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50 Years of Cancer Progress - Survivorship

February 03, 2025
00:00
00:00
29:00
  • 00:00Funding for Yale Cancer Answers
  • 00:02is provided by Smilow Cancer
  • 00:04Hospital.
  • 00:06Welcome to Yale Cancer Answers
  • 00:08with the director of
  • 00:09Yale Cancer Center, doctor Eric
  • 00:11Winer.
  • 00:12Yale Cancer Answers features conversations
  • 00:14with oncologists
  • 00:15and specialists who are on
  • 00:16the forefront of the battle
  • 00:17to fight cancer.
  • 00:19This week, it's a conversation
  • 00:20about survivorship with doctor Tara
  • 00:22Sanft. Doctor Sanft is an
  • 00:24associate professor of medicine and
  • 00:26medical oncology and hematology at
  • 00:28the Yale School of Medicine.
  • 00:30Here's doctor Winer.
  • 00:33Before we get into t
  • 00:35some of the
  • 00:39topics that we're
  • 00:40gonna be discussing, can you
  • 00:41just tell us a little
  • 00:42bit about yourself? How is
  • 00:44it that you
  • 00:45came to this field?
  • 00:47What made you become
  • 00:49an oncologist? And what drew
  • 00:51you to both this area
  • 00:53of patient experience and survivorship,
  • 00:55which I tend to think
  • 00:57are quite complimentary?
  • 00:59Thank you. Well,
  • 01:01I'm from a mid
  • 01:02sized town in Iowa.
  • 01:04I'm a very Midwestern girl,
  • 01:06through and through.
  • 01:08I have two siblings and
  • 01:10my parents now live in
  • 01:11Minnesota, which is where they're
  • 01:13originally from.
  • 01:15And when I was eleven,
  • 01:17my uncle,
  • 01:18who was thirty two,
  • 01:20passed away from pancreas cancer.
  • 01:22And he had two little
  • 01:24kids, and at that time,
  • 01:25there were very
  • 01:28few treatments to offer and
  • 01:30he tried some and they
  • 01:31didn't work and he
  • 01:33passed away within a year
  • 01:34of his diagnosis.
  • 01:37I'm so sorry.
  • 01:38Thank you, and he was
  • 01:40so young particularly for pancreatic
  • 01:41cancer. My heart
  • 01:44breaks for our patients and
  • 01:46at that time of my
  • 01:47life, I was eleven years
  • 01:49old. I didn't really understand
  • 01:50everything that was going on,
  • 01:52but I did know
  • 01:53that the medical team who
  • 01:55cared for him and then
  • 01:56eventually the home hospice
  • 01:58team where he passed away
  • 02:00at home,
  • 02:01really supported my
  • 02:02family
  • 02:04and there was something special
  • 02:06there. And
  • 02:07at that time, I decided
  • 02:08I wanted to become a
  • 02:09doctor. And I didn't know
  • 02:10in my mind that I
  • 02:11would end up in this
  • 02:12field, but looking back, it
  • 02:15was starting at a very
  • 02:17young age. I really
  • 02:18appreciated the relationships
  • 02:20that doctors and patients could
  • 02:22have and especially in really
  • 02:24difficult times.
  • 02:27Of course, you're not a
  • 02:29pancreatic cancer doctor. As it
  • 02:30turns out, you are a
  • 02:32breast cancer doctor. How did
  • 02:33you decide to do that?
  • 02:35Well, I did
  • 02:37training in oncology and palliative
  • 02:39medicine
  • 02:40at Northwestern in Chicago
  • 02:43and I
  • 02:44enjoy the
  • 02:45serious decisions
  • 02:47that patients have to make
  • 02:48and the end of life,
  • 02:50conversations, goals of care.
  • 02:52But I also had a
  • 02:53really good mentor there and
  • 02:55I started running marathons and
  • 02:57I wanted to understand
  • 02:58the benefits of
  • 03:00healthy
  • 03:01decisions, healthy lifestyles
  • 03:03as it relates to cancer
  • 03:04treatment.
  • 03:05And most of this work
  • 03:07was being done in breast
  • 03:08cancer patients. And my
  • 03:09mentor there happened to be
  • 03:10a breast cancer oncologist, and
  • 03:12I kept coming back to
  • 03:14his clinic and talking to
  • 03:15the patients there. And,
  • 03:17so while I still do
  • 03:19a lot of palliative care
  • 03:20type conversations when I'm on
  • 03:22the inpatient service and, of
  • 03:23course, all my patients,
  • 03:25we talk about goals of
  • 03:26care when needed,
  • 03:28I focused on my
  • 03:30research efforts, in terms of
  • 03:32healthy diet and exercise, and
  • 03:33that's
  • 03:34really what got me into
  • 03:36survivorship. That's where that
  • 03:37field started,
  • 03:40in the healthy diet and
  • 03:41exercise.
  • 03:42My research mostly started in cancer
  • 03:44survivors. And I came here
  • 03:45to work with Melinda Irwin,
  • 03:46who is a world renowned
  • 03:48researcher in that field, and
  • 03:50I still work with her
  • 03:51to this day.
  • 03:52That's great.
  • 03:54So let's
  • 03:55talk about survivorship.
  • 03:58Fifty years ago, nobody thought
  • 03:59about survivorship. They just wanted
  • 04:02people to survive.
  • 04:03And if you were so
  • 04:04lucky to survive, you were
  • 04:06really
  • 04:07totally on your own.
  • 04:09And any
  • 04:11scars
  • 04:12from treatment, any scars from
  • 04:14the illness itself, and, of
  • 04:16course, there there can be
  • 04:17many,
  • 04:18were just swept under the
  • 04:20rug, and you were supposed
  • 04:21to be back to your
  • 04:22normal self.
  • 04:24Tell us what's happened with
  • 04:26survivorship over these,
  • 04:28let's say, past
  • 04:29twenty, twenty five years where
  • 04:31it's become
  • 04:32so much more of
  • 04:34a focus of what we do.
  • 04:37Yeah. I think you're exactly
  • 04:38right, Eric. If you
  • 04:40happen to survive cancer when
  • 04:43treatments were evolving,
  • 04:45you were made to feel
  • 04:46very lucky about that and
  • 04:48many people did not survive.
  • 04:50So patients really did feel
  • 04:51grateful,
  • 04:52and they still do to
  • 04:53this day.
  • 04:54But because the advances have
  • 04:56gotten
  • 04:57so staggeringly
  • 04:59much better than they were,
  • 05:00they're not good enough, but
  • 05:01they're
  • 05:02much better. We have, you
  • 05:04know, something like eighteen million
  • 05:06survivors as of
  • 05:08twenty twenty two in the
  • 05:09United States alone. And if
  • 05:11you're diagnosed today,
  • 05:13fifty percent of patients diagnosed
  • 05:15are going to live at least
  • 05:16ten years.
  • 05:17So the number of survivors
  • 05:19is just projected to continue
  • 05:20to grow
  • 05:21and for longer and longer
  • 05:23periods of time.
  • 05:26With that,
  • 05:28people sort of finish their
  • 05:29treatments and they
  • 05:31have these moments of realization
  • 05:32that I've just been through
  • 05:33a lot and I'm not
  • 05:35what I used to be.
  • 05:36I don't feel
  • 05:38the way I used to
  • 05:39feel. I don't look the
  • 05:40way I used to look.
  • 05:41And we then sort of
  • 05:43evolved into really dealing with
  • 05:46things after
  • 05:47treatment was over. We call
  • 05:49it a new normal, which
  • 05:50kind of bothers me because
  • 05:51I think
  • 05:52our responsibility is to try
  • 05:54to mitigate that so that
  • 05:55you're just your normal self.
  • 05:59I've always thought of it
  • 06:00that
  • 06:02whether it's a medical issue
  • 06:04or some other major event
  • 06:06in your life, you go
  • 06:07through it.
  • 06:09For example, you know, the
  • 06:10birth of a child, a
  • 06:12divorce,
  • 06:13a huge job change.
  • 06:16And these things affect us.
  • 06:19We are, as people, the accumulation
  • 06:21of the events that occur
  • 06:23in our lives to some
  • 06:24degree.
  • 06:25And I think it
  • 06:26would be foolish to think
  • 06:27that someone could go through
  • 06:29three months, six months, a
  • 06:30year of cancer treatment and
  • 06:33just resume
  • 06:35where they were
  • 06:36a year earlier. And yet
  • 06:38people's families to this day
  • 06:40still sort of expect it.
  • 06:43They expect it. And I
  • 06:44think there's some patients who
  • 06:48it's a little blip in their radar
  • 06:50and as far as they're
  • 06:51concerned, they're not gonna even
  • 06:52acknowledge that was a
  • 06:54major event and they're just
  • 06:55gonna keep going forward.
  • 06:57So the survivorship team
  • 06:58doesn't resonate with everyone,
  • 07:01but for a not insignificant
  • 07:04number, it does cause
  • 07:06lots of reflection and
  • 07:10side effects, unfortunately,
  • 07:11physical, mental,
  • 07:13spiritual,
  • 07:14emotional, and family and financial
  • 07:16side effects as well. And
  • 07:18that's where the
  • 07:19field of survivorship
  • 07:21recognizes the obligation to try to
  • 07:24make people feel whole again
  • 07:26or even thrive
  • 07:27after cancer and its treatment
  • 07:30so that they're able to
  • 07:31reprioritize
  • 07:32their life to live it
  • 07:33even better
  • 07:34than before.
  • 07:36So apart from
  • 07:38just giving it a name
  • 07:39and talking about survivorship
  • 07:41and recognizing the importance,
  • 07:43what are some of the
  • 07:44biggest advances in the field
  • 07:46over the past
  • 07:48ten years, twenty years?
  • 07:54To me, again,
  • 07:55in my world,
  • 07:57we've really advanced our knowledge
  • 07:59as it relates to
  • 08:01the role of health behaviors
  • 08:04in cancer survivorship.
  • 08:06So the
  • 08:07issue of exercise, for instance,
  • 08:09probably has got the
  • 08:10strongest evidence with it. And
  • 08:13like I said, a lot
  • 08:14of that started in survivorship
  • 08:16research.
  • 08:18What about patients who exercised
  • 08:20before cancer? Did they do
  • 08:22better after if they exercised
  • 08:23after cancer? Could they still
  • 08:25do really well? And the
  • 08:26answers are yes for many
  • 08:28things.
  • 08:29And those side effects that
  • 08:31we induce with our treatments
  • 08:33certainly,
  • 08:34are mitigated with exercise as
  • 08:36an example. But
  • 08:37we've gotten even better at
  • 08:40understanding
  • 08:41the role of exercise in
  • 08:42various side effects and
  • 08:44the dose intensity, if you
  • 08:46will, and the types of
  • 08:48exercises that can help. And
  • 08:49we're still refining all of
  • 08:51that, but to me,
  • 08:52what this all means is that
  • 08:55patients have some control
  • 08:57over
  • 08:59what their behaviors are and
  • 09:01that cancer is a teachable
  • 09:02moment. And as we
  • 09:04even move forward, we're gonna
  • 09:05move all of these
  • 09:07findings into the diagnostic period
  • 09:09to try to, again,
  • 09:11prevent loss of physical function
  • 09:13from happening and prevent cancer
  • 09:14related fatigue from happening in
  • 09:16the first place. So
  • 09:17that's where we are right
  • 09:18now. We still have
  • 09:20some ways to go, but
  • 09:21I see that as
  • 09:22a huge advancement for the
  • 09:23field and it's one that's
  • 09:24being
  • 09:27recognized. And hopefully, we
  • 09:28can even convince insurance to
  • 09:30cover
  • 09:31exercise programs for cancer patients
  • 09:33because we know how well
  • 09:34they do when they actually
  • 09:36exercise.
  • 09:37Well, you know, it does
  • 09:38seem to be
  • 09:39a bit absurd
  • 09:41that we, of course, have
  • 09:43insurance coverage for many
  • 09:45unbelievably
  • 09:46expensive new drugs,
  • 09:49new drugs that oftentimes are
  • 09:51quite beneficial,
  • 09:52sometimes are somewhat beneficial.
  • 09:56But approaches like exercise and
  • 09:59dietary counseling and
  • 10:01psychosocial interventions, which are far
  • 10:04less expensive,
  • 10:05it seems like we have
  • 10:06to go through,
  • 10:08many, many hoops to try
  • 10:11to get those kinds of
  • 10:13services reimbursed.
  • 10:15I do think the culture's gonna be
  • 10:17changing. It used to
  • 10:18be a nice to have,
  • 10:19and I think it needs
  • 10:21to be a must have.
  • 10:22And I think any
  • 10:24comprehensive cancer center understands that,
  • 10:26and we just need
  • 10:28the rest of the culture
  • 10:29to catch up.
  • 10:30Now
  • 10:31the term survivorship
  • 10:33has sort of
  • 10:36been adjusted over the years.
  • 10:37And at one time, we
  • 10:39thought about survivorship as people
  • 10:40who had
  • 10:42completed cancer treatment and
  • 10:45were presumably
  • 10:47pretty likely to be cured.
  • 10:49I think we think of
  • 10:50it a little differently now.
  • 10:51And could you comment on
  • 10:53that?
  • 10:54Yeah.
  • 10:56I will say that my
  • 10:57understanding is way back in
  • 10:59the seventies,
  • 11:01patients were labeled as cancer
  • 11:03victims.
  • 11:04So the term
  • 11:07cancer survivor was meant to
  • 11:09combat that idea.
  • 11:12And,
  • 11:13there was a famous physician
  • 11:14named Fitzhugh Mullan who published
  • 11:17in the New England Journal
  • 11:18in nineteen eighty five, the
  • 11:19seasons of survival, and he
  • 11:21was a survivor himself. And
  • 11:22he said survivorship starts
  • 11:24at diagnosis.
  • 11:26And he
  • 11:27delegated it into certain phases,
  • 11:29so it's different when you're
  • 11:30in treatment versus right when
  • 11:32you finish treatment and you're
  • 11:33realizing you have a lot
  • 11:34of things to deal with.
  • 11:36And then long term survivorship,
  • 11:39you know,
  • 11:40probably that's a better label
  • 11:42for people who've survived many
  • 11:44years without a recurrence and
  • 11:46they enter into long
  • 11:47term surveillance. So
  • 11:49I think survivors are meant
  • 11:51to encompass
  • 11:52anyone with a diagnosis of
  • 11:54cancer.
  • 11:55It's really meant to be
  • 11:56from the diagnosis through the
  • 11:58span of life.
  • 12:00And, you know, again, recognizing
  • 12:02that this is not a
  • 12:04term that resonates with everyone,
  • 12:07not everybody agrees with it,
  • 12:09but it is some
  • 12:10way to
  • 12:12describe this population that deserves
  • 12:14these services especially to try
  • 12:16to make themselves feel better,
  • 12:18you know, during and after
  • 12:19cancer treatment.
  • 12:22Now in terms of the
  • 12:24trajectory of survivorship,
  • 12:26oftentimes,
  • 12:28patients
  • 12:29will be going through
  • 12:32treatment
  • 12:33for three months, six months,
  • 12:35a year, what have you.
  • 12:36Oftentimes, there may side effects
  • 12:38with that treatment.
  • 12:39They finish it, and they
  • 12:41think,
  • 12:42I'm home free.
  • 12:45Life is gonna be great
  • 12:46again.
  • 12:47And
  • 12:48surprisingly to many of our
  • 12:50patients,
  • 12:51they find that transition time
  • 12:52when they're done with treatment
  • 12:54to be a pretty scary
  • 12:56moment, one that at times
  • 12:58they get depressed
  • 12:59and anxious.
  • 13:01What's going on there?
  • 13:04Well, I think that
  • 13:06the post treatment phase and
  • 13:08entering into, you know, this
  • 13:10what we call extended survival,
  • 13:13regardless of your diagnosis, there's
  • 13:15several unifying themes. And
  • 13:17a lot of it can
  • 13:18be a fear of recurrence
  • 13:21and also some anxiety and
  • 13:22depression over
  • 13:24having
  • 13:25a lot of changes in
  • 13:26life.
  • 13:28We at Yale, I'll just
  • 13:29mention, have a multidisciplinary
  • 13:31clinic that's meant to see
  • 13:32patients in this
  • 13:35time between visits, right after
  • 13:37treatment ends and maybe in
  • 13:38the first three, six,
  • 13:40nine, or twelve months to
  • 13:41really
  • 13:42realize how we can optimize
  • 13:44health going forward.
  • 13:46So I think that it's
  • 13:47a real phenomenon and
  • 13:49at least almost
  • 13:50forty percent of patients suffer
  • 13:51from depression, anxiety,
  • 13:54cancer related fatigue,
  • 13:56loss of physical performance, insomnia,
  • 13:58and that's where
  • 13:59a multidisciplinary
  • 14:00clinic or specialists within a
  • 14:02cancer center can really help
  • 14:04get patients back on track.
  • 14:07That's very helpful.
  • 14:10We're gonna take just a
  • 14:11minute now,
  • 14:12and,
  • 14:14we'll be back
  • 14:16shortly. And we'll continue our
  • 14:18conversation
  • 14:19with Tara Sanft,
  • 14:21chief patient experience officer,
  • 14:23director of survivorship
  • 14:25at Yale
  • 14:27Cancer Center.
  • 14:28Support for Yale Cancer Answers
  • 14:30comes from Smilow Cancer Hospital,
  • 14:32where all patients have access
  • 14:34to cutting edge clinical trials
  • 14:35at several convenient locations throughout
  • 14:37the region. To learn more,
  • 14:39visit smilow cancer hospital dot
  • 14:41org.
  • 14:44The American Cancer Society estimates
  • 14:46that more than sixty five
  • 14:47thousand Americans will be diagnosed
  • 14:49with cancer.
  • 15:02Clinical trials are currently underway
  • 15:03at federally designated comprehensive cancer
  • 15:06centers,
  • 15:07such as Yale Cancer Center
  • 15:08and at Smilow Cancer Hospital,
  • 15:11to test innovative new treatments
  • 15:13for head and neck cancers.
  • 15:15Yale Cancer Center was recently
  • 15:16awarded grants from the National
  • 15:18Institutes of Health to fund
  • 15:20the Yale Head and Neck
  • 15:21Cancer Specialized
  • 15:23Program of Research Excellence,
  • 15:25or SPORE,
  • 15:26to address critical barriers to
  • 15:28treatment of head and neck
  • 15:29squamous cell carcinoma due to
  • 15:31resistance to immune DNA damaging
  • 15:34and targeted therapy.
  • 15:36More information is available at
  • 15:37yale cancer center dot org.
  • 15:39You're listening to Connecticut Public
  • 15:41Radio.
  • 15:43Welcome back. This is Eric
  • 15:45Winer with the second half of
  • 15:47Yale Cancer Answers for this
  • 15:48evening. I'm here with my
  • 15:50guest, doctor Tara Sanft, associate
  • 15:52professor
  • 15:54of medicine at Yale School
  • 15:55of Medicine and
  • 15:57chief patient experience officer.
  • 16:00So, Tara, could you
  • 16:03just expand a little further
  • 16:04in this conversation about survivorship,
  • 16:07about what kinds of services
  • 16:09are available to survivors,
  • 16:11not just
  • 16:13at major medical centers, but
  • 16:14in the community?
  • 16:17Yes. I will say that
  • 16:19again, because of
  • 16:20the issues we talked about
  • 16:22before regarding insurance reimbursement,
  • 16:24a lot of these programs
  • 16:28can be
  • 16:29inaccessible to people. And
  • 16:30again, that's one of the
  • 16:31things that I think we
  • 16:32hope to change with our
  • 16:33efforts at Yale.
  • 16:35But within institutions, there's often
  • 16:39programs that cancer survivors have
  • 16:41direct access to because they're
  • 16:42patients there.
  • 16:44So those include
  • 16:45oncology rehab
  • 16:47services, physical therapy,
  • 16:49dietitians,
  • 16:51social workers,
  • 16:52who can oftentimes provide counseling
  • 16:54and provide recommendations
  • 16:57for further treatments of depression
  • 16:59and anxiety.
  • 17:01In the communities,
  • 17:04there are organizations
  • 17:06like LiveStrong at
  • 17:07the Y program, which is
  • 17:08a really creative,
  • 17:11excellent program. If your local
  • 17:13YMCA
  • 17:14offers this and you're a
  • 17:15cancer survivor, I highly suggest
  • 17:17that you look into it.
  • 17:18And it is
  • 17:20a pretty comprehensive program
  • 17:22for some number of weeks.
  • 17:23I think it's twelve weeks
  • 17:24and it's
  • 17:26geared towards cancer survivors to
  • 17:28optimize their health. And as
  • 17:29we've talked about before, a
  • 17:30lot of that includes things
  • 17:32like diet and exercise.
  • 17:34But there's also a community
  • 17:35there of survivors that naturally
  • 17:37forms when people participate.
  • 17:41And there's also places like
  • 17:43Gilda's Club or in Connecticut,
  • 17:45we have a wonderful resource
  • 17:46called Anne's Place,
  • 17:48that can help patients get
  • 17:50connected with various services and
  • 17:52and support groups.
  • 17:54So I'm gonna ask you
  • 17:55to do what is almost
  • 17:56the impossible.
  • 17:58There's a a certain negative
  • 18:00connotation associated with elevator pitches,
  • 18:03but
  • 18:04I would actually like
  • 18:05you to give me the
  • 18:06elevator pitch to the cancer
  • 18:09survivor, to the person who's
  • 18:10had cancer,
  • 18:11is either living with it
  • 18:13or is past that diagnosis
  • 18:15and is
  • 18:16hoping to do well the
  • 18:17rest of their life,
  • 18:19still struggling with
  • 18:21some of the
  • 18:23aftermath of the diagnosis.
  • 18:26And what would you tell
  • 18:27them in terms of
  • 18:28leading the best life they
  • 18:30can at that moment?
  • 18:31Well, I'm gonna pretend
  • 18:33you're one of my patients.
  • 18:36Please, please do.
  • 18:37I would say,
  • 18:38listen, if you're struggling after
  • 18:40cancer treatment, you are not
  • 18:41alone.
  • 18:42This is very
  • 18:44normal for patients to feel
  • 18:46completely untethered after cancer treatment.
  • 18:50And there's lots of issues
  • 18:51that can happen,
  • 18:54and there's lots of people
  • 18:55who wanna help.
  • 18:56And I will say
  • 18:58one size doesn't fit all.
  • 18:59So this is not,
  • 19:01there's not one thing that
  • 19:03you can do that's gonna
  • 19:05be right for everyone. So
  • 19:06why don't we talk about
  • 19:08what all is bothering you
  • 19:09and try to get you
  • 19:10into the most personalized
  • 19:13response that we can and
  • 19:14into a place of recovery
  • 19:16so that you
  • 19:18start to feel better. I'll
  • 19:19also say out of experience
  • 19:21that
  • 19:22these feelings and all
  • 19:24of this doesn't last forever.
  • 19:25There's a period of time
  • 19:27and after which,
  • 19:28cancer won't be on the
  • 19:30top of your mind every
  • 19:31day. But if we can
  • 19:33get that sooner, that relief
  • 19:35of having to deal with
  • 19:37the burden of being treated
  • 19:39and the side effects,
  • 19:40if we can get you
  • 19:41relief sooner, let's do that
  • 19:43and let's take advantage of
  • 19:44everything that we have. That's
  • 19:46great. And I think importantly,
  • 19:48you know, some of our
  • 19:49patients will say, oh, I
  • 19:51don't need help. I have
  • 19:52three very close friends, or
  • 19:54my family is very supportive.
  • 19:56And I think one of
  • 19:57the messages we sometimes have
  • 19:59to communicate is,
  • 20:01that's great that you have
  • 20:02these people, but sometimes there's
  • 20:03a real role
  • 20:05for some professional
  • 20:06assistance
  • 20:08and
  • 20:09assistance from people who are
  • 20:11not necessarily
  • 20:12so intimately involved in your life.
  • 20:16Yeah. And, you know, I'll
  • 20:17just say that,
  • 20:19experts in cancer care, whatever
  • 20:21field it is,
  • 20:23they understand
  • 20:24a broader landscape than
  • 20:26arguably a few good friends,
  • 20:28right? So they can really
  • 20:30help,
  • 20:32share strategies that work for
  • 20:34patients in similar situations because
  • 20:36they are the experts in
  • 20:37that field.
  • 20:39You know, for instance, a
  • 20:40really good friend can help
  • 20:41you feel better, but do
  • 20:42they know about meaning centered
  • 20:44therapy and making sense of
  • 20:45what you've just been
  • 20:46through as it relates to
  • 20:48the context and the story
  • 20:49of your life?
  • 20:51Our social workers know
  • 20:52that, and they can help
  • 20:54counsel patients on how to
  • 20:55make meaning out of what
  • 20:56just happened. And so
  • 20:58that's just one small example
  • 20:59of how the expertise,
  • 21:01I think, is invaluable. And
  • 21:03if you have access to
  • 21:04it,
  • 21:05why not help
  • 21:06yourself?
  • 21:07Well, your other role, of
  • 21:09course, is chief patient experience
  • 21:11officer at Smilow.
  • 21:13Patient experience is such a
  • 21:14huge topic
  • 21:15that I'd actually like to
  • 21:17focus down on one specific
  • 21:19area at least to begin
  • 21:21with,
  • 21:22although we may spend most
  • 21:23of the rest of the
  • 21:24time talking about that. And
  • 21:26that is the area of,
  • 21:28I won't say physician, I'm
  • 21:30gonna specifically say clinician
  • 21:32patient
  • 21:33communication.
  • 21:35And
  • 21:36I often
  • 21:37tell people
  • 21:38that when you're totally healthy,
  • 21:41the part of your quality
  • 21:42of life that is made
  • 21:43up by your relationship with
  • 21:45your medical team is tiny.
  • 21:48Doesn't matter for many people
  • 21:50who their primary care doctor
  • 21:52is exactly,
  • 21:53and they're just not having
  • 21:55enough contact.
  • 21:56But the minute you enter
  • 21:58an illness
  • 21:59situation,
  • 22:01it becomes really important that
  • 22:02that relationship with
  • 22:04the health care team
  • 22:06be right.
  • 22:07And a lot of that
  • 22:08is about communication.
  • 22:09So
  • 22:10talk to us a little
  • 22:11bit about
  • 22:14what you think
  • 22:15patients want in terms of,
  • 22:18communication with their team
  • 22:20and how we can get
  • 22:21better at it because, of
  • 22:23course,
  • 22:24not all
  • 22:25clinicians are created equally.
  • 22:27Yeah. So I think that,
  • 22:28you know, you're touching on
  • 22:29something that when you become
  • 22:31ill,
  • 22:32that's a time of vulnerability.
  • 22:34And so it's fine if
  • 22:36everything's
  • 22:37working well and you just
  • 22:39need,
  • 22:40you know, a little checkup,
  • 22:41it doesn't feel as heavy.
  • 22:42But when you're very vulnerable,
  • 22:44and I would argue that
  • 22:45cancer is one of the
  • 22:46most vulnerable positions to be
  • 22:48put into,
  • 22:50you wanna feel and we
  • 22:51know this from data that,
  • 22:54patients want to feel seen,
  • 22:55heard, and understood.
  • 22:57They want to be known
  • 22:58as a human, not just
  • 23:00the patient with breast cancer
  • 23:02down the hall.
  • 23:05I think that
  • 23:07physicians and clinicians
  • 23:09battling high burnout rates as
  • 23:10a culture in
  • 23:12medicine,
  • 23:13you know, that is the
  • 23:14point that's why they
  • 23:16got into the field that
  • 23:17they want to help
  • 23:18people.
  • 23:20And they understand
  • 23:22that these patients are very
  • 23:23vulnerable and they want to
  • 23:25make them feel seen, heard,
  • 23:27and understood. Now I would
  • 23:28say that we didn't all
  • 23:29learn
  • 23:31communication skills the same way.
  • 23:33And
  • 23:34people say, yeah, but I'm
  • 23:35really good at talking.
  • 23:37But there's actual skills that
  • 23:39we can practice
  • 23:41and that we can employ
  • 23:42with all patients that are
  • 23:44much more likely to lead
  • 23:46to better outcomes and better
  • 23:47relationships if we just repeat
  • 23:49those over and over again.
  • 23:50And I'm happy to talk
  • 23:51about some of those details.
  • 23:53Sure. I think hearing some
  • 23:55of those details would
  • 23:57be great.
  • 23:59When I see patients who
  • 24:00have
  • 24:02come from some other facility,
  • 24:04there are
  • 24:06oftentimes people with cancer who,
  • 24:08you know, adore
  • 24:10their health care team and
  • 24:11feel completely in sync and
  • 24:13have had great communication.
  • 24:14And there are times when
  • 24:16it's just not as good.
  • 24:18And I often wonder what
  • 24:20in those situations where it
  • 24:21hasn't been as good, what's
  • 24:22gone wrong?
  • 24:25I think there's, again, a few
  • 24:26things that we can do
  • 24:28with every patient that sets
  • 24:30us up for success.
  • 24:32And, you know, it sounds,
  • 24:34simple, but you really do
  • 24:36need to be mindful about
  • 24:37these things. So the first
  • 24:38thing is to build rapport
  • 24:39with a patient. And there's
  • 24:41no better time to do
  • 24:42that than right at the
  • 24:43beginning of meeting them,
  • 24:45which really means understanding
  • 24:47who they are. And it
  • 24:48can be a few go
  • 24:50to things like where they
  • 24:51live, who they live with,
  • 24:52what they do.
  • 24:54Those are very simple. But
  • 24:56also things like what's most
  • 24:57important to them or how
  • 24:59have they handled,
  • 25:00you know, vulnerabilities
  • 25:02or medical illnesses in
  • 25:04the past.
  • 25:05Building rapport
  • 25:07builds trust.
  • 25:08And it starts to change
  • 25:10the relationship because I think
  • 25:11the clinicians also start to
  • 25:13see that person as not
  • 25:14just a new breast cancer
  • 25:15patient, but, you know, a
  • 25:16teacher who came an hour
  • 25:18away and is missing work,
  • 25:20and has a couple of
  • 25:21kids at home. Right? So
  • 25:22those are very valuable things.
  • 25:25And the second skill that
  • 25:27we need to employ every
  • 25:29time
  • 25:30is listening
  • 25:31without interruption.
  • 25:34So,
  • 25:35we might think that we're
  • 25:36good at this, but this
  • 25:37is a skill that we
  • 25:38need to practice and, you
  • 25:39know, research has shown
  • 25:41that
  • 25:42doctors in particular,
  • 25:44interrupt their patients around eleven
  • 25:46seconds,
  • 25:48which means that patients barely
  • 25:51get their story out before
  • 25:52I'm sorry. You're done with
  • 25:53that.
  • 25:55And even if it's something
  • 25:56simple like, wait. When was
  • 25:57that? Right? Like, I'm engaged.
  • 25:59I wanna know.
  • 26:00Now you've just sent a
  • 26:02signal.
  • 26:03I'm in charge. I
  • 26:04wanna know an answer to
  • 26:05a question. And, also,
  • 26:07we know that eighty percent
  • 26:08of patients never get back
  • 26:09to their train of thought
  • 26:10once they're interrupted. So it's
  • 26:11really
  • 26:12important to let them tell
  • 26:14their story.
  • 26:15And I'll say one last
  • 26:16fact.
  • 26:17You know,
  • 26:19the vast majority of patients
  • 26:20finish
  • 26:22the bulk of their story
  • 26:23and they
  • 26:24do a natural pause by
  • 26:25ninety seconds.
  • 26:27So I know we all
  • 26:28remember the big talkers
  • 26:29who need to be
  • 26:30interrupted at five minutes, but
  • 26:32they're a small segment of
  • 26:34the population.
  • 26:35Sure. And,
  • 26:37you know, I would argue
  • 26:38that
  • 26:39cancer in particular, but many
  • 26:41other health care fields
  • 26:43are areas where
  • 26:46if as a clinician,
  • 26:48if as a physician,
  • 26:49you don't like talking to
  • 26:51people and hearing their stories,
  • 26:53then
  • 26:54maybe it's not quite the
  • 26:55right role for you.
  • 27:00I agree with you,
  • 27:01and I think that we try
  • 27:03to squeeze everybody into these
  • 27:06round holes. And if you're
  • 27:07a square peg,
  • 27:09there's value in all the
  • 27:10cancer work that you're doing.
  • 27:11It just might not be
  • 27:12in the frontline
  • 27:14relationship.
  • 27:15Or it might be with
  • 27:17some coaching from somebody
  • 27:19who can help that person
  • 27:22reevaluate
  • 27:22their approach and
  • 27:24learn some of these communication
  • 27:26skills.
  • 27:29I'm curious about
  • 27:30this. Have you found that
  • 27:32you have worked with
  • 27:34physicians
  • 27:35around communication
  • 27:37and
  • 27:38that as a result of
  • 27:39that work, they have come
  • 27:41to
  • 27:43enjoy their work and value
  • 27:45it in a way that
  • 27:46they didn't in the past?
  • 27:48Yeah. Actually, I just you
  • 27:49know, just a few weeks
  • 27:50ago, I had a physician
  • 27:51in our group
  • 27:53mention to me that he
  • 27:55changed his behavior after he
  • 27:56went through a communication skills
  • 27:58workshop.
  • 27:59Again, we teach some pretty
  • 28:01basic skills, but to him,
  • 28:02it was life changing.
  • 28:04And it was the
  • 28:05listening without interruption.
  • 28:07He's a wonderful physician. He's
  • 28:08always been well regarded. But
  • 28:10to him,
  • 28:11he would interrupt
  • 28:13frequently, and he didn't realize
  • 28:14that until he took the
  • 28:16workshop and practiced the skills.
  • 28:17And afterwards,
  • 28:19it really changed his
  • 28:21outlook, and I think
  • 28:23that's not the only example.
  • 28:24There's lots of people who
  • 28:26say that it's really changed
  • 28:28how they perceive their relationships
  • 28:30with patients that strengthened them,
  • 28:32which makes us enjoy our
  • 28:33work even more.
  • 28:35Dr. Tara Sanft is an associate professor
  • 28:37of medicine and medical oncology
  • 28:39and hematology at the Yale
  • 28:40School of Medicine.
  • 28:42If you have questions, the
  • 28:43address is cancer answers at
  • 28:44yale dot e d u,
  • 28:46and past editions of the
  • 28:47program are available in audio
  • 28:49and written form at yale
  • 28:50cancer center dot
  • 28:51org. We hope you'll join
  • 28:52us next time to learn
  • 28:53more about the fight against
  • 28:55cancer.
  • 28:55Funding for Yale Cancer Answers
  • 28:57is provided by Smilow Cancer
  • 28:59Hospital.