2018
Privacy Policy and Technology in Biomedical Data Science
Arellano A, Dai W, Wang S, Jiang X, Ohno-Machado L. Privacy Policy and Technology in Biomedical Data Science. Annual Review Of Biomedical Data Science 2018, 1: 115-129. PMID: 31058261, PMCID: PMC6497413, DOI: 10.1146/annurev-biodatasci-080917-013416.Peer-Reviewed Reviews, Practice Guidelines, Standards, and Consensus StatementsReal-world health-care applicationInstitutional review boardBiomedical data scienceClinical data sharingHealth care applicationsCommon rulesData anonymizationDeidentification methodsUnstructured dataEncryption methodSensitive informationPrivacy policiesData deidentificationSecurity rulesEthics topicsResearch ethicsData scienceData sharingData governancePatient privacyConsent practicesHuman subject dataHIPAA privacyPublic trustTerms of technology
2017
Developing a framework for digital objects in the Big Data to Knowledge (BD2K) commons: Report from the Commons Framework Pilots workshop
Jagodnik K, Koplev S, Jenkins S, Ohno-Machado L, Paten B, Schurer S, Dumontier M, Verborgh R, Bui A, Ping P, McKenna N, Madduri R, Pillai A, Ma'ayan A. Developing a framework for digital objects in the Big Data to Knowledge (BD2K) commons: Report from the Commons Framework Pilots workshop. Journal Of Biomedical Informatics 2017, 71: 49-57. PMID: 28501646, PMCID: PMC5545976, DOI: 10.1016/j.jbi.2017.05.006.Peer-Reviewed Original ResearchConceptsBig dataDigital objectsBig data scienceNIH Big DataDiversity of dataComputational infrastructureData scienceData sharingVirtual environmentSecure processK frameworkDiverse datasetsKnowledge initiativesKnowledge commonsSuch dataBiomedical researchObjectsInteroperabilityFrameworkDiscoverabilityRecent yearsSharingDatasetInfrastructurePilot project