Distributed, immutable, and transparent biomedical limited data set request management on multi-capacity network
Yu Y, Edelson M, Pham A, Pekar J, Johnson B, Post K, Kuo T. Distributed, immutable, and transparent biomedical limited data set request management on multi-capacity network. Journal Of The American Medical Informatics Association 2024, ocae288. PMID: 39569448, DOI: 10.1093/jamia/ocae288.Peer-Reviewed Original ResearchBlockchain-based systemSmart contractsMedical data managementData access processReal-world scenariosData access historyRuntime metricsAccess transparencyAudit logMetadata InitiativeNetwork speedPerformance gainsSharing requestsAccess historyRequest managementHardware specificationsComputing capacityAverage runtimeData managementSharing processSynthetic dataRequest timeQueryAudit trailData linksDistributed management of patient data-sharing informed consents for clinical research
Pham A, Edelson M, Nouri A, Kuo T. Distributed management of patient data-sharing informed consents for clinical research. Computers In Biology And Medicine 2024, 180: 108956. PMID: 39121682, PMCID: PMC11380755, DOI: 10.1016/j.compbiomed.2024.108956.Peer-Reviewed Original ResearchBenefits of immutabilityBlockchain-based infrastructureMulti-site scenarioResearch Data AccessNode parallelismOn-chainNetwork nodesData accessAudit trailPatient privacyDistribution managementConsent mechanismsData categoriesNodesEfficient wayNetworkAutomated channelAccuracyQueryPrivacyImmutabilityOrchestrationConsent protocolDataExhaustive list