2018
A Novel Stakeholder Engagement Approach for Patient-centered Outcomes Research
Kim K, Khodyakov D, Marie K, Taras H, Meeker D, Campos H, Ohno-Machado L. A Novel Stakeholder Engagement Approach for Patient-centered Outcomes Research. Medical Care 2018, 56: s41-s47. PMID: 30074950, PMCID: PMC6143220, DOI: 10.1097/mlr.0000000000000790.Peer-Reviewed Original ResearchConceptsClinical Data Research NetworkPatient-centered outcomes researchEngagement of patientsOutcomes research studiesConditions of focusStakeholder advisory boardPatient-centered outcomes research studiesKawasaki diseaseHeart failurePatient advocatesPatientsClinical sitesOutcomes researchSignificant differencesHealth researchCliniciansResearch NetworkResearch prioritiesSetting of prioritiesEngagement strategiesAdvisory BoardFavorable opinionObesityEngagement principlesDisease
2017
Education of informatics professionals and development of electronic information resources for clinicians, patients, health scientists, and study participants
Ohno-Machado L. Education of informatics professionals and development of electronic information resources for clinicians, patients, health scientists, and study participants. Journal Of The American Medical Informatics Association 2017, 24: 679-679. PMID: 28927160, PMCID: PMC7651983, DOI: 10.1093/jamia/ocx058.Commentaries, Editorials and Letters
2003
Classification of movement states in Parkinson's disease using a wearable ambulatory monitor.
Klapper D, Weaver J, Fernandez H, Ohno-Machado L. Classification of movement states in Parkinson's disease using a wearable ambulatory monitor. AMIA Annual Symposium Proceedings 2003, 2003: 896. PMID: 14728401, PMCID: PMC1480298.Peer-Reviewed Original ResearchConceptsParkinson's patientsMedication-related side effectsDosing of medicationsSymptoms of parkinsonismSeverity of symptomsMedication 1Patient historyParkinson's diseaseSide effectsPatientsCliniciansAmbulatory monitorPatients' selfSymptomsDiseaseMeasurement of movementDaysBradykinesiaMedicationsAkinesiaDyskinesiaHypokinesiaParkinsonismDosingSeverity