2024
Developing “The Health After Cancer Podcast” to amplify cancer survivors’ voices through digital storytelling
Billman E, Steele N, Servino K, Bumgardner D, Walker K, Smith S, Schapira L. Developing “The Health After Cancer Podcast” to amplify cancer survivors’ voices through digital storytelling. Patient Education And Counseling 2024, 123: 108194. PMID: 38350208, DOI: 10.1016/j.pec.2024.108194.Peer-Reviewed Original ResearchCancer survivorsFinancial burden of cancerFear of cancer recurrenceAdult survivors of childhood cancerSurvivors of childhood cancerMedical professionalsBurden of cancerComprehensive cancer centerDisclosing health informationHuman-centered design principlesEducational resourcesAdvisory board meetingsSurvivorship topicsCare transitionsCancer survivorshipPatient perspectivePatient recommendationsPsychosocial challengesHealth informationPodcast episodesMental healthFocus groupsChildhood cancerCancer diagnosisEducational strategies
2023
A qualitative study of childhood cancer families’ post‐treatment needs and the impact of a community‐based organization in a rural, socioeconomically disadvantaged, majority Hispanic/Latino region
Smith S, Teer A, Ariceaga E, Billman E, Benedict C, Goyal A, Pang E, Pecos‐Duarte C, Lewinsohn R, Smith M, Boynton H, Montes S, Rivera E, Ramirez D, Schapira L. A qualitative study of childhood cancer families’ post‐treatment needs and the impact of a community‐based organization in a rural, socioeconomically disadvantaged, majority Hispanic/Latino region. Pediatric Blood & Cancer 2023, 71: e30798. PMID: 38053230, DOI: 10.1002/pbc.30798.Peer-Reviewed Original ResearchConceptsPost-treatment needsNon-English language preferenceChildhood cancer survivorsChildhood cancerCancer survivorsCBO staffYoung adult childhood cancer survivorsCommunity-based organizationsAdult childhood cancer survivorsHealth disparitiesMedian age 20Year post diagnosisHispanic/Latino residentsLow socioeconomic statusCommunity-based supportFamilies of childrenPost diagnosisAge 48Age 20Language preferenceCancerMental healthChild's diagnosisSocioeconomic disadvantageSocioeconomic status