2018
A Novel Stakeholder Engagement Approach for Patient-centered Outcomes Research
Kim K, Khodyakov D, Marie K, Taras H, Meeker D, Campos H, Ohno-Machado L. A Novel Stakeholder Engagement Approach for Patient-centered Outcomes Research. Medical Care 2018, 56: s41-s47. PMID: 30074950, PMCID: PMC6143220, DOI: 10.1097/mlr.0000000000000790.Peer-Reviewed Original ResearchConceptsClinical Data Research NetworkPatient-centered outcomes researchEngagement of patientsOutcomes research studiesConditions of focusStakeholder advisory boardPatient-centered outcomes research studiesKawasaki diseaseHeart failurePatient advocatesPatientsClinical sitesOutcomes researchSignificant differencesHealth researchCliniciansResearch NetworkResearch prioritiesSetting of prioritiesEngagement strategiesAdvisory BoardFavorable opinionObesityEngagement principlesDisease
2015
A system to build distributed multivariate models and manage disparate data sharing policies: implementation in the scalable national network for effectiveness research
Meeker D, Jiang X, Matheny M, Farcas C, D’Arcy M, Pearlman L, Nookala L, Day M, Kim K, Kim H, Boxwala A, El-Kareh R, Kuo G, Resnic F, Kesselman C, Ohno-Machado L. A system to build distributed multivariate models and manage disparate data sharing policies: implementation in the scalable national network for effectiveness research. Journal Of The American Medical Informatics Association 2015, 22: 1187-1195. PMID: 26142423, PMCID: PMC4639714, DOI: 10.1093/jamia/ocv017.Peer-Reviewed Original ResearchMeSH KeywordsBiomedical ResearchComparative Effectiveness ResearchComputer Communication NetworksDatabases as TopicInformation DisseminationInformation Storage and RetrievalInternetModels, StatisticalMultivariate AnalysisSoftwareConceptsFederated networkData sharing policiesParallel computation methodSharing policiesPolicy management systemData exchange policiesData storage requirementsWeb servicesNetwork queriesQuery functionalityComputation resourcesFederated modelGraphical interfaceData transportCentralized networkStorage requirementsNetwork participantsManagement systemQueriesNetworkComputation methodNew featuresMultivariate statistical estimationDifferent state lawsImportant new featureCreating a Common Data Model for Comparative Effectiveness with the Observational Medical Outcomes Partnership
FitzHenry F, Resnic F, Robbins S, Denton J, Nookala L, Meeker D, Ohno-Machado L, Matheny M. Creating a Common Data Model for Comparative Effectiveness with the Observational Medical Outcomes Partnership. Applied Clinical Informatics 2015, 06: 536-547. PMID: 26448797, PMCID: PMC4586341, DOI: 10.4338/aci-2014-12-cr-0121.Peer-Reviewed Original ResearchMeSH KeywordsCommon Data ElementsComparative Effectiveness ResearchDatabases, FactualDelivery of Health CareFemaleHumansMaleOutcome Assessment, Health CareConceptsOMOP Common Data ModelPerson monthsHealth systemCount of medicationsMore outpatient visitsHealth system databaseMedication administration recordsComparative effectiveness analysisObservational Medical Outcomes Partnership (OMOP) CDMPharmacy fillsEligible cohortOutpatient visitsHigh prevalenceMedicationsComparative effectivenessAdministration recordsCommon data modelCohortMini-SentinelObservational Medical Outcomes PartnershipMonths
2013
Development of a Privacy and Security Policy Framework for a Multistate Comparative Effectiveness Research Network
Kim K, McGraw D, Mamo L, Ohno-Machado L. Development of a Privacy and Security Policy Framework for a Multistate Comparative Effectiveness Research Network. Medical Care 2013, 51: s66-s72. PMID: 23774516, DOI: 10.1097/mlr.0b013e31829b1d9f.Peer-Reviewed Original ResearchMeSH KeywordsComparative Effectiveness ResearchComputer SecurityConfidentialityHumansMulticenter Studies as TopicPolicyResearch DesignPrivacy Technology to Support Data Sharing for Comparative Effectiveness Research
Jiang X, Sarwate A, Ohno-Machado L. Privacy Technology to Support Data Sharing for Comparative Effectiveness Research. Medical Care 2013, 51: s58-s65. PMID: 23774511, PMCID: PMC3728160, DOI: 10.1097/mlr.0b013e31829b1d10.Peer-Reviewed Reviews, Practice Guidelines, Standards, and Consensus StatementsMeSH KeywordsComparative Effectiveness ResearchConfidentialityCooperative BehaviorDatabases, BibliographicHumansSoftwareConceptsData sharingPrivacy-preserving data sharingPrivacy-preserving technologiesEffective data sharingPrivacy technologiesData miningNetwork dataData typesThird-party expertsData tablesSpecific scenariosSharingInappropriate disclosurePractical evaluationPractical impactPatient dataNew technologiesTechnologyPrivacyComparative effectiveness researchMiningPractical toolCER studiesTextTime series
2011
Evaluation of informatics systems: beyond RCTs and beyond the hospital
Lehmannm H, Ohno-Machado L. Evaluation of informatics systems: beyond RCTs and beyond the hospital. Journal Of The American Medical Informatics Association 2011, 18: 110-111. PMID: 21385823, PMCID: PMC3116252, DOI: 10.1136/amiajnl-2011-000145.Commentaries, Editorials and LettersComparative Effectiveness ResearchHospital Information SystemsHumansMedical InformaticsRandomized Controlled Trials as Topic