when one sees certain
  • 01:15:49physicians on television who do seem
  • 01:15:51to gain trust and who we look at say?
  • 01:15:53Well, that's one of that's somebody
  • 01:15:55who I really respect. You know?
  • 01:15:57And then you see, you say,
  • 01:15:58how come people aren't listening to him?
  • 01:16:00My goodness.
  • 01:16:01And and then you see someone says
  • 01:16:03something bad about that person.
  • 01:16:05Where did that come from?
  • 01:16:06That it's important to to demonize this
  • 01:16:08person because they're promoting vaccines.
  • 01:16:11For example, very,
  • 01:16:12very frustrating, to say the least.
  • 01:16:15But now I'm getting this depressed.
  • 01:16:16Alright. Hang on here. Umm?
  • 01:16:20Uh, so we have more questions.
  • 01:16:24There is diversity in my church. This was.
  • 01:16:26This was the question about evangelicals,
  • 01:16:27again response from Elizabeth.
  • 01:16:29Thank you, Elizabeth, for this.
  • 01:16:31There is diversity in my church.
  • 01:16:32Only one person of 100 has chosen not to
  • 01:16:35get vaccinated and refused to wear a mask.
  • 01:16:38Also we we are having hybrid services and
  • 01:16:41went completely virtual for some time
  • 01:16:43during the early stages of the pandemic.
  • 01:16:45I think there's a difference between small
  • 01:16:47churches and mega church pastors who
  • 01:16:49have sway over larger groups of people,
  • 01:16:52including their television audience
  • 01:16:53who may have aligned themselves.
  • 01:16:55With POTUS 45.
  • 01:16:59Thank you, that's very helpful to know
  • 01:17:01that is helpful to know. Now I
  • 01:17:03invite more questions in the Q&A.
  • 01:17:10One person comments.
  • 01:17:11Carol comments that she's Native
  • 01:17:13American and was raised in the city,
  • 01:17:16but she knows many who live on the
  • 01:17:19reservation that were literally
  • 01:17:21dying for access to vaccinations.
  • 01:17:23I mean, that's particularly frustrating
  • 01:17:25to think in the US that there's
  • 01:17:27people who can't get the vaccine.
  • 01:17:29Who want it?
  • 01:17:30It's such a, it seems to those
  • 01:17:33who are ill informed like myself.
  • 01:17:35I mean, I realize their storage
  • 01:17:37and transport issues and such,
  • 01:17:38but this isn't this isn't heart surgery.
  • 01:17:40This isn't even a vaccine.
  • 01:17:42I mean, we should try to advertise that.
  • 01:17:44Could she say some more about that?
  • 01:17:46I mean, why isn't there plenty
  • 01:17:49of vaccine on those reservations?
  • 01:17:51I don't understand.
  • 01:17:52We we have. No shortage here.
  • 01:17:55So, and we have refrigerated trucks.
  • 01:17:58I just don't get it.
  • 01:18:02Well, OK, for that I mean the
  • 01:18:05Indian Health service should
  • 01:18:06be held accountable for that.
  • 01:18:10You mentioned at the very
  • 01:18:12beginning of your talk.
  • 01:18:13Now Jonathan, because I I I like that
  • 01:18:15maybe you could talk for a minute more
  • 01:18:17on this because our time is nearly up,
  • 01:18:19but I'm interested in your thoughts
  • 01:18:23on the ethical requirement to prepare.
  • 01:18:27To me there seems an analogy.
  • 01:18:28Once again with with the
  • 01:18:31environmental issues that it it
  • 01:18:34speaks to our obligation to the
  • 01:18:37future in terms of what we do now.
  • 01:18:41And I wonder if you wanted to say
  • 01:18:43anything else about that ethical
  • 01:18:44requirement to prepare kind of
  • 01:18:46flesh that out a little bit more.
  • 01:18:51I, I think that it it it
  • 01:18:54engages preparation engages
  • 01:18:56with so many moral commitments.
  • 01:19:00When you prepare, you demonstrate that
  • 01:19:02you feel you have some accountability.
  • 01:19:05For impacts on future.
  • 01:19:08Events on future people.
  • 01:19:11Future, it's it's.
  • 01:19:13It's a statement almost
  • 01:19:15of your accountability.
  • 01:19:17And it's also a recognition that
  • 01:19:20your actions are interventions
  • 01:19:23that are determinative.
  • 01:19:25It's a it's a form of agency.
  • 01:19:33So it's also preparation I
  • 01:19:35think is going to become more
  • 01:19:37and more important because.
  • 01:19:39People often ask me what do I where
  • 01:19:41do I think bioethics is going?
  • 01:19:43And I think bioethics is.
  • 01:19:45I think the ethical challenges that
  • 01:19:48we're facing now in the 21st century are.
  • 01:19:50Different than the ones we were
  • 01:19:52facing in the 20th century,
  • 01:19:53when bioethics was created.
  • 01:19:57Maybe not different additional,
  • 01:19:59so when bioethics was first created.
  • 01:20:01I mean, I think it's fair to
  • 01:20:03say that we were dealing mostly
  • 01:20:06with individual level concerns.
  • 01:20:08Like the right to die sort of concerns
  • 01:20:12or allocation concerns for rationing,
  • 01:20:15or, you know, that's.
  • 01:20:17They were things that would affect
  • 01:20:19the decisions that were made would
  • 01:20:22affect an individual very seriously,
  • 01:20:24but they didn't really necessarily affect
  • 01:20:27a population like end of life care or
  • 01:20:29fairness in in organ transplantation
  • 01:20:31that would affect an individual
  • 01:20:32if we didn't have a fair system,
  • 01:20:34it would affect an individual,
  • 01:20:36but the kind we still face those kind
  • 01:20:38of problems and value ethics still
  • 01:20:40needs to be thinking about those
  • 01:20:42kind of problems in the 21st century.
  • 01:20:43But now we are facing.
  • 01:20:46Collective decision problems about.
  • 01:20:51How we manage our shared environment? So.
  • 01:20:58Global warming is the perfect example, right?
  • 01:21:02Umm?
  • 01:21:05Pandemics, shared environment.
  • 01:21:06How are we going to manage
  • 01:21:08the shared environment?
  • 01:21:09Because our policies and our what we do,
  • 01:21:12how we prepare is going to affect all of us.
  • 01:21:16It's going to affect a population level,
  • 01:21:19not just the individuals whose lives
  • 01:21:21will be saved by getting an organ
  • 01:21:24that was distributed fairly. So.
  • 01:21:27I mean another example is geoengineering.
  • 01:21:30You know they're now proposals to block
  • 01:21:33sunlight in order to manage global warming.
  • 01:21:36So, like planetary interventions
  • 01:21:38that we think it's important to have
  • 01:21:41IRB's for research studies to oversee
  • 01:21:44oversee research with individuals,
  • 01:21:46now we're going to do these actions that
  • 01:21:48are planetary and there isn't anybody
  • 01:21:50that's responsible for oversight of it.
  • 01:21:52So we're facing what I'm calling
  • 01:21:55collective decisions. Really big.
  • 01:21:58Collective decisions that affect
  • 01:22:00our shared environment.
  • 01:22:02And.
  • 01:22:04They require coordination and preparation.
  • 01:22:08And.
  • 01:22:09I just hope we all realized that
  • 01:22:10we just have to work together and
  • 01:22:12that's why these values that I was
  • 01:22:14mentioning I think come into play
  • 01:22:16and are so important that we have.
  • 01:22:19If we're going to do that,
  • 01:22:19we have to think about equity.
  • 01:22:21Obviously, if it's a shared environment,
  • 01:22:22how does what?
  • 01:22:23What are the distributional
  • 01:22:25effects on different groups?
  • 01:22:27And we have to think about the common good,
  • 01:22:28not just the liberty side.
  • 01:22:31That's my answer,
  • 01:22:33thank you. We have time
  • 01:22:34for one more question.
  • 01:22:38There are many health care
  • 01:22:39facilities that do not mandate
  • 01:22:41the vaccine to their staff,
  • 01:22:42including clinical practitioners.
  • 01:22:43Can you speak about how we,
  • 01:22:46as healthcare practitioners
  • 01:22:47can allow this to be?
  • 01:22:50I just think that's a mistake and I
  • 01:22:52think it's a failure of leadership.
  • 01:22:54I do understand it in small rural
  • 01:22:56hospitals where they're the leadership
  • 01:22:58is just terrified that they're
  • 01:23:00going to have to close, because if
  • 01:23:02they insist upon a vaccine mandate,
  • 01:23:05their employees are going to leave.
  • 01:23:07And I think we've even had instances
  • 01:23:09of that in rural upstate New York,
  • 01:23:11so I understand the pressure on these.
  • 01:23:13I. I'm really do. I don't want to.
  • 01:23:16I don't want to end by,
  • 01:23:17you know, just disrespecting.
  • 01:23:18How hard it is to be the leader of a
  • 01:23:21healthcare organization where there's
  • 01:23:23that kind of resistance and where there's
  • 01:23:26a shortage of healthcare professionals.
  • 01:23:28So if somebody actually leaves
  • 01:23:29because of the mandate,
  • 01:23:31you may have to close your doors.
  • 01:23:34But you know, it's just wrong,
  • 01:23:37and fortunately,
  • 01:23:37even though I was saying that I was
  • 01:23:40sorry to see that the Supreme Court.
  • 01:23:42Vitiated the employer mandate in every case,
  • 01:23:47health care mandates have been upheld.
  • 01:23:50It has to come before the Supreme Court,
  • 01:23:52but in all the other courts lower
  • 01:23:53courts it this has been upheld.
  • 01:23:55Everybody recognizes that there is
  • 01:23:57a responsibility that comes with
  • 01:23:59being a healthcare professional.
  • 01:24:00It's part of your job.
  • 01:24:02To
  • 01:24:03have a responsibility to comment being
  • 01:24:07a citizen in terms of the public,
  • 01:24:09could we haven't come that
  • 01:24:10end because that's really
  • 01:24:11what it comes down to.
  • 01:24:12That question about.
  • 01:24:13What should the Hastings Center do?
  • 01:24:15We all have to be citizens
  • 01:24:17and we all have to vote.
  • 01:24:20Here's one quick quick
  • 01:24:21comment and then I'm going to
  • 01:24:22ask you just one last thing.
  • 01:24:24So this was just thank you, Barbara for this.
  • 01:24:27Richard Russo wrote an excellent article
  • 01:24:28in the Atlantic about the tendency to pay
  • 01:24:31attention to the uninformed Grapevine.
  • 01:24:33Instead of expertise, he called it
  • 01:24:35the I know a guy syndrome mentality,
  • 01:24:38so that's something worth taking a look at.
  • 01:24:40Yeah, we should look at that. That's great.
  • 01:24:41And with that, our time
  • 01:24:43is nearly million wanted.
  • 01:24:44There's a final thought
  • 01:24:45you'd like to leave us with
  • 01:24:47before we close the night.
  • 01:24:48Let's keep our hopes up even as
  • 01:24:51we see the dark. Let's keep.
  • 01:24:53Let's keep our hopes up and
  • 01:24:54keep on working together.
  • 01:24:56That sounds good. I thank you so much.
  • 01:24:58I thank you all for joining us and we'll
  • 01:25:00be back again soon with the next one.
  • 01:25:02You can see our schedule and
  • 01:25:04biomedical ethics at yale.edu.
  • 01:25:06If you Google us and we are sometimes
  • 01:25:10blessed, often blessed with wonderful
  • 01:25:12speakers and so that was certainly one
  • 01:25:14of those nights Doctor Millie Solomon.
  • 01:25:16Thank you so much for this evening.
  • 01:25:18We appreciate it and we say
  • 01:25:19goodnight to you and thanks.
  • 01:25:21Thank you.
  • 01:25:23Thanks everybody, thanks
  • 01:25:24for this opportunity, Mark. See Emily.