2020
A systematic literature review of Native American and Pacific Islanders’ perspectives on health data privacy in the United States
Taitingfong R, Bloss C, Triplett C, Cakici J, Garrison N, Cole S, Stoner J, Ohno-Machado L. A systematic literature review of Native American and Pacific Islanders’ perspectives on health data privacy in the United States. Journal Of The American Medical Informatics Association 2020, 27: 1987-1998. PMID: 33063114, PMCID: PMC7727344, DOI: 10.1093/jamia/ocaa235.Peer-Reviewed Reviews, Practice Guidelines, Standards, and Consensus StatementsPrivacy challenges and research opportunities for genomic data sharing
Bonomi L, Huang Y, Ohno-Machado L. Privacy challenges and research opportunities for genomic data sharing. Nature Genetics 2020, 52: 646-654. PMID: 32601475, PMCID: PMC7761157, DOI: 10.1038/s41588-020-0651-0.Peer-Reviewed Reviews, Practice Guidelines, Standards, and Consensus Statements
2017
Mechanisms to protect the privacy of families when using the transmission disequilibrium test in genome-wide association studies
Wang M, Ji Z, Wang S, Kim J, Yang H, Jiang X, Ohno-Machado L. Mechanisms to protect the privacy of families when using the transmission disequilibrium test in genome-wide association studies. Bioinformatics 2017, 33: 3716-3725. PMID: 29036461, PMCID: PMC5860319, DOI: 10.1093/bioinformatics/btx470.Peer-Reviewed Original ResearchAddressing Beacon re-identification attacks: quantification and mitigation of privacy risks
Raisaro J, Tramèr F, Ji Z, Bu D, Zhao Y, Carey K, Lloyd D, Sofia H, Baker D, Flicek P, Shringarpure S, Bustamante C, Wang S, Jiang X, Ohno-Machado L, Tang H, Wang X, Hubaux J. Addressing Beacon re-identification attacks: quantification and mitigation of privacy risks. Journal Of The American Medical Informatics Association 2017, 24: 799-805. PMID: 28339683, PMCID: PMC5881894, DOI: 10.1093/jamia/ocw167.Peer-Reviewed Original Research
2016
Genome privacy: challenges, technical approaches to mitigate risk, and ethical considerations in the United States
Wang S, Jiang X, Singh S, Marmor R, Bonomi L, Fox D, Dow M, Ohno‐Machado L. Genome privacy: challenges, technical approaches to mitigate risk, and ethical considerations in the United States. Annals Of The New York Academy Of Sciences 2016, 1387: 73-83. PMID: 27681358, PMCID: PMC5266631, DOI: 10.1111/nyas.13259.Peer-Reviewed Reviews, Practice Guidelines, Standards, and Consensus StatementsConceptsData privacySensitive individual informationComputer science communityReal-world problemsUnauthorized partiesHuman genomic dataPrivacy breachesData accessData sharingData accessibilityConfidentiality protectionGenomic dataSpectrum of techniquesIndividual informationPrivacyScience communityPhenotype informationTechnical approachPotential solutionsCurrent common practiceBiomedical researchResearch purposesConfidentialityInformationSharing
2014
A community assessment of privacy preserving techniques for human genomes
Jiang X, Zhao Y, Wang X, Malin B, Wang S, Ohno-Machado L, Tang H. A community assessment of privacy preserving techniques for human genomes. BMC Medical Informatics And Decision Making 2014, 14: s1. PMID: 25521230, PMCID: PMC4290799, DOI: 10.1186/1472-6947-14-s1-s1.Peer-Reviewed Reviews, Practice Guidelines, Standards, and Consensus StatementsConceptsBiomedical dataPrivacy preserving techniquesPrivacy protection techniquesData privacyBiomedical computingHuman genomic dataData donorsDissemination techniquesPersonal Genome ProjectRaw dataProtection techniquesRigorous protectionPrivacyGenomic dataFinal resultsComputingCommunity effortsAnalysis outcomesChallengesTechniqueDataProject
2013
Sharing data for the public good and protecting individual privacy: informatics solutions to combine different goals
Ohno-Machado L. Sharing data for the public good and protecting individual privacy: informatics solutions to combine different goals. Journal Of The American Medical Informatics Association 2013, 20: 1-1. PMID: 23243087, PMCID: PMC3555342, DOI: 10.1136/amiajnl-2012-001513.Commentaries, Editorials and Letters